Myasthenia Gravis Association of Kansas City
2340 E. Meyer Blvd.
Building 1, Suite 300A
Kansas City MO 64132
MGA ANNUAL MEETING
Web and Phone Contact
Telephone (816) 256-4100
Mission Statement
The Myasthenia Gravis Association is dedicated to improving the quality of life for those affected by this autoimmune, neuromuscular disease, through awareness, education and patient services.
Leadership
CEO/Executive Director Ms. Danielle Walk
Board Chair Mr. Dennis Wise
Board Chair Company Affiliation Retired
History and Background
Year of Incorporation 1961
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement The Myasthenia Gravis Association is dedicated to improving the quality of life for those affected by this autoimmune, neuromuscular disease, through awareness, education and patient services.
Background Statement The Myasthenia Gravis Association of Kansas City was founded in 1961 by Joan Stackhouse, who was diagnosed with MG and found that little information and support existed to help her and others. Over the years, MGA has collaborated with Menorah Medical Center, Research Medical Center, Kansas City Clinical Neurological Associates of St. Lukes Medical Centers.  MGA works with many neurologists in the Kansas City area, including our specialized MG clinics at KU Medical Center and two locations of Dr. Schwartzman's at Neurological Consultants. Besides clinic support for members and their families, 6 support groups in MO & KS and telephone contact provides support and information. Quarterly newsletters, "New Member Packets" and an annual meeting provide news of research, treatment, medications and other health-related information. Community presentations, health professional training and participation at health fairs provides opportunities for public education and awareness. With changing demographics and younger interests in online information, the MGA has created a strategic plan which will involve increased use of social media and website learning.
Impact Statement

2015 ACCOMPLISHMENTS:

 

  1. We saw a 7% increase in new members (155 new members) since the end of 2014. 85 of these were new patients. We usually average 60-65 new patients a year. This shows that people are finding us due to the awareness we are creating.
  2. Created 4 excellent and well-received issues of CONNECTIONS newsletter.
  3. Saw 316 patients at 81 clinics.
  4. Assisted over 1,400 patients/clients with information & referral & held 24 MG Support Groups with over 300 participants.
  5. We added 3 new board members to our board of directors.
  6. Continued successful walks for awareness in Lawrence, Wichita and Kansas City.
  7. We had our website redesigned.
  8. Dr. Jawdat from KU and the VA MG clinics, joined our Medical Advisory Committee.
  9. St. Louis, Wichita, Joplin, Kansas City and Lawrence proclaimed June as MG Awareness Month as well as MO & KS.
  10. Held a successful annual meeting with 94 in attendance. All attendees rated our keynote, Dr. Barohn, as “excellent in the evaluation.
  11. Expanded our Facebook page presence to 4,331 Likes (955 new likes in 2015).

 

 

2016 GOALS:
 

 

  1. REVENUE: We must find a new way to bring in more funding through the Annual Benefit or another route due to increasing costs.
  2. WEBSITE: Continue updates on our website.
  3. EXPANDING THE ST. LOUIS, SPRINGFIELD AND COLUMBIA REGION: We will continue to reach out to neurologists in these areas and members to host support groups in each of these cities.
  4. AWARENESS: Create awareness among a much needed group of health professionals. Have the cities across Missouri and Kansas sign a proclamation that June is MG Awareness Month.
  5. VA CLINIC: The VA opened a MG clinic in 2014 so in 2016 we will continue to try to reach out to them to participate in the clinic.
  6. SUPPORT: Continue to host support groups and provide patient assistance/education across MO & KS.

