ALS Association Mid-America Chapter
6950 Squibb Road
Suite 210
Mission KS 66202
Web and Phone Contact
Telephone (913) 648-2062
Fax 913- 642-2431
Mission Statement
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Leadership
CEO/Executive Director Ms. Colleen E Wachter
Board Chair Mr. Chris Tonniges
Board Chair Company Affiliation Mutual of Omaha Bank
History and Background
Year of Incorporation 1985
Former Names
ALS Association - Keith Worthington Chapter
Volunteer Opportunities
Ways to donate, support, or volunteer
  • Mail a check to 6950 Squibb Rd, Suite 210, Mission, KS 66202.
  • Visit https://www.alsa-midamerica.org and click on the red "donate" tab at the top.
  • Donate with a credit card over the phone by calling 913-648-2062. 
  • Contribute an in-kind item by calling 913-648-2062.
  • Volunteer your time by calling 913-648-2062. 
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Background Statement

The ALS Association Mid-America Chapter’s Mission is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Chapter founder, Keith Worthington, was diagnosed with ALS in 1973. He soon discovered there were no resources available for advice, help and support in managing the disease. In 1974, this active, avid community leader hosted a support group for fellow patients and their families for a meet and greet in his living room. Their relationships led to a formal organization in 1978.

In 1981, Worthington opened the first chapter office in Prairie Village, Kansas. In 1985, one year after his death, the organization incorporated as "The Keith Worthington ALS Society." In 1988, the local group proudly became an official Chapter of The ALS Association, changing the name to The ALS Association Keith Worthington Chapter.

Activities grew rapidly, and by 1997, The Chapter had two offices in Kansas, one in Kansas City and another in Wichita as well as a third office in Springfield, Missouri. By 1998, community education and fund development staff were added throughout the entire service area. In 2001, the Chapter expanded the service area to include Nebraska, and opened an office in Omaha.

In 2014, to better identify the Chapter service area and multi-state reach of The Association, The Keith Worthington Chapter changed its name to The Mid-America Chapter.

Today, The ALS Association Mid-America Chapter has emerged as the only nonprofit organization with a comprehensive program of services to support people with ALS, their families and caregivers in Kansas, Nebraska and the western two-thirds of Missouri. Services include family support, clinical care, an equipment program, referrals, resources and consultations with professionals. Those with ALS, their caregivers and families are given advice on symptom management along with access to treatments, assistive equipment, quality of life grants and group support. All services meet the critical needs of the ALS community and are provided at no cost.

Impact Statement

Achievements:Established the Wichita ALS Clinic. The Chapter has successfully collaborated with The ALS Certified Treatment Center of Excellence at the University of Kansas Medical Center and medical professionals in Wichita to establish the Wichita ALS Clinic. The Wichita ALS Clinic is a combination of a telehealth visit and a comprehensive in-person care team.The local care team consists of a physical/occupational therapist, respiratory therapist, speech therapist, and dietician and masters level social worker who is a care services specialist from The Chapter. A meeting with each discipline is followed by a one-on-one telehealth appointment with a neurologist. Currently Dr. Richard Barohn, neurologist in Kansas City, is connecting with patients. The new ALS clinic in Wichita is helping to relieve some of the burden by bringing coordinated care to the patient, all in one setting. Not only does the ALS clinic get high marks from patients, it is being hailed by peers as an innovative program. The ALS Association Mid-America Chapter was recently awarded The ALS Association's Chapter Innovation Award, which recognizes "trailblazing chapters" that are actively developing and implementing new ideas and delivery strategies, with an emphasis on collaboration.

Quality of Life Grants Program.  The ALS Association Mid-America Chapter has a Quality of Life Grant program to assist ALS families with the challenges they face every day. The Quality of Life Grant reimburses ALS families for their needs in respite, communication, home modification, access to medical care and for special circumstances. A 33% increase in requests and funding over prior year shows the great need for this assistance and the vital role it plays for our patients

 
Needs Statement
Our top 5 most pressing needs are:
  1. Additional staffing for our increase in patient numbers.
  2. Funding for enhancing use of our ALS portal program.
  3. Clinical partnerships in central Nebraska and Kansas.
  4. Sustainable funding for the ever-expanding Quality of Life Program.
  5. Funding of education about ALS for healthcare professionals in Kansas, Nebraska and Missouri.
Service Categories
Nerve Muscle & Bone Diseases
Specifically Named Diseases
Nerve Muscle & Bone Diseases Research
Areas of Service
MO
KS
NE
Geographic Area Served Narrative
The Chapter has four local offices throughout the states of Kansas, Nebraska and the western two-thirds of Missouri serving hundreds of families.
 
CEO/Executive Director/Board Chair Statement In the last 40 years, the Chapter’s history of providing an improved quality of life for those living with ALS continues to evolve to better serve the needs of patients. The ALS Association Mid-America Chapter is the only nonprofit organization with a comprehensive program of services to support people with ALS, their families and caregivers. The demand for our services is increasing. More than 600 families fighting ALS count on us to deliver hands-on services, multi-disciplinary clinics and professional staff that provide knowledge, resources, referrals and counseling all while funding cutting-edge research. There has always been a sense of urgency, especially dealing with a fatal disease. However, more now than ever, urgency comes to the forefront as we continue to make tremendous strides thanks to our donors. Every year brings more than just help for today, it also brings a new hope for tomorrow. Realizing and understanding that clinical care and research are truly interdependent, the trajectory of the Chapter has changed. Currently we have six treatment centers, with a vision of more in the future. These hubs of resources for care and research throughout the three state Chapter area will become even more necessary and valuable. Together, let’s leverage this momentum into continued growth - in care, in research, in advocacy. I look forward to working with all of you, side by side, as we strive to make ALS a chronic, no longer fatal, disease.
Programs
Description Provide personal contact to discern needs and coordinate services for people with ALS and their families. Provide information and services to empower clients to make informed decisions in managing living with ALS.  
Category Diseases, Disorders & Medical Disciplines, General/Other Amyotrophic Lateral Sclerosis
Population Served Other Named Groups
Short-Term Success New clients are educated through intake calls and materials; and all patients are provided assistance in managing their symptoms throughout the progression of their disease.
Long-Term Success Those with ALS will experience the greatest quality of life possible.
Program Success Monitored By Queries from DonorPro & Google docs, listening tours, portal numbers (incidence, prevalence) comparisons with our numbers. 
Examples of Program Success Our evaluations and communication with clients and their families and survivors indicate that those using this service are better able to manage the symptoms of ALS and disease progression.
Description

By providing information about the disease and its progression, The ALS Association increases the level of understanding for clients, their families and caregivers, and helps them better navigate disease progression and make educated decisions about care. Through in-service training for healthcare professionals, professional staff provides training and information to those caring for ALS patients including doctors, nurses and hospice and healthcare providers, about the proper care of and management for the disease. Mailed and emailed each month, the Local Connections and eConnections newsletters provide vital information and awareness to people with ALS, caregivers, families and friends with an interest in ALS.

Category Diseases, Disorders & Medical Disciplines, General/Other Amyotrophic Lateral Sclerosis
Population Served Other Named Groups
Short-Term Success The enhancement of education and outreach to the general population as well as healthcare professionals.
Long-Term Success Greater public awareness of the disease and The Association's mission. Provide a wider knowledge base of the disease and its management among medical professionals and health care providers.
Program Success Monitored By Queries from DonorPro & Google docs, listening tours, portal numbers (incidence, prevalence) comparisons with our numbers.
Examples of Program Success Success of this program results in better care for those with ALS from home health agencies, hospices, hospitals, nursing homes, caregivers, physicians, etc. 
Description Multi-disciplinary teams meet weekly at the University of Kansas Health System and Nebraska Medicine, and monthly at the University of Missouri Healthcare, Ozark Medical Center and in Wichita for the Telemedicine Clinic. These knowledgeable teams provide individualized treatment plans and care for people with ALS. The Certified Centers at The University of Kansas Health System and Nebraska Medicine conduct ALS Research through drug and clinical trials
Category Diseases, Disorders & Medical Disciplines, General/Other Amyotrophic Lateral Sclerosis
Population Served Other Named Groups
Short-Term Success Those with ALS will better manage the progression of their disease through the coordination of multidisciplinary care.  
Long-Term Success Those with ALS will have a better quality of life.
Program Success Monitored By The clinic program is evaluated regularly through a re-certification process.
Examples of Program Success The program has been successfully re-certified. The numbers of those utilizing the clinic have increased annually. Evaluations indicate a high level of satisfaction.
CEO Comments We provide a robust and sustainable offering of programs and services which consists of consultations, resources, referrals and case management by our team of registered nurses and masters level social workers. The Mid-America Chapter has successfully collaborated with local community partners and neurologists to serve the unmet needs of clinics within larger metropolitan areas across the chapter's three states of Kansas, Nebraska and Missouri. We are hopeful as we identify resources and establish relationships within the medical community that we will find opportunities and establish this expansion to clinic services especially in our underserved rural areas.
Executive Director/CEO
Executive Director Ms. Colleen E Wachter
Term Start June 2006
Former CEOs
NameTerm
Beckie CooperJan 1978 - Dec 2013
Senior Staff
Title Program Director
Experience/Biography Sally Dwyer, Program Director, is in her 18th year with the ALS Association Keith Worthington Chapter. She holds both a Masters and Bachelors degree in Education. In addition to teaching, Sally’s past job experience includes being Vice President and Business Manager with a computer educational publishing company. As the Director of Programs, Sally oversees the Chapter’s patient services, education, awareness and advocacy in Kansas, Nebraska and the western two-thirds of Missouri.
Title Director of Communications
Title Director of Fianance
Title Director Information Technology
Title Director of Philanthropy
Title
Staff
Paid Full-Time Staff 20
Paid Part-Time Staff 3
Paid Contractors 0
Volunteers 532
Retention Rate 85%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
  • The ALS Association Certified Treatment Center of Excellence at Nebraska Medicine
  • The ALS Association Certified Treatment Center of Excellence at The University of Kansas Health System
  • The ALS Association Certified Treatment Center at University of Missouri Health Care
  • The ALS Association Telemedicine Treatment Center in Wichita, Kansas
  • The ALS Association Affiliated Clinic at Cox Healthcare
  • Broadway Home Medical
  • Phoenix Home Health
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1988
Awards
Award/RecognitionOrganizationYear
Innovation AwardThe ALS Association2017
Government Licenses
Is your organization licensed by the government? Yes
Board Chair
Board Chair Mr. Chris Tonniges
Company Affiliation Mutual of Omaha Bank
Term Feb 2019 to Feb 2023
Board Members
NameAffiliation
Mrs. Suzanne ApelMalone Finkle Eckhardt & Collins
Ms. Kelly Bosak
Ms. Nancy CreasyBlue Cross Blue Shield of Kansas City
Mr. Jay DaughertyDaugherty Mediation
Ms. Jamie Drendel
Ms. Taylor Dunn
Mr. Jeff Ellis
Mr. Keith GaryKansas City Area Life Sciences Institute
Mr Robert HunterStinson Morrison Hecker
Mr. Dan JanatelloBlue KC
Mr Jason LeikerFoland, Wickens, Eisfelder, Roper & Hofer
Mr. Jim Miller
Mr. Patrick Oaks
Mr Bill PerryLegacy Title
Mrs Brooke RunnionLockton Companies
Mr. Grover Simpson
Mr. Steven St. John
Mr. Greg SteinbergHusch Blackwell LLC
Mr. Pete StoryCMI
Mr. Chris Tonniges
Mr. Dave WatkinsSlagle Bernