Friends of the MS Achievement Center Corporation
3599 Rainbow Blvd, MS 3049
Kansas City KS 66160
Web and Phone Contact
Telephone (913) 588-8668
Fax 913- 588-7428
Mission Statement

The Friends of the MS Achievement Center's mission is to enhance the quality of life for people with progressed Multiple Sclerosis (MS) by supporting the MS Achievement Center at KU.

 We accomplish this by:

  • Raising critical funds to ensure excellent staffing and programming of the MS Achievement Center
  • Advocating for the needs of the MS Achievement Center and its members
  • Engaging passionate volunteers to support the MS Achievement Center through donations and volunteer service

The MS Achievement Center at KU provides a comprehensive program of physical rehabilitation, psychological support, social activities and health education for its members and their families. The program helps participants optimize their functional ability, move toward acceptance of their limitations, and take charge of their own lives.

Our goal is for our individuals with MS to live to their fullest potential.
Leadership
CEO/Executive Director Ms. Judy Markwardt-Oberheu
Board Chair Dr. Sharon Lynch
Board Chair Company Affiliation KU Medical Center
History and Background
Year of Incorporation 1997
Former Names
Mid-America Multiple Sclerosis Achievement Center
Volunteer Opportunities
Ways to donate, support, or volunteer
MSAC accepts donations in the form of checks made payable to Friends of the MSAC. We accept in-kind donations for our fundraising events, including the annual Race To Nowhere and Eat Bid Laugh dinner and comedy show. 
 
The organization engages volunteers to assist in event planning and at the actual events. Long-term opportunities are available for volunteers to assist in our weekly program. 
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement

The Friends of the MS Achievement Center's mission is to enhance the quality of life for people with progressed Multiple Sclerosis (MS) by supporting the MS Achievement Center at KU.

 We accomplish this by:

  • Raising critical funds to ensure excellent staffing and programming of the MS Achievement Center
  • Advocating for the needs of the MS Achievement Center and its members
  • Engaging passionate volunteers to support the MS Achievement Center through donations and volunteer service

The MS Achievement Center at KU provides a comprehensive program of physical rehabilitation, psychological support, social activities and health education for its members and their families. The program helps participants optimize their functional ability, move toward acceptance of their limitations, and take charge of their own lives.

Our goal is for our individuals with MS to live to their fullest potential.
Background Statement
MS Achievers Club is the flagship program of the MS Achievement Center at KU and as such addresses the needs of individuals with progressed MS. This weekly program provides exercise, practice on activities of daily living, cognitive stimulation and the opportunity to pursue hobbies and interests all in community with others living with progressed disease. It is about actively achieving, bridging barriers and coping while living with an incredibly isolating disease. MS can rob people of their independence and makes simple activities increasingly difficult. The people who attend the Achievers Club are among the small segment with MS who have the most life changing impact. They are no longer able to work and experience significant disability. Their challenges are more complex, their health is more tenuous and life is more stressful in general. And yet, they desire their independence like everyone else. They want to live in their own home, direct their own lives and participate in the community freely. The Friends of the MS Achievement Center provides a significant portion of the finding to make that happen.

The Mid America MS Achievement Center was established in 1995 with the mission of opening a center to provide therapeutic services for individuals with a progressive form of MS. The Center opened its doors on August 14, 1997 to six participants who received services once a week and has grown steadily to serve 70 members today. The Center, located at the University of Kansas Medical Center in Kansas City, is one of only a handful of similar programs in the entire United States.

In 2013 the Mid America MS Achievement Center received a grant from the Conrad N Hilton Foundation to expand our program. This grant came about through a collaboration between Mid America MS Achievement Center, Rehabilitation Institute of Kansas City, National MS Society Mid America Chapter and the University of Kansas Medical Center (KUMC). Through this grant KUMC provided brand new space designed specifically for the MS Achievement Center and in April of 2016 the MS Achievement Center moved to our current home in the Landon Center. With this move KUMC took over operation of the program and the Mid America MS Achievement Center changed its name to Friends of the MS Achievement Center and transitioned to an advocacy and fundraising partner. Since the move the program has expanded to serve 70 individuals weekly and continues to explore new ways to serve people with progressed MS.
Impact Statement

There are organizations focused on research to find a cure for MS and we are grateful for their work. Our passion lies in caring for and equipping people who are living with the disease today; those whose lives have been significantly disrupted by the progression of this disease. Members of the MS Achievement Center do not work due to disease progression, 65% use a wheelchair regularly and all require some level of assistance with activities of daily living. The Friends of the MS Achievement Center (FoMSAC) works hard to provide the funding necessary to give people with progressed MS the tools and resources to improve their quality of life.

Last year the FoMSAC provided $128,000 in funding to support the efforts of the MSAC at KU providing specialized programming to meet the unique and nuanced needs of people with progressed MS.