 

Needs Statement
  1. Attract corporate sponsors to underwrite costs associated with Annual Benefit & Annual Meeting, ($10,000).
  2. Increase public awareness & public relations ($3,000)
  3. Obtain graphic designer/tech company to assist with website updates as well as a regular computer needs throughout the year ($2,000).
  4. Find 1-2 more board members with community connections and a passion to further our mission. 
  5. Find volunteers to serve on the walk and benefit committee.  
Service Categories
Centers to Support the Independence of Specific Populations
Neurology & Neuroscience
Neurology & Neuroscience
Areas of Service
MO
KS
CEO/Executive Director/Board Chair Statement

The Board of Directors is dedicated to move the association forward and is gratified to have an executive director who has brought inspiring leadership since 2012. We are aggressively recruiting additional board members with skill and talent in civic, cultural, and business venues. The MGA annual benefit/auction and MGA's Triple Crown Showdown (KC 5K and Walk) for MG Awareness are currently the association’s major fundraisers and the staff and Board members were successful in reaching out to corporations beyond those who have historically sponsored and contributed to this event. The momentum is strong and the board believes the MGA has provided an increased level of service and communication to those individuals and their families living with myasthenia gravis in greater Kansas City, Missouri and Kansas geographical areas.

 
Programs
Description

The MGA has two MG Clinics (St. Lukes and KUMC) that they work with through a collaborative effort with local neurologists who specialize in the treatment of MG. Physician offices make an effort to schedule MG patients the same day of the week so that MGA staff and volunteers can meet with patients/clients in the physician’s office before their appointment. A new diagnosis or coping with a chronic disease, such as MG, can cause anxiety and fear. Meeting with a MGA staff member or volunteer offers an informal, friendly and less medical opportunity for sharing and learning. The purpose of the clinics is:

· Provide support to MG clients and referrals to human services

· Provide “New Member Packets” for newly diagnosed members

· Provide opportunities to discuss coping with symptoms

· Provide opportunities to discuss wellness techniques & healthy lifestyle

· Provide informational material regarding links to MG and other health-related resources

Program Budget $5,100.00
Category Diseases, Disorders & Medical Disciplines, General/Other Nervous System Diseases
Population Served Adults, ,
Short-Term Success The MGA does not have control over the rate of remission or wellness of our members. To us, success is measured in numbers served.

We held 47 clinics at KU Medical Center, seeing 112 unduplicated clients. At Dr. Schwartzman's Neurological Consultants at St. Luke’s Medical Center locations, we held 17 clinics, seeing 87 unduplicated clients. Mainly due to these clinics, we are serving over 82% of clients with MG in the KC metro area.

Despite any personal inconvenience, our individualized service to each member promotes clients to schedule appointments during our "clinic" times. Members are eager to discuss their MG, their symptoms, medication side effects and discouragement with fatigue, vision problems and how their chronic disease has impacted personal/family life. Seldom do patients receive this kind of personalized attention within a doctor's office setting.
Long-Term Success As a result of knowledge gained, opportunity to freely discuss MG, symptoms and opportunity for dialogue focused on coping with chronic disease, MG clients will live as independently as possible and with the dignity of self-sufficiency.
Program Success Monitored By Because MG clients go in and out of remission and because treatment plans vary, physician appointments are not predictable or consistent and we do not always see the same clients on a regular basis. However, we listen to clients we see and respond to requests or suggestions for information. Consequently, we research and print requested handout materials to distribute at clinics and include in “New Member Packets”. Because a medical appointment can potentially produce anxiety, clients welcome our accommodating presence and non-medical supplement to their visit.
Examples of Program Success
  1. Frequently expressed gratitude for a non-medical supportive person who is knowledgeable about MG 
  2. Clients express gratitude for MG handout materials. 
  3. Clients call us with follow-up questions, to further discuss their condition or to tell us they are in the hospital.
Description Regularly scheduled support group meetings allow those living with MG and their families a resource to better understand and cope with MG. Support Group meetings are held in Kansas City, Wichita,  Lawrence, Springfield, Columbia, St. Louis and the KC Northland and include a guest speaker and the opportunity for informal sharing of information, time for socialization and refreshments.
Program Budget $42,000.00
Category Diseases, Disorders & Medical Disciplines, General/Other Nervous System Diseases
Population Served Adults, ,
Short-Term Success Because we have no control over the rate of remission or wellness of our clients, success is measured in numbers served. In 2015, 383 clients, caregivers, family members and friends attended 24 support groups. Evaluations showed that there was general appreciation for information, question & answer period about MG and open sharing regarding members coping with MG. Trust is apparent when attendees are willing to exchange phone numbers for MG telephone reassurance. Over 95% rate our support groups as “excellent” in regards to the speaker, presentation, being able to better manage their life, increasing their knowledge, making connections with others, and living independently. In 2015, we served 82% of those with MG in the KC Metro area.
Long-Term Success As a result of knowledge gained, sense of camaraderie, exchange of client coping strategies and sharing of telephone numbers for support, MG members will live as independently as possible and with the dignity of self-sufficiency.
Program Success Monitored By

