Gilda's Club Kansas City
21 W. 43rd Street
Kansas City MO 64111-1804
Web and Phone Contact
Telephone (816) 531-5444
Fax 816- 931-4424
Mission Statement

The vision of Gilda's Club Kansas City is "so that no one faces cancer alone."® 

It is accomplished through our mission which is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
Leadership
CEO/Executive Director Siobhan McLaughlin-Lesley
Board Chair Frank Lipsman
Board Chair Company Affiliation Kreamer Kincaid Taylor Lipsman Arney & Wait, L.C.
History and Background
Year of Incorporation 2006
Former Names
Friends of Gilda's Kansas City
Volunteer Opportunities
Ways to donate, support, or volunteer
Gilda's Club Kansas City appreciates donations of all kinds to provide our education and support programs for those impacted by cancer at no cost.
  • Financial donations may be made by mail to 21 W. 43rd St, Kansas City, MO 64111, by phone 816-531-5444 or online at www.GildasClubKC.org. 
  • In-kind donations for services, events, and auctions are also appreciated.
  • There are many ways to become involved as a volunteer including serving on an ongoing committee, helping out at our Clubhouse on a periodic or regular basis, or helping at a special event.  
  • Volunteers with a specialty in one of our program areas could conduct classes and workshops. 
  • We also have a "wish list" posted on our website that includes items needed to create a warm and welcoming environment at our Clubhouse.  
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement

The vision of Gilda's Club Kansas City is "so that no one faces cancer alone."® 

It is accomplished through our mission which is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
Background Statement

Gilda Radner, our namesake, once said, "Having cancer gave me membership into an elite club I'd rather not belong to." At Gilda's Club Kansas City (GCKC), we know that no one wants to have cancer, but we also know that when they do, they seek education and support from their community.

GCKC opened its doors in October 2011 after our founder had seen first hand the impact that another Gilda's Club affiliate had on a friend. Our Clubhouse is located in midtown Kansas City, providing a warm and welcoming home-like environment for people who need a community of support while they, or a loved one, is living with cancer.

Since opening, GCKC has continued to grow a robust program including educational programs and materials such as the "Frankly Speaking About Cancer" series; healthy lifestyle classes such as nutrition, exercise, and arts; support groups  and short- term counseling ; social activities such as comedy nights, cookouts, and remembrances; and resource and referral programs. Each program is facilitated by or supervised by a licensed mental health professional as a therapeutic opportunity could occur.

Our administration offices and some programming offerings are held at our midtown KC location, close to mass transit access. We also conduct programs at North Kansas City Hospital, Saint Luke's East Hospital, Saint Luke's South Hospital and Liberty Hospital and other facilities throughout the community.   
 
GCKC is part of an affiliate network - Cancer Support Community (CSC), the largest employer of oncology social workers in North America. As an affiliate of CSC, we are provided a vast resource and research library, which include the "Frankly Speaking about Cancer" series as well as policy and advocacy. Additionally, we are provided with three unique tools: Open to Options, Cancer Support Source; and Kid Support.
 
CSC provides an evidenced-based model, training, resource materials, and grants to each affiliate; however, each affiliate is an independent 501(c)3 nonprofit organization.  An affiliate fee of less than 1% of our operating budget is paid by our board of directors. Therefore, all money raised locally stays in Kansas City.
 
GCKC has a strong board that directs its activities.  A staff of 3 full-time and 3 part-time professionals work hard to provide programming and administration to ensure "that no one face cancer alone."® 
Impact Statement
In 2018, Gilda’s Club Kansas City served 1,800 unduplicated patients, with a total 5,748 visits, representing tremendous growth.

In 2018 Gilda's Club Kansas City:
  • Held 483 support group or individual counseling sessions
  • Hosted 129 classes and workshops
  • Hosted 67 social activities and events.

We use CancerSupportSource®, a validated psychometric distress screener, with both internal and external validity and reliability that determines the overall level of distress for our participants. In aggregate, our patient population reported distress decreased 2.12 points (on a 0 - 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed”) during their participation in 2017. 