We selected Don Harkins to lead us through a strategic planning process for both the MS Achievement Center at KU and the Friends of the MSAC consecutively. The FoMSAC is funding this opportunity to provide a clear and focused direction for the Center and board for the next three years. The MSAC at KU has just completed their planning process and the FoMSAC will begin their process late Spring of 2019.

Goals for 2019 include successful completion of the strategic planning process and implementation of the plan developed. In addition, and likely a strategy of the plan, we plan to expand the number of and expertise of the board in 2019. And finally, we aim to meet or exceed our budgeted goals for our two fundraisers enabling the MSAC at KU to continue their important work.

 

Needs Statement

The most pressing needs of the organization for 2019 are:

  • Comprehensive marketing & communications plan developed - we are seeking committed individuals with expertise in marketing and communications to help develop and launch a 3 year comprehensive plan
  • Sponsorships for special events - we are seeking the support of local organizations for our events
  • Growth in board membership - we will need additional members to meet our goals to increase our capacity and expertise
  • Funding to support staffing - as the MSAC at KU serves more individuals with progressed MS their staffing needs increase
Service Categories
Human Services
Single Organization Support
Health Support
Areas of Service
MO
KS
MO - Jackson County
MO - Clay County
MO - Platte County
KS - Wyandotte County
KS - Johnson County
KS - Leavenworth County
Geographic Area Served Narrative The MS Achievement Center does not put geographic limitations on participation. Limits are created only by an individuals willingness and capacity to get to the Center in Kansas City, Kansas each week.
CEO/Executive Director/Board Chair Statement

With a 20+ year history of serving people with progressed MS, the MS Achievement Center at KU is uniquely equipped to support the complex needs of these individuals and their carepartners. Our interdisciplinary team addresses the needs of the entire person as they navigate the challenges of MS. Mobility, exercise, activities of daily living, emotional wellness, and recreation are all part of the core program. MSAC team members are regional experts in addressing the needs of individuals with progressed MS. They are skilled at identifying the nuanced changes and progressive disability caused by MS. In addition, our social worker provides one on one assistance in accessing community resources from counseling to home modification to maintain independence.

Since we opened our doors in 1997, we have taken pride in being one of less than a dozen Centers within the entire country that offer these services to those with progressed MS.

MS can be an incredibly debilitating and costly disease often striking during the highest earning period of life. Individuals with progressive forms of MS are forced to leave careers and survive on monthly disability payments. Currently, insurance does not cover maintenance therapy for MS. The cost of seeking private therapy services puts it out of the reach of many individuals with progressive MS. By providing ongoing therapy at a low monthly membership rate, we are helping to mitigate some of the impact MS has on families in our community.

The board of the Friends of the MS Achievement Center is excited at this opportunity to reach more individuals with progressed MS and embraces their changing mission to support the growing MSAC. It is an exciting time as we continue to expand our services to more individuals impacted by MS.

Programs
Description

This program of the Friends of the MS Achievement Center provides 45% of funding needed to operate the KU MS Achievement Center. To support this program we organize and host two annual fundraising events; Race to Nowhere – stationary bike race, and Eat Bid Laugh – dinner comedy show and silent auction. The proceeds of these events allow the Achievement Center to provide their medically-monitored, evidence-based wellness program to individuals with progressive multiple sclerosis.

Program Budget $121,606.00
Category Diseases, Disorders & Medical Disciplines, General/Other Multiple Sclerosis
Population Served Adults
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success

The immediate success of this program will be evidenced with meeting our goal for support of the program for budget year 2017. This will allow the program to be provided uninterrupted.

Long-Term Success The long-term success of this program will mean that individuals with progressive MS have access to a medically-monitored, evidence-based wellness program that addresses physical, cognitive and emotional health. Underwriting the cost of providing this program is critical due to the high cost of providing such intensive services. The services are provided in a group setting and not billable to insurance; members pay a monthly fee to participate.
Program Success Monitored By

Success monitoring will be based on dollars raised through two special events.

Budgeted revenue for the two events:

Race to Nowhere - $64,956

Eat Bid Laugh $56,650

Examples of Program Success

The 19th Annual Race to Nowhere was held February 25th at Kirmayer Fitness Center on the KUMC campus. Over 150 riders participated and a record number were members of the MS Achievement Center. These riders and other members together raised $37,000 for the cause. Combined with successful sponsorships and tight monitoring of expenses this contributed to the most successful event in 19 years. The net proceeds of this event were $86,177.89! Well above our goal of $64,956.

Description

Serve as community advocates, educating and creating awareness about the services available from the MS Achievement Center.

Recruit volunteers to support the MS Achievement Center program and fundraising events of the Friends of the MSAC.