The two MG Clinics, Support Groups and the Annual Meeting utilize questionnaires targeted to function, topics and satisfaction with guest speakers. Individualized Education utilizes scripted verbal or email questioning. For all, we ask questions related to “Was this information useful in coping with your MG or as a caregiver?” and “Do you think you’ll become a better health care advocate for yourself or others?”.

Examples of Program Success
  1. Evaluations reveal beneficial presentations and information. 
  2. Clients express gratitude for opportunity to exchange information, ideas, coping skills and phone numbers. 
  3. Members call us with follow-up questions, to further discuss their condition or to tell us they are in the hospital.
Description
There are two goals for this program:

  1. Achieve public awareness through community outreach, educational activities and media relations by networking with other community agencies and the mass media arena to share information about Myasthenia Gravis and resources available through MGA.
  2. To provide continuing education for health care professionals in this region through planning and coordinating educational forums whereby introducing, enhancing and reinforcing knowledge of diagnosis methods, on-going treatment options, research activities and outcomes and patient management/care techniques for those affected by MG.
Program Budget $11,000.00
Category Diseases, Disorders & Medical Disciplines, General/Other Nervous System Diseases
Population Served Adults, ,
Short-Term Success

Staff members, board members and volunteers speak at various events in Missouri and Kansas. In 2014, 14 presentations with 403 participants learned about MG and received MGA brochures and related handout materials. Our Annual Meeting brings MG research experts and local MG Neurologists to discuss research developments, treatment and medication options. In 2015, 94 MG patients, health professionals and friends of MGA attended our 55th Annual Meeting. June is MG Awareness Month and in 2015, the KC Star posted our letter to the editor declaring June as MG Awareness Month and the symptoms of MG. St. Louis, Wichita, Joplin, Kansas City and Lawrence proclaimed June as MG Awareness Month as well as the state of MO & KS. “The Care of the Patient with MG” professional manual was sent to 200 infusion nurses in Kansas.