Top Goals for 2019: points
  • Implement the five-part Program to decrease psychological distress of members.
  • Members have increased knowledge and information regarding their cancer diagnosis.
  • Increase program visits by 10%
  • Increase individuals served at the Clubhouse and 5 satellite locations by 15%
  • Increase in revenue generated from individual giving (50%) and corporations (50%). Achieve Foundation and Special Event goals.
  • Monitor and control expenses to maintain the fiscal health of the organization. Keep expenses within 2019 budget, adjusting should revenue goals not be met.
Needs Statement

The American Cancer Society® reports that today, 1 in 2 men and 1 in 3 women will receive a cancer diagnosis in his or her lifetime. As a result of early diagnosis and advancement in treatment, we are seeing increasing numbers of individuals living with cancer in our community. The American Cancer Society’s report “Cancer Treatment and Survivorship: Facts and Figures 2016 – 2017” estimates 88,000 persons in the major Kansas City metro area are living with or through a cancer diagnosis. Additional literature cites that approximately 27% of those with a cancer diagnosis has a child aged 18 or younger in the home.

This is where Gilda’s Club Kansas City comes in. We offer our evidence-based, professionally led program to those impacted by cancer – free of charge to participants. To keep pace with the increasing demand, we are hopeful our community can help with the following:

  •  Financial donations for support groups
  • Financial donations to underwrite Educational Workshops and Healthy lifestyle classes
  • Financial donations to help with general operating
  • Sponsorships of our 3 major 2019 fundraisers: Giggle With Gilda in June, with sponsorships starting at $2,500; Golf Fore Gilda in Augst, with sponsorships, starting at $250; and, Gilda’s Night With a View in September, with sponsorships, starting at $1,000.
  • We maintain a “wish list” on our website that reflects the ongoing needs of our clubhouse. Frequently listed items include gift cards to cover community meals, materials and canvases for art classes, and books of stamps. 
Service Categories
Health Support
Support NEC
Human Services
Areas of Service
MO
KS
KS - Johnson County
KS - Wyandotte County
MO - Clay County
MO - Jackson County
MO - Platte County
MO - Liberty
CEO/Executive Director/Board Chair Statement
In the 8 years that GCKC has been open, thousands of people have visited the programs and activities to get support at a time when it is needed most. Every day, we hear stories from our members about the positive impact GCKC has had on their lives, their relationships, their treatment decisions, and their quality of life.
 
When someone is diagnosed with cancer, the whole family is impacted, along with friends and co-workers. GCKC exists to provide support to all who are impacted. Kansas City has remarkable medical facilities and practitioners. GCKC is here to complement treatment - providing a variety of support depending on the needs and desires of each family. The entire program is provided free of charge not only because cancer treatment is a financial burden to most, but because we are creating a true community of support - one in which we want everyone to feel equal in the support they deserve and receive. Because our programs are all offered free, one of our biggest challenges is funding. 
 
Another challenge is making sure that people who need us, know that we are here. We reach out to community organizations, civic groups, health care providers, and anyone else who will listen.  We provide bulk mailings of our bi-monthly newsletters and other materials to over 155 cancer-related health care providers and community organizations as well as direct mail to hundreds of individuals and members.
 
No one should have to face cancer alone. GCKC is doing all we can to ensure that no one in the Kansas City area will.
Programs
Description

Educational workshops are a core component of our program offerings at GCKC. As therapeutic moments and issues may arise, we have a licensed mental health professional facilitate, lead or participate in each workshop. Educational workshops provide people impacted by cancer with information related to many aspects of the cancer experience, including specific diagnosis and treatment information, post-treatment/survivorship concerns, and financial and insurance issues. Classes include a variety of topics from our Frankly Speaking About Cancer series. Healthy Lifestyle classes address exercise, nutrition, stress management, expressive arts and other mind/ body education that have been demonstrated to positively affect the experience of people who are impacted by cancer.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer
Program is linked to organization's mssion Yes
Short-Term Success

  • 100% of participants report feeling better prepared to meet with their healthcare provider.
  • 96% of participants report increased access to information about cancer, treatment, and side effect management.
  • 85% of participants report that they have less psychological distress.
Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By To evaluate the effectiveness of the program, Gilda's Club Kansas City will assess program participation, program satisfaction and a variety of self-reported indicators related to the quality of life. To assess program participation, Gilda's Club Kansas City will track attendance and outreach efforts to ensure that benchmarks are being met. We survey participants at the end of each workshop and offer an overall member survey each year to ensure we are meeting the needs of those we serve.
Examples of Program Success

