ALS Association Mid-America Chapter
6950 Squibb Road
Suite 210
Mission KS 66202
Web and Phone Contact
Telephone (913) 648-2062
Mission Statement
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Leadership
CEO/Executive Director Ms. Colleen Wachter
Board Chair Mr. Keith Gary
Board Chair Company Affiliation Kansas City Area Life Sciences Institute
History and Background
Year of Incorporation 1985
Former Names
ALS Association - Keith Worthington Chapter
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Background Statement
What started in the living room of Keith and Sue Worthington in Kansas City, Mo. because there was little information about ALS at the time, has turned into one of the strongest and well-respected Chapters of The ALS Association in the country. The Mid-America Chapter funds research specific to finding the cause and cure and therapies for ALS while providing care services to help those living with ALS to better manage their disease and maintain their independence to the greatest degree possible. The Chapter has been able to bring services closer to those with ALS by expanding from one office in Kansas City to offices in Wichita, Kan., Omaha, Neb., and Springfield, Mo. A critical component to the Chapter's care services resides in the accessibility of a multidisciplinary clinic where a person with ALS can go to see multi-specialty doctors to provide clinical care. The Chapter currently supports two ALS Certified Centers of Excellence in Kansas City, Mo. at the University of Kansas Medical Center and in Omaha, Neb. at the University of Nebraska Medical Center. An ALS Clinic is available at Ozark Medical Center to service southern Missouri, southeast Kansas and northern Arkansas, and clinic at the University of Missouri-Columbia services those in western Missouri.  In 2014, the Chapter was renamed The Mid-America Chapter to better reflect our regional presence throughout several states.
Impact Statement

We educate people with ALS and their caregivers about the many options available to help manage the disease and about advances in research through in-home visits, printed material, Web site, support groups and symposiums. 

We serve as a resource for any and all health care providers about how best to meet the needs of those with ALS. We help those with ALS identify their ever-changing needs for durable medical equipment and then help them secure equipment from the best sources possible. As a stop gap, we maintain an equipment loan pool. The ALS Association Center of Excellence is a partnership between the Chapter and The University of Kansas Medical Center that provides a weekly multi-disciplinary clinic.
 
Assuring that government at all levels appreciates the needs of those dealing with ALS is also a major focus. And, of course, we are always raising funds for research. We are serving more than 500 families a year, making more than 4,100 personal contacts with patients through home visits, phone calls or e-mails. In the last few years an average of 115 people per year newly diagnosed with ALS have reached out to us. We hold 15 monthly support groups throughout the service area. We also partner with KU Medical Center to provide comprehensive evaluations and treatment plans for patients through our clinic. For those unable to make the trip, the clinic utilized telemedicine appointments. All of our services are offered at no cost to the patients or their families.
Needs Statement Our primary need is having the ability to continue the valuable programs we offer to those affected by ALS. Though the incidence of ALS is not increasing, the numbers of those with ALS turning to the Chapter for support grows annually. We also fund research to find meaningful therapies to treat ALS while leaving no stone unturned in the search for a cure.
Service Categories
Nerve Muscle & Bone Diseases
Specifically Named Diseases
Nerve Muscle & Bone Diseases Research
Areas of Service
MO
KS
NE
CEO/Executive Director/Board Chair Statement

The Mid-America Chapter of The ALS Association was established before the national organization, and is one of the largest chapters within The Association. Our chapter is known for innovation and establishing best practices among the network of chapters. Responding to the challenge of increased numbers of individuals and their families affected by ALS in our service area of Kansas, Nebraska and western Missouri, the Chapter instituted a new centralized care services model in 2013. Simultaneously, we created a set of outcomes metrics to demonstrate the effectiveness of client care services. As a result, the Chapter continues to provide high-quality services while meeting the increased demand. 

Complimenting care services provided by the Chapter, we partner with the University of Kansas Medical Center (Kansas City) and Nebraska Medicine (Omaha) to provide certified, multidisciplinary ALS treatment centers to care for our clients living with ALS. We continue to expand the availability of our clinics with expanding partnerships with Cox Health (Springfield, Mo.), Ozark Medical Center (West Plains, Mo.), Neurological Consultants of Kansas (Wichita, Kan.) and the University of Missouri (Columbia). 

While the Chapter’s fundraising activities support care services and clinics, a significant portion of funds support ALS research through the national offices of The ALS Association. The Association has committed more than $99 million to find effective treatments and a cure for ALS. Its global research effort has helped increase the number of scientists working on ALS, advanced new discoveries and treatments, and has shed light on the complex genetic and environmental factors involved in ALS. 

Trained as a neuroscientist, I was directly involved in research related to neuropsychiatric and neurodegenerative disorders. As most of these disorders have no cure, organizations such as The ALS Association are critically important to people with ALS and their families. While my research credentials were a likely reason for being invited to join the Mid-America Chapter Board of Directors, I have developed a deep passion for the Chapter’s mission and dedication to serving individuals and families affected by ALS. 

Programs
Description Provide personal contact to discern needs and coordinate services for people with ALS and their families. Provide information and services to empower clients to make informed decisions in managing living with ALS.  
Program Budget $1,123,000.00
Category Diseases, Disorders & Medical Disciplines, General/Other Amyotrophic Lateral Sclerosis
Population Served Other Named Groups, ,
Short-Term Success Increased information and utilization of available resources.
Long-Term Success Those with ALS will experience the greatest quality of life possible.
Program Success Monitored By We use evaluations of this service and track utilization of it.
Examples of Program Success Our evaluations and communication with those with ALS and their families and survivors indicate that those using this service are better able to manage living with the disease, anticipating and planning for the inevitable changes and avoiding crisis.
Description Provide information through newsletters, support groups and a web site to educate people with ALS & their caregivers about the many options available to help manage the disease & about the advances in research. Conduct in-service training for health providers & presentations for lay audiences.
Program Budget $67,000.00
Category Diseases, Disorders & Medical Disciplines Amyotrophic Lateral Sclerosis
Population Served General Public/Unspecified, ,
Short-Term Success Increased presentations to lay and professional groups.
Long-Term Success Greater public awareness of the disease and the organization. Greater awareness of the disease and its management among medical professionals and health care providers.
Program Success Monitored By We track the number of presentations and the size of the audiences monthly.
Examples of Program Success Success of this program results in better care for those with ALS from home health agencies, hospices, hospitals, nursing homes, etc.
Description Multi-disciplinary teams meet weekly at the University of Kansas Medical Center and Nebraska Medicine and monthly at Ozark Medical Center and the University of Missouri-Columbia Medical Center to plan the treatment and care of people with ALS. The Certified Centers at KU and Nebraska Medicine conduct ALS Research through drug and clinical trials.
Program Budget $146,000.00
Category Diseases, Disorders & Medical Disciplines, General/Other Amyotrophic Lateral Sclerosis
Population Served Other Named Groups, ,
Short-Term Success Those with ALS will better manage the progression of their disease.
Long-Term Success Those with ALS will live longer and more productive lives.
Program Success Monitored By The clinic program is evaluated regularly through a re-certification process.
Examples of Program Success The program has been successfully re-certified. The numbers of those utilizing the clinic have increased annually. Evaluations indicate a high level of satisfaction.
CEO Comments Our most valued service is the ability to provide at home consultation and case management by our professional service coordinators. Given the rural nature of much of our service area, it is a challenge to consistently provide this service. We are seeking support from communities throughout the service area to maintain the frequency and quality of these visits.
Executive Director/CEO
Executive Director Ms. Colleen Wachter
Co-CEO/Executive Director
Term Start 0
Compensation Last Year
Senior Staff
Title Program Director