Program Budget $4,020.00
Category Diseases, Disorders & Medical Disciplines, General/Other Multiple Sclerosis
Population Served Adults
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success In the short-term success is evidenced by adequate volunteers for the program and fundraising events. 
Long-Term Success Long term success will be evidenced by a broad base of community support for the work done by the MS Achievement Center. Creating awareness of the critical need by shedding light on the specific challenges of dealing with this chronic disease is a key strategy. Educating the public and grant funders about the myriad ways MS impacts individuals and the few options available to address these needs will lead to success. 
Program Success Monitored By Constant review of volunteer engagement with the program as well as awareness of our services among health care professionals.
Examples of Program Success

Since moving to KU the Achievement Center has greatly increased the breadth of recruitment. When the program began and through 2013 most of the members of the MSAC were patients of one neurologist. A significant reason was the very limited number of openings in the program; there was often a very long wait list. Today we have members who are patients at 8 different neurology practices in the Kansas City area.

CEO Comments

The Friends of the MS Achievement Center will continue to raise critical funds to support their work and enhance quality of life for their members. The Friends of the MS Achievement Center has a 20 year history of fundraising, creating awareness and engaging volunteers in support of this cause.

Executive Director/CEO
Executive Director Ms. Judy Markwardt-Oberheu
Term Start Jan 2014
Experience The Friends of the MS Achievement Center has no staff. Judy Markwardt-Oberheu is the Executive Director of the MS Achievement Center at KU and serves on the Board of Directors of the Friends of the MS Achievement Center.
Staff
Paid Full-Time Staff 0
Paid Contractors 0
Volunteers 100
Retention Rate 0%
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Under Development
Organization Policy and Procedures Yes
Nondiscrimination Policy No
Whistleblower Policy No
Document Destruction Policy Yes
Collaborations

 The MSAC has a long history of collaborating with other healthcare facilities and organizations working to support individuals with MS. Current collaborations exist with Occupational and Physical Therapy Education departments at KU Medical Center, National MS Society, KU Department of Engineering, Penn Valley Community College and Turning Point.

 

Government Licenses
Is your organization licensed by the government? No
Board Chair
Board Chair Dr. Sharon Lynch
Company Affiliation KU Medical Center
Term Nov 2018 to Nov 2019
Email slynch@kumc.edu
Board Members
NameAffiliation
Mr. Gary DickersonRetired
Mr. Brendan Franzoni
Mr. Phil HodesBlack and Veatch
Mrs. Anne HussarRetired
Mr. John JancharBlack and Veatch
Dr. Leon LeBuffeRetired
Dr. Sharon LynchKU Medical Center
Mr Nick MainCommunity Volunteer
Ms. Deanna MarkleyMid America Rehabilitation Hospital
Ms. Judy Markwardt-OberheuUniversity of Kansas Medical Center
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 6
Female 5
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 0
Board Meeting Attendance % 70%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Under Development
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 80%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Finance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Board Governance
Program / Program Planning
Financials
Fiscal Year Start Jan 01, 2019
Fiscal Year End Dec 31, 2019
Projected Revenue $173,600
Projected Expenses $172,931
Foundation Comments
  • FY 2017, 2016, 2015: Financial data reported using IRS Form 990.  
  • Foundation/corporate revenue line item includes contributions from individuals.  
Detailed Financials
 
Expense Allocation
Fiscal Year201720162015
Program Expense$172,000$125,000$143,000
Administration Expense$3,302$4,289$3,066
Fundraising Expense$0$0$0
Payments to Affiliates----$0
Total Revenue/Total Expenses1.030.980.99
Program Expense/Total Expenses98%97%98%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201720162015
Total Assets$10,344$5,680$8,224
Current Assets$10,344$5,680$8,224
Long-Term Liabilities$0$0$0
Current Liabilities$0$0$0
Total Net Assets$10,344$5,680$8,224
Short-Term Solvency
Fiscal Year201720162015
Current Ratio: Current Assets/Current Liabilities------
Long-Term Solvency
Fiscal Year201720162015
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201720162015
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Campaign Purpose
Capital Campaign Anticipated in Next 5 Years No
Organization Comments In lieu of an audit, we have a team of two board members review all transactions and records maintained by the Treasure on an annual basis. This report is then shared with the full board. 
Other Documents
Organization Name Friends of the MS Achievement Center Corporation
Address 3599 Rainbow Blvd, MS 3049
Kansas City, KS 66160
Primary Phone (913) 588-8668
Contact Email msac@kumc.edu
CEO/Executive Director Ms. Judy Markwardt-Oberheu
Board Chair Dr. Sharon Lynch
Board Chair Company Affiliation KU Medical Center
Year of Incorporation 1997
Former Names
Mid-America Multiple Sclerosis Achievement Center