“All of us that have benefited, and continue to benefit, from the assistance provided through Gilda’s Club, are eternally grateful to have this amazing resource available in Kansas City. While going through the incredible expense of cancer care and treatment, it is such a blessing to be able to attend Gilda’s Club at no cost to the participant. I know my husband and I would not be able to participate in this organization if there was a cost involved. We have benefited so much from attending Gilda’s Club, and do not know where we would be emotionally, or where we would be as a couple, if we hadn’t been able to attend the wonderful support groups available through this Club.” –Jenny, GCKC Member

Description

GCKC support groups are offered for both those living with cancer and for families and friends, all facilitated by a licensed mental health professional. Support groups are focused on the emotional and social aspects of living with cancer throughout the entire experience, from newly diagnosed, in active treatment, in post-treatment, or end-of-life and bereavement. Consistent with best practices, GCKC support groups are 90 minutes long and led by a licensed mental health professional. The groups follow the Patient Active Model, designed and utilized by Cancer Support Community affiliates around the world. In advance of joining a support group, each member engages in a one-hour clinical interview to determine appropriateness for group participation.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer
Program is linked to organization's mssion Yes
Short-Term Success

 

  • 91% of participants report feeling more connected with others living with similar experiences.
  • 89% of participants report better family communication.

 

Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By

To evaluate the effectiveness of the program, Gilda's Club Kansas City will assess program participation, program satisfaction and a variety of self-reported indicators related to the quality of life. To assess program participation, Gilda's Club Kansas City will track attendance and outreach efforts to ensure that benchmarks are being met. We survey participants at the end of each workshop and offer an overall member survey each year to ensure we are meeting the needs of those we serve.

Examples of Program Success

Over time, Gilda's Club offered education seminars, workshops, and opportunities to be with people like me. I tapped into as much as possible about cancer and related legal, medical, and financial issues. I became my own case manager with the help of Gilda's Club! That's something I absolutely could not have done without them. - Maureen, GCKC Member

Description

Families Connect

This is a bi-monthly program for all family members when a parent, grandparent or adult relative has cancer. An adult support group is held while children (ages 4-12) meet for support and fun in Noogieland.

Kid Support

Kid Support is a 10-week support program for children (ages 5-12) who have been impacted by cancer. The group offers children the opportunity to make friends and learn skills to help them live with the stresses of cancer. Parents take part in their own support group at the same time.

 

Noogie Nights

Noogie Nights is a weekly support group for children (ages 4+) who have been impacted by a parent or grandparent’s cancer diagnosis providing children with a safe place to relax and play while discussing the emotional aspects of their cancer journey down in Noogieland, our children’s area.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer
Program is linked to organization's mssion Yes
Short-Term Success

  • 83% or more children report increased knowledge about cancer, its treatment and side effects.
  • 83% or more children report better family communication.
  • 83% or more children report that they have learned techniques for relaxation.
  • 83% or more adults report less psychological distress.
  • 83% or more adults report better family communication.
  • 83% or more adults report feeling that their children are better informed about cancer and its treatment.
Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability that determines overall level of distress for our members.

We will utilize CancerSupportSource®, our distress measurement tool, and a post-program member survey for both the parents and children participating in Kid Support.

Examples of Program Success

“I think Kid Support means to me that I got help to understand what was going on and to be confident in myself. Kid Support is a good resource to help kids feel comfortable and not have stress. You don't have to be worried and know that you have good peers around you. Kid Support is special.” –Sommer, age 8

“Dealing with a cancer diagnosis in your family is an incredibly difficult experience. Kid Support at Gilda's Club helped my family in more ways than we can explain. My daughter had a safe environment to discuss the issues surrounding her Mom's diagnosis. Both my wife and I experienced the support group for patients, caregivers and survivors. We were able to express our concerns and get support all under the guidance of a trained professional. Kid Support helped make sense of an unimaginable journey. I don't know how we would have coped without it.” –Joe, GCKC Member

CEO Comments
While our Mid-town Kansas City Clubhouse is conveniently located close to public transportation, we continue to broaden our reach throughout the multi-county region. We are conducting programming in North Kansas City Hospital, Liberty Hospital, University of Kansas Cancer Center, Saint Luke's East, and Saint Luke's South. In May 2019, we will begin a quarterly education series in collaboration with El Centro and offer support services through Juntos Community Clinic to better serve Wyandotte County.
 
For GCKC to get closer to our vision "so that no one faces cancer alone," it is imperative we reach out to underserved communities. To accomplish this, we are being intentional with our outreach, building cultural competency, and having the community inform our programming. 
Executive Director/CEO
Executive Director Siobhan McLaughlin-Lesley
Term Start Oct 2016
Experience
Siobhan McLaughlin Lesley has over two decades of experience in providing marketing communications leadership to some of Kansas City’s most successful and visible marketing communications companies, as well as civic and arts organizations.
 
Prior to joining Gilda’s Club Kansas City, Siobhan served as vice president and director of client services at Walz Tetrick Advertising and served as president and COO at Valentine Radford.
 
Siobhan also serves on the Board of Directors of The Kansas City Ballet, Goodwill Industries of Western Missouri and Eastern Kansas, The Health Care Foundation’s Community Advisory Committee and Kansas City Friends of Alvin Ailey. She is also a trustee of Pembroke Hill School.
 
Siobhan has her master’s degree from the University of Kansas and a bachelor’s degree from Vanderbilt University in Nashville, Tennessee, and received cancer support training at the Benjamin Center, Los Angeles.
Former CEOs
NameTerm
Angela LawrenceJuly 2012 - Aug 2016
Gail NicholsJune 2012 - Dec 2011
Senior Staff
Title Program Director
Staff
Paid Full-Time Staff 3
Paid Part-Time Staff 3
Paid Contractors 4
Volunteers 174
Retention Rate 100%
Staff Diversity (Ethnicity)
Caucasian 6
Staff Diversity (Gender)
Female -1
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
We have forged collaborative relationships with the oncology community and other nonprofits in the Kansas City community including:
  • Saint Luke's Health System
  • Truman Medical Center
  • North Kansas City Hospital
  • Children's Mercy Hospital
  • Cancer Action
  • Turning Point
  • Leukemia and Lymphoma Society
  • K.C. Oncology Nursing Society
  • Susan G. Komen 
  • Young Survivor's Coalition
  • Liberty Hospital
  • AdventHealth
  • American Cancer Society