Long-Term Success Because Myasthenia Gravis is frequently misdiagnosed or undiagnosed and because MG is a rare and relatively unknown chronic disease, bringing awareness, information and resources to health and human service professionals may lead to early diagnosis, treatment and result in remission for MG patients.
Program Success Monitored By Although evaluations are positive, it is difficult to evaluate the impact of these events. However, if one person is successfully diagnosed or receives information and support through a referral from these presentations, they are successful.
Examples of Program Success
  1. Evaluations reveal beneficial information and increased knowledge regarding MG, diagnosis, treatment and referrals. 
  2. Referrals realized: Phone calls from MG patients are generated to MGA office as a result of information gained from participants attending public awareness events. 
  3. Annual Meeting and Nurses Mini-Conference evaluations show positive feedback regarding new information gained from guest speakers.
Description
There are four goals for this program:
  1. The publication of MGA’s “Connections” quarterly Newsletter.
  2. Production and distribution of “New Member Packets”.
  3. Information and referral.
  4. The MGA quarterly newsletter, “Connections” is sent to over 1,200 members, health professionals, friends of MGA and donors by email and standard mail. In addition, our website posts current newsletters. “New Member Packets” contain over 20 pieces of literature regarding MG and other health related issues and are mailed to newly diagnosed patients or personally handed to clients at MG clinics. Through our MGA office, staff members provide information and resources regarding MG and referrals to Neurologists who specialize in MG.  Volunteer coordinators of the MG Support Groups refer participants to the MGA office for support and I & R.
  5. The MGA website and Facebook is a useful tool to conveniently link participants with information about MGA, MG, resources, video links of those living with MG and more.
Program Budget $21,300.00
Category Diseases, Disorders & Medical Disciplines, General/Other Nervous System Diseases
Population Served Adults, ,
Short-Term Success Because we have no control over the rate of remission or wellness of our members, success is measured in numbers served. In 2015, 5,396 of our “Connections” newsletter were sent out to our members, caregivers, family members, friends and healthcare professionals. 85 MG clients received “New Member Packets”, 384 clients/caregivers received information and/or referrals through MGA office & volunteer phone calls/emails and we hosted 24 support groups with 383 attending. At each support group, evaluations are filled out. At each support group, over 95% rated it as excellent.
Long-Term Success As a result of information gained through the MGA newsletter, “Connections”, “New Member Packets” and information and referral provided by MGA staff, MG members will live as independently as possible and with the dignity of self-sufficiency.
Program Success Monitored By We ask MG memberss at clinics and support groups if there is information or specific articles they would like to see in the newsletter. We review the newsletter of the Myasthenia Gravis Foundation of America, (national office) and newsletters of MG associations across the country for new ideas and information. We are in contact with the MGFA to receive any new publications for inclusion in our “New Member Packets” and will include articles submitted by health professionals or MG clients. The MGA Executive Director attends local human service collation meetings and uses 2-1-1 resources to remain current in referral options for our members.
Examples of Program Success
  1. Frequently expressed gratitude for “Connections” and “New Member Packets” 
  2. Members utilize telephone reassurance numbers from other MG clients that are listed in newsletter. 
  3. Members call us with follow-up questions, to further discuss information they read in the newsletter or “New Member Packets”. 
  4. Members express gratitude for referrals to Neurologists that have become their MG physician.
CEO Comments
For 56 years, The Myasthenia Gravis Association has continually evolved as a dynamic and professional agency blending staff and volunteers to offer critical programs and services to those living with MG, their family and friends.
Our Board is eager to meet the demands of a growing association.  In 2012, we developed a 5-year strategic plan so that we could work towards a future that emcompasses technology to reach an every-changing MG population.  We are on goal with this plan. 
 
Our program CONNECTIONS, connects MG patients who are willing to share their phone number/email address with other MG patients for support.  This program provides a very personal opportunity for support.  In 2013, we developed a "Young Women's CONNECTIONS" network as well that connects specifically just women in their 20's, 30's and 40's. 
 
Historically, the MGA received 50% of our revenue from the United Way, but in the last 5 years our allocation comprises much less of our budget.  We continue to look to local corporate & foundation sponsors to compensate and have created 3 Walks For Awareness that involve many volunteers and are financially successful.
 
Because MG patients are generally diagnosed later in life and because older people tend to appreciate the value of support groups, our data base is mostly comprised of an older demographic.  In an effort to reachout to a younger population, the MGA has worked with DeVry University students to enhance our social media capabilities and improve our website.  Reaching the younger crowd is still a challenge the MGA faces.  The Young Women's CONNECTIONS, mentioned above, has been an effort to help reach younger individuals.
 
Because the MGA believes that access to health information is critical to promoting healthy people and that knowledge is indispensable in making informal decision in healthcare, all programs and services of the MGA include evaluations which ask questions related to usefulness of information and potential behavior change.  Symptoms of myasthenia gravis are not necessarily related to behavior so consequently we are not able to relate reduction in symptoms or hospitalizations to our services.
Executive Director/CEO
Executive Director Ms. Danielle Walk
Term Start Dec 2012
Experience Danielle became MGA’s Executive Director in December 2012.  Danielle has her master’s degree in Human Services and Social Work from Capella University and her BS in Business Management and Marketing from the University of Central Missouri.  Previous to working with the MGA, Danielle was the Program Director for the Epilepsy Foundation of MO & KS.
Co-CEO/Executive Director
Term Start
Compensation Last Year
Former CEOs
NameTerm
Ms. Abbie Whited Mar 2006 - May 2007
Mr. Jay Wilson May 2005 - Feb 2006
Senior Staff
Title Program Coordinator
Experience/Biography Amy graduated from Iowa State University with a degree in Child, Adult and Family Services. Amy is active in her church as well as her greyhound adoption group.
Staff
Paid Full-Time Staff 1
Paid Part-Time Staff 1
Volunteers 125
Paid Contractors 0
Retention Rate 100%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
The Epilepsy Foundation of Greater Kansas City
Neuromuscular Clinic at KU Medical Center
Neurological Associates at Saint Luke's Hospital
Midwest Neurological Coalition
Myasthenia Gravis Foundation of Illinois
 
