Friends of the MS Achievement Center Corporation
3599 Rainbow Blvd, MS 3049
Kansas City KS 66160
Web and Phone Contact
Telephone (913) 588-8668
Mission Statement

The Friends of the MS Achievement Center's mission is to enhance the quality of life for people with progressed Multiple Sclerosis (MS) by supporting the MS Achievement Center at KU.

 We accomplish this by:

  • Raising critical funds to ensure excellent staffing and programming of the MS Achievement Center
  • Advocating for the needs of the MS Achievement Center and its members
  • Engaging passionate volunteers to support the MS Achievement Center through donations and volunteer service

The MS Achievement Center at KU provides a comprehensive program of physical rehabilitation, psychological support, social activities and health education for its members and their families. The program helps participants optimize their functional ability, move toward acceptance of their limitations, and take charge of their own lives.

Our goal is for our individuals with MS to live to their fullest potential.
Leadership
CEO/Executive Director Ms. Judy Markwardt-Oberheu
Board Chair Dr. Sharon Lynch
Board Chair Company Affiliation KU Medical Center
History and Background
Year of Incorporation 1997
Former Names
Mid-America Multiple Sclerosis Achievement Center
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement

The Friends of the MS Achievement Center's mission is to enhance the quality of life for people with progressed Multiple Sclerosis (MS) by supporting the MS Achievement Center at KU.

 We accomplish this by:

  • Raising critical funds to ensure excellent staffing and programming of the MS Achievement Center
  • Advocating for the needs of the MS Achievement Center and its members
  • Engaging passionate volunteers to support the MS Achievement Center through donations and volunteer service

The MS Achievement Center at KU provides a comprehensive program of physical rehabilitation, psychological support, social activities and health education for its members and their families. The program helps participants optimize their functional ability, move toward acceptance of their limitations, and take charge of their own lives.

Our goal is for our individuals with MS to live to their fullest potential.
Background Statement
In 1994 Dr. Sharon Lynch attended a Consortium of MS Centers meeting in Minneapolis, Minnesota where they had the opportunity to tour the Fairview MS Achievement Center. She had long believed there was a need for ongoing therapy services for individuals with progressed MS. The visit to Fairview MS Achievement Center provided an example of a successful therapy program model.
She returned to Kansas City and partnered with Sharon Simms, a dynamic woman living with MS who was passionate about providing options for people with MS to stay connected with others and improve their own health. Together this powerful pair of advocates gathered a team of healthcare professionals and patients living with MS to explore options for creating an MS Achievement Center in Kansas City. They found a great community partner in the Rehabilitation Institute of Kansas City who offered space and therapists for the program.
As a result of their dedication and determination the Mid America MS Achievement Center (MSAC) was established in December 1995 with a goal of opening a center to provide therapeutic services for individuals with a progressive form of MS. Through this collaborative effort with the Rehabilitation Institute of Kansas City (RIKC), they opened the doors to the Mid America MS Achievement Center in August of 1997 with six participants who received services once a week. A team of dedicated professionals comprised of a neurologist, psychologist, and physical, occupational, and recreational therapists provided emotional support and specialized programming for individuals to retain their functional ability.
Several expansions of the program have happened over the last 20 years. In 2013 the MSAC partnered with Kansas University Medical Center (KUMC), the National MS Society and Rehabilitation Institute of Kansas City to develop a long term plan for expanding the center capacity to 100+ participants. This group requested and was awarded a three year, $800,000 grant from the Conrad N Hilton Foundation to fund expansion. The MSAC is now operating 5 days a week as a part of the Department of Neurology at the University of Kansas Medical Center. The KU MS Achievement Center provides services to 60 individuals with progressed MS. Dr. Sharon Lynch continues as Medical Director and Chair of the Board of Directors and co-founder Sharon Simms participates in the program weekly.
Impact Statement

In April of 2016 we successfully transitioned ownership and day-to-day operations of the Mid America MS Achievement Center to the Department of Neurology at the University of Kansas Medical Center. This was the culmination of years of work to provide the most comprehensive, member-centered wellness and rehabilitation program for people with MS in the region. This transition allows the MS Achievement Center to partner with Physical Therapy and Occupational therapy faculty to engage students in the provision of OT and PT services for members on a weekly basis. The MS Achievement Center continues to offer excellent physical and occupational therapy, emotional and cognitive support and health education in a group setting. They do this in a beautiful facility designed specifically to meet their accessibility needs.

With this transition came a new name and a new mission for our organization. Friends of the MS Achievement Center exists to enhance quality of life for individuals with progressive or advanced MS. We do that through our financial and advocacy support of the MS Achievement Center at KU. The Friends of the MS Achievement Center has a 20 year history of fundraising, creating awareness and engaging volunteers in support of this cause. We will continue to build on this success while not managing the day to day operations.

Our next steps and goals for 2017 include:

  •       Rebranding our organization to reflect our new role.
  •       Refining board selection criteria, increasing our board membership and clarifying policies around governance and succession.
  •       Building on our success and increasing our special event revenue to support the MS Achievement Center programs.
Needs Statement

As we look to maximize our support efforts our biggest needs are expanding our board, engaging event volunteers and in-kind donations for events.  

Service Categories
Single Organization Support
Rehabilitative Care
Areas of Service
MO
KS
MO - Jackson County
MO - Clay County
MO - Platte County
KS - Wyandotte County
KS - Johnson County
KS - Leavenworth County
CEO/Executive Director/Board Chair Statement

Since we opened our doors in 1997, we have taken pride in being one of less than a dozen Centers within the entire country that offer these services to those with Multiple Sclerosis. We are excited to again build on our successful past and partner with a leader in MS treatment, KU Medical Center. 

MS can be an incredibly debilitating and costly disease often striking during the highest earning period of life. Individuals with progressive forms of MS are forced to leave careers and survive on monthly disability payments. Currently, insurance does not cover maintenance therapy for MS. The cost of seeking private therapy services puts it out of the reach of many individuals with progressive MS. By providing ongoing therapy at a low monthly membership rate, we are helping to mitigate some of the impact MS has on families in our community.
 
The board of the Friends of the MS Achievement Center is excited at this opportunity to reach more individuals with progressed MS and embraces their changing mission to support the growing MSAC. It is an exciting time as we continue to expand our services to more individuals impacted by MS.  
Programs
Description

This program of the Friends of the MS Achievement Center provides 45% of funding needed to operate the KU MS Achievement Center. To support this program we organize and host two annual fundraising events; Race to Nowhere – stationary bike race, and Eat Bid Laugh – dinner comedy show and silent auction. The proceeds of these events allow the Achievement Center to provide their medically-monitored, evidence-based wellness program to individuals with progressive multiple sclerosis.

Program Budget $121,606.00
Category Diseases, Disorders & Medical Disciplines, General/Other Multiple Sclerosis
Population Served Adults, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success

The immediate success of this program will be evidenced with meeting our goal for support of the program for budget year 2017. This will allow the program to be provided uninterrupted.

Long-Term Success The long-term success of this program will mean that individuals with progressive MS have access to a medically-monitored, evidence-based wellness program that addresses physical, cognitive and emotional health. Underwriting the cost of providing this program is critical due to the high cost of providing such intensive services. The services are provided in a group setting and not billable to insurance; members pay a monthly fee to participate.
Program Success Monitored By

Success monitoring will be based on dollars raised through two special events.

Budgeted revenue for the two events:

Race to Nowhere - $64,956

Eat Bid Laugh $56,650

Examples of Program Success

The 19th Annual Race to Nowhere was held February 25th at Kirmayer Fitness Center on the KUMC campus. Over 150 riders participated and a record number were members of the MS Achievement Center. These riders and other members together raised $37,000 for the cause. Combined with successful sponsorships and tight monitoring of expenses this contributed to the most successful event in 19 years. The net proceeds of this event were $86,177.89! Well above our goal of $64,956.

Description

Raise money to build the scholarship annual funds to support the individuals who cannot afford the monthly membership fee.

Program Budget $3,000.00
Category Diseases, Disorders & Medical Disciplines, General/Other Multiple Sclerosis
Population Served Adults, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success

Short term success would be raising the $3000 required to match anticipated needs for 2017. Thus allowing those individuals to participate in the program this year.

Long-Term Success Long term success of this program will make it possible for anyone with the desire and qualifications to participate in the MS Achievement Center to do so regardless of financial ability. One of the significant hurdles for individuals with MS is the high cost of living with the disease. The average annual cost of living with MS exceeds $70,000. Most individuals are diagnosed during their prime income earning years, often significantly reducing ability to work and long-term financial stability. Offering scholarships to participate in the program removes one small barrier to achieving their highest quality of life.
Program Success Monitored By Fund for scholarships are raised at the annual Eat Bid Laugh event in the fall. 
Examples of Program Success 2017 will be the 3 rd year fundraising for scholarships. In our first two years of asks we have raised a combined $8,000. 
Description

Serve as community advocates, educating and creating awareness about the services available from the MS Achievement Center.

Recruit volunteers to support the MS Achievement Center program and fundraising events of the Friends of the MSAC.

Program Budget $4,020.00
Category Diseases, Disorders & Medical Disciplines, General/Other Multiple Sclerosis
Population Served Adults, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success In the short-term success is evidenced by adequate volunteers for the program and fundraising events. 
Long-Term Success Long term success will be evidenced by a broad base of community support for the work done by the MS Achievement Center. Creating awareness of the critical need by shedding light on the specific challenges of dealing with this chronic disease is a key strategy. Educating the public and grant funders about the myriad ways MS impacts individuals and the few options available to address these needs will lead to success. 
Program Success Monitored By Constant review of volunteer engagement with the program as well as awareness of our services among health care professionals.
Examples of Program Success

Since moving to KU the Achievement Center has greatly increased the breadth of recruitment. When the program began and through 2013 most of the members of the MSAC were patients of one neurologist. A significant reason was the very limited number of openings in the program; there was often a very long wait list. Today we have members who are patients at 8 different neurology practices in the Kansas City area.