We work closely with all health systems in the area.
Affiliations
AffiliationYear
Nonprofit Connect of Greater Kansas City2007
Government Licenses
Is your organization licensed by the government? Yes
CEO Comments We have expanded community relationships through which we are delivering services to North Kansas City, Southern Johnson County, Eastern Jackson County, and Wyandotte County.
Board Chair
Board Chair Frank Lipsman
Company Affiliation Kreamer Kincaid Taylor Lipsman Arney & Wait, L.C.
Email flipsman@hrkklaw.com
Board Members
NameAffiliation
Becca Bell McMahonAstraZeneca
Pamela BruceCommunity Volunteer
Patty CahillCommunity Volunteer
Gabriela FloresChildren's Mercy Kansas City
Paul HerdtnerAmerican Century Investments
Susan JacksonBMO Harris
Sharon LatimerRubinBrown, LLP
Theresa LeinwetterUniversity of Kansas Cancer Center
Ashley Leuck CPABKD, LLP
Frank LipsmanKreamer Kincaid Taylor Lipsman Parks & Arney, LC
Rick LuchinskyAmerican Century Investments
Mike MohlmanSmith Mohlman LeRoy, LLC
Beth NayElizabeth Drill Nay Law Office L.L.C.
Jane PeckSaint Luke's Health System
Willy PeguesTruman Medical Center
Eze RedwoodNTEN Digital Inclusion Fellow, Google and Partner Wings Cafe
Rob RobinsonCommerce Bank - IT Governance
Doris RoyalsCommunity Volunteer
Ray SamuelLockton
Suzanne ShankCommunity Volunteer
Jill WaldmanLathropGage LLP
Board Demographics - Ethnicity
African American/Black 2
Asian American/Pacific Islander 0
Caucasian 16
Hispanic/Latino 1
Native American/American Indian 0
Other 0 1
Board Demographics - Gender
Male 7
Female 11
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Board Governance
Executive
Finance
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Strategic Planning / Strategic Direction
Community Outreach / Community Relations
Advisory Board Members
NameAffiliation
Clay Anderson MDSaint Luke's Health System
Mary Calys PT, DPTNorth Kansas City Hospital
Danica CherryAmerican Cancer Society
Joan M.T. Collison MDUniversity of Kansas Medical Center
Furha Cossor MDSaint Luke's Cancer Institute
Meagan L Dwyer PhDUniversity of Kansas Cancer Center
Caroline Gill LMSW, LCSWChildren's Mercy Hospital
Cathy Glennon RN, MHS, OCN, NE-BCUniversity of Kansas Cancer Center
Stephanie Graff MDSarah Cannon at Research Medical Center
Julie C Holding MDUniversity of Kansas Medical Center
Roy A Jensen MDUniversity of Kansas Cancer Center
Andrea Jewell MDUniversity of Kansas Cancer Center
DeNean Jones LMSWTruman Medical Center
Hope Krebill RN, BSN, MSWMidwest Cancer Alliance
Sharon Lewis DNP, APRN-NP, AOCNPUniversity of Kansas - Clinical Research Center
Marci Michnick LMSWOverland Park Regional Medical Center
William Rosenberg MD, FAANSCenter for the Relief of Pain
David SeymourSocial Security Administration
Erin Shonkwiler APRN-BC, AOCNUniversity of Kansas Cancer Center
Christoper Sirridge MDUniversity of Kansas Cancer Center
Judy Waechter RN, CRRN, Clinical LiasonKansas City Hospice & Palliative Care
CEO Comments The board is continuing to transition from a working board that accomplished the day-to-day operations prior to having a full staff, to a board more focused on governance and policy. We have added diversity in terms of geography, community representation, skill set, and so on, but continue to struggle to accomplish racial diversity. The board is committed, energetic and enthusiastic!
Financials
Fiscal Year Start Jan 01, 2019
Fiscal Year End Dec 31, 2019
Projected Revenue $587,578
Projected Expenses $586,095
IRS Letter of Exemption
Foundation Comments
  • FY 2017, 2016, 2015: Financial data reported using IRS Form 990.  
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Expense Allocation
Fiscal Year201720162015
Program Expense$341,957$307,597$336,306
Administration Expense$38,711$41,074$31,515
Fundraising Expense$91,765$44,777$37,505
Payments to Affiliates------
Total Revenue/Total Expenses1.070.840.67
Program Expense/Total Expenses72%78%83%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201720162015
Total Assets$134,380$94,652$147,278
Current Assets$130,099$87,696$137,488
Long-Term Liabilities$0$0$0
Current Liabilities$24,394$17,996$9,379
Total Net Assets$109,986$76,656$137,899
Short-Term Solvency
Fiscal Year201720162015
Current Ratio: Current Assets/Current Liabilities5.334.8714.66
Long-Term Solvency
Fiscal Year201720162015
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201720162015
Top Funding Source & Dollar Amount $34,272American Century Investments Foundation $42,663American Century Investments $35,000
Second Highest Funding Source & Dollar Amount $33,408Individual Donor $17,000Educate Enrich and Enable Fund $25,000
Third Highest Funding Source & Dollar Amount $20,000Individual Donor $15,000Ameristar Casino $20,000
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years Yes
Organization Comments
As an affiliate of the Cancer Support Community CSC, we have the strength of CSC's research, outstanding educational materials, and resources to use here in Kansas City. As our model is to offer our program completely free of charge, we must raise all of the dollars it takes to provide the staff, the facility, the materials and the programs. The benefit is that all of the money raised is used directly in our community. Our challenge is to continue to diversify our portfolio of individuals, corporations, local businesses and foundations and be less reliant on event funds.
 
We ended 2016 with a slight deficit, which is attributed to program growth needs outpacing donations. In 2017, we expect to realize a balanced budget as we implement the marketing and development plan created by our new Executive Director, Siobhan McLaughlin-Lesley, staff, and board.
Other Documents
GCKC Brochure2016View
GCKC 5 Part Model2016View
GCKC Fact Sheet2013View
Three New Programs 20132013View
Institute of Medicine Report2007View
Organization Name Gilda's Club Kansas City
Address 21 W. 43rd Street
Kansas City, MO 641111804
Primary Phone (816) 531-5444
Contact Email info@GildasClubKC.org
CEO/Executive Director Siobhan McLaughlin-Lesley
Board Chair Frank Lipsman
Board Chair Company Affiliation Kreamer Kincaid Taylor Lipsman Arney & Wait, L.C.
Year of Incorporation 2006
Former Names
Friends of Gilda's Kansas City