Affiliations
AffiliationYear
United Way Member Agency1960
Nonprofit Connect of Greater Kansas City2013
Nonprofit Missouri2012
TechSoup2013
Awards
Award/RecognitionOrganizationYear
Community Quarterback Volunteer Award to Lisa Sackuvich - $500National Football League2003
Community Service Award - $1,500Walmart2003
Volunteer Of The Year - Diana Wilmoth, RNMyasthenia Gravis Foundation of America2008
Government Licenses
Is your organization licensed by the government? No
CEO Comments

In an effort to solicit additional support & expertise, in 2008, MGA created a Medical Advisory Committee and have added new doctors and a pharmacist in 2015. We now comprised of 13 physicans & nurses who work with MG patients or who support the work of the MGA. Their support has moved our mission forward.


The Executive Director works closely with the Board by emailing Monday Board Updates and submits an Executive Director's Report at monthly Board meetings. There is an excellent working relationship between the Executive Director and part-time Program Manager which increases our ability to serve.

With such a small staff, it has been difficult to provide all of the services that we would like to throughout MO & KS. Due to this we have been utilizing volunteers and interns.

Based on our outcome measurement, our members enjoy programs that they are able to interact with others living with MG and wanted more programs and activities in other areas that we provide services and support aimed towards younger individuals living with MG. As a result, we are in our 6th year of the MGA Triple Crown Showdown (5k and 1 mile mosey) and have walks in Wichita and Lawrence, KS. A “Young Women’s Connection” list was created to connect other young individuals with that seek additional support. Although we are not affiliated with the myasthenia gravis national foundation, we continue to work with affiliated or unaffiliated chapters around the country offering assistance with newsletter design and support group organization.


Board Chair
Board Chair Mr. Dennis Wise
Company Affiliation Retired
Term Jan 2012 to Dec 2016
Email iwhitewater@hotmail.com
Board Members
NameAffiliation
Mr. Joe Bant Lewis, Rice, Fingerish Law Firm
Ms. LaDonna Diller Soleo Health
Ms. Allison Foss Social Worker
Mr. Derek Haverkamp People's Bank
Mr. Brett Henson KALO
Ms. Karen Hootman RNARJ Infusion Services
Mr. Ray Olsen Community Volunteer
Mr. Christopher Roper Lawing Financial
Ms. Lisa Sackuvich RNARJ Infusion Services
Dr. John Sand MDMD Electrodiagnosis
Mr. John Wilkinson Premier Lighting and Controls
Mr. Dennis Wise Bass Pro Shop
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 12
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 8
Female 4
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 1
Board Meeting Attendance % 60%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 75%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 11
Advisory Board Members
NameAffiliation
Dr. Richard Barohn MDUniversity of Kansas Medical Center Dept. of Neurology
Dr. Emmanuel Daon MDKU Medical Center Thoracic Surgery
Dr. Mazen Dimachkie MDKU Medical Center Dept. of Neurology
Dr. Vernita Hairston-Mitchell MDResearch Neurology Associates - Research Medical Center
Dr. Larry Hollenbeck MDNorthland Neurological Associates
Dr. Omar Jawdat MDKU Medical Center & VA Hospital
Dr. Leonard Lausten MDKUMC - Dept. of Dentistry
Dr. Eric May MDWestport Anesthesia at St. Luke's Medical Center
Dr. Mamatha Pasnoor MDKU Medical Center Dept. of Neurology
Dr. Michael Schwartzman MDNeurological Consultants at St. Luke's Medical Center
Dr. Billi Wallace MDSabates Eye Centers
Dr. Seth Williams Pharm.DARJ Infusion Services
Ms. Diana Wilmoth RNCommunity Volunteer at Neurological Consultants
CEO Comments
Based on our outcome measurement, our members enjoy programs that they are able to interact with others living with MG and wanted more programs and activities in other areas that we provide services and support aimed towards younger individuals living with MG. As a result, we are in our 6th year of the MGA Triple Crown Showdown (5k and 1 mile mosey) and have walks in Wichita and Lawrence, KS. A “Young Women’s Connection” list was created to connect other young individuals with that seek additional support. Although we are not affiliated with the myasthenia gravis national foundation, we continue to work with affiliated or unaffiliated chapters around the country offering assistance with newsletter design and support group organization.
Financials
Fiscal Year Start Jan 01, 2016
Fiscal Year End Dec 31, 2016
Projected Revenue $135,000
Projected Expenses $135,000
IRS Letter of Exemption
Foundation Comments
  • FY 2014: Financial data reported using the IRS Form 990-EZ.
  • FY 2013, 2012:  Financial data reported using the organization's audited financial statements.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201420132012
Foundation and
Corporation Contributions
$94,596$17,911$21,580
Government Contributions$0$0$0
Federal$0$0$0
State$0$0$0
Local$0$0$0
Unspecified$0$0$0
Individual Contributions$0$45,200$29,138
$0$19,817$42,287
$0$0$0
Investment Income, Net of Losses$771$2,050$2,049
Membership Dues$0$7,590$9,015
Special Events$7,028$3,907$15,263
Revenue In-Kind$0$12,000$12,000
Other$0$0$0
Expense Allocation
Fiscal Year201420132012
Program Expense$79,629$87,730$90,926
Administration Expense$19,219$13,543$9,908
Fundraising Expense$0$8,356$19,241
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.040.991.09
Program Expense/Total Expenses81%80%76%
Fundraising Expense/Contributed Revenue0%10%18%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$175,665$172,313$176,134
Current Assets$154,115$58,222$59,666
Long-Term Liabilities$0$0$0
Current Liabilities$1,992$2,187$4,854
Total Net Assets$173,673$170,126$171,280
Short-Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities77.3726.6212.29
Long-Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments

Each winter, we prepare our budget and financial goals for the upcoming year.  Some of those goals for 2016 are:

-Continue to increase income from foundations, corporations, individuals and fundraising activities.

-Seek independent grants from individuals, businesses or foundations to cover costs of printing and production of MGA brochures and newsletters.

-Increase income from our annual benefit dinner and auction.

-Work to increase the fundraising productivity of our Board of Directors and MGA members and friends.

Most MG associations throughout the country function with volunteers only and without office space. Our board has chosen to see the big picture and the necessity to maintain structure and organization including an office and staff. With non-profit status comes our ability to seek grants from the United Way and other foundations that will help sustain staff, programming costs and links to MG and community resources.

A 2014 Statement of Activities and Changes in Net Assets shows that we were fortunate to have a surplus of $3,650. This is due in part, to the dedication and hard work of the Kansas City MGA Triple Crown Showdown, the MGA Walk For Awareness in memory of Terry Ward organized by the Lawrence Support Group Coordinators and our MGA Walk for Awareness in Wichita, KS that took place in 2013 which was organized by our Wichita Support Group Coordinators. Unfortunately, we do not believe our Wichita and Lawrence walks will take place in 2016 so we are having to find new ways to make up for the income that they brought in.

Organization Name Myasthenia Gravis Association of Kansas City
Address 2340 E. Meyer Blvd.
Building 1, Suite 300A
Kansas City, MO 64132
Primary Phone (816) 256-4100
Contact Email mgakc@sbcglobal.net
CEO/Executive Director Ms. Danielle Walk
Board Chair Mr. Dennis Wise
Board Chair Company Affiliation Retired
Year of Incorporation 1961