CEO Comments

With the successful transition of program ownership and day-to-day operations to the Department of Neurology at the University of Kansas Medical Center came changes to our program as well. The ultimate goal remains the same - enhancing quality of life for individuals with progressive MS. Our role in accomplishing that goal has move from direct control to fundraising and advocacy. The MS Achievement Center continues to offer excellent physical and occupational therapy, emotional and cognitive support and health education in a group setting. They do this in a beautiful facility designed specifically to meet their accessibility needs.

The Friends of the MS Achievement Center will continue to raise critical funds to support their work and enhance quality of life for their members. The Friends of the MS Achievement Center has a 20 year history of fundraising, creating awareness and engaging volunteers in support of this cause. We will continue to build on this success while not having responsibility for day-to-day operations.

Executive Director/CEO
Executive Director Ms. Judy Markwardt-Oberheu
Term Start Jan 2014
Co-CEO/Executive Director
Term Start 0
Compensation Last Year
Staff
Paid Full-Time Staff 0
Paid Part-Time Staff 0
Volunteers 100
Paid Contractors 0
Retention Rate 0%
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Under Development
Management Succession Plan No
Organization Policy and Procedures Yes
Nondiscrimination Policy No
Whistleblower Policy No
Document Destruction Policy Yes
Collaborations

 

  • The MSAC has a long history of collaborating with other healthcare facilities and organizations working to support individuals with MS.
  • Turning Point – partners with us to provide short term group education programs from tai-chi to resiliency.
  • National MS Society – partners to promote our programs.

 

Government Licenses
Is your organization licensed by the government? No
Board Chair
Board Chair Dr. Sharon Lynch
Company Affiliation KU Medical Center
Term Nov 2015 to Nov 2018
Email slynch@kumc.edu
Board Members
NameAffiliation
Ms. Sara Baker Rehabilitation Institute of Kansas City
Mr. Gary Dickerson Retired
Mr. Phil Hodes Black and Veatch
Mrs. Anne Hussar Retired
Mr. John Janchar Black and Veatch
Dr. Leon LeBuffe Retired
Ms. Shannon Lepper Rehabilitation Institute of Kansas City
Dr. Sharon Lynch KU Medical Center
Mr Nick Main Community Volunteer
Ms. Deanna Markley Mid America Rehabilitation Hospital
Ms. Judy Markwardt-Oberheu University of Kansas Medical Center
Ms Stephanie Navrat Community Volunteer
Ms. Jenny Weatherford Community Volunteer
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 5
Female 8
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 0
Board Meeting Attendance % 80%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Under Development
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 62%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Finance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Board Governance
Program / Program Planning
CEO Comments The four-member Governance Committee is engaged in a review process to look at current bylaws, standing rules and board structure. They will present a proposal to the full board outlining recommended bylaw changes, board structure and selection criteria. Once this process is complete and approved the committee will focus on the task of recruiting a more diverse board with very specific expertise. They final step once this board is in place will be to develop a strategic plan for the organization.
Financials
Fiscal Year Start Jan 01, 2017
Fiscal Year End Dec 31, 2017
Projected Revenue $138,650
Projected Expenses $138,564
Foundation Comments
  • FY 2015, 2014, 2013: Financial data reported using IRS Form 990.  
  • Foundation/corporate revenue line item includes contributions from individuals.  
Detailed Financials
 
Expense Allocation
Fiscal Year201520142013
Program Expense$143,000$125,000$90,755
Administration Expense$3,066$6,934$614
Fundraising Expense$0$0$0
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.991.030.92
Program Expense/Total Expenses98%95%99%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$8,224$9,015$4,709
Current Assets$8,224$9,015$4,709
Long-Term Liabilities$0$0$0
Current Liabilities$0$0$0
Total Net Assets$8,224$9,015$4,709
Short-Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities------
Long-Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments In lieu of an audit, we have a team of two board members review all transactions and records maintained by the Treasure on an annual basis. This report is then shared with the full board. 
Organization Name Friends of the MS Achievement Center Corporation
Address 3599 Rainbow Blvd, MS 3049
Kansas City, KS 66160
Primary Phone (913) 588-8668
Contact Email msac@kumc.edu
CEO/Executive Director Ms. Judy Markwardt-Oberheu
Board Chair Dr. Sharon Lynch
Board Chair Company Affiliation KU Medical Center
Year of Incorporation 1997
Former Names
Mid-America Multiple Sclerosis Achievement Center