Experience/Biography Sally Dwyer, Program Director, is in her 18th year with the ALS Association Keith Worthington Chapter. She holds both a Masters and Bachelors degree in Education. In addition to teaching, Sally’s past job experience includes being Vice President and Business Manager with a computer educational publishing company. As the Director of Programs, Sally oversees the Chapter’s patient services, education, awareness and advocacy in Kansas, Nebraska and the western two-thirds of Missouri.
Staff
Paid Full-Time Staff 17
Paid Part-Time Staff 0
Volunteers 150
Paid Contractors 0
Retention Rate 81%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan No
Organization Policy and Procedures Yes
Nondiscrimination Policy No
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
  • Midwest Neurological Coalition
  • Institute for Neurological Discoveries - Transforming discoveries into cures for neurological disorders. An initiative aimed at advancing existing programs and identifying new areas for development. 
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1988
Government Licenses
Is your organization licensed by the government? No
CEO Comments In an effort to move services closer to those with ALS, the Chapter has established offices in Wichita, Omaha and Springfield. The Chapter is also trying to raise funds in these areas.
Board Chair
Board Chair Mr. Keith Gary
Company Affiliation Kansas City Area Life Sciences Institute
Term Feb 2015 to Jan 2018
Board Members
NameAffiliation
Mr. Mark Allen Case Advances LLC
Mrs. Suzanne Apel Malone Finkle Eckhardt & Collins
Mr. Matt Brane Bushwood Investments LLC
Mr. Ryan Clark
Ms. Nancy Creasy Blue Cross Blue Shield of Kansas City
Mr. Jay Daugherty Daugherty Mediation
Mr. Keith Gary Kansas City Area Life Sciences Institute
Mr Robert Hunter Stinson Morrison Hecker
Mr Jason Leiker Foland, Wickens, Eisfelder, Roper & Hofer
Mr Bill Perry Legacy Title
Mr. Chris Rahimian Scout
Mrs Brooke Runnion Lockton Companies
Mr. Greg Steinberg Husch Blackwell LLC
Mr. Pete Story CMI
Mr. Chris Tonniges
Mr. Dave Watkins Slagle Bernard & Gorman
Mr. David Wurth Community Volunteer
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 17
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 14
Female 3
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 2
Board Meeting Attendance % 56%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 25%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Board Development / Board Orientation
Board Governance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Education
Executive
Finance
Human Resources / Personnel
Investment
Legislative
Nominating
Operations
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
CEO Comments
In an effort to move services closer to those with ALS, the Chapter has established offices in Wichita, Omaha and Springfield. The Chapter is also trying to raise funds in these areas.
Financials
Fiscal Year Start Feb 01, 2017
Fiscal Year End Jan 31, 2018
Projected Revenue $1,781,000
Projected Expenses $1,781,000
IRS Letter of Exemption
Foundation Comments
  • FYE 1/31/2016, 2015, 2014: Financial data reported using IRS Form 990.
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201620152014
Foundation and
Corporation Contributions
$609,318$1,338,969$597,909
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified$0$0$0
Individual Contributions------
$42,282$104,752$9,045
$0$0$0
Investment Income, Net of Losses($29,721)$24,241$35,417
Membership Dues$0$0$0
Special Events$1,124,774$1,773,137$1,182,752
Revenue In-Kind$0$0$0
Other($1,275)$1,257$164
Expense Allocation
Fiscal Year201620152014
Program Expense$1,548,286$1,582,268$1,477,962
Administration Expense$172,001$202,847$171,239
Fundraising Expense$228,717$247,442$191,214
Payments to Affiliates------
Total Revenue/Total Expenses0.901.600.99
Program Expense/Total Expenses79%78%80%
Fundraising Expense/Contributed Revenue13%8%11%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$1,700,081$1,820,147$748,515
Current Assets$240,372$1,463,662$409,251
Long-Term Liabilities$0$0$0
Current Liabilities$182,448$98,888$237,055
Total Net Assets$1,517,633$1,721,259$511,460
Short-Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities1.3214.801.73
Long-Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments Reserves of approximately $330,000 are invested through the Greater Kansas City Community Foundation and Affiliated Trusts. Consequently they are not shown on the Chapter balance sheet.
Organization Name ALS Association Mid-America Chapter
Address 6950 Squibb Road
Suite 210
Mission, KS 66202
Primary Phone (913) 648-2062
CEO/Executive Director Ms. Colleen Wachter
Board Chair Mr. Keith Gary
Board Chair Company Affiliation Kansas City Area Life Sciences Institute
Year of Incorporation 1985
Former Names
ALS Association - Keith Worthington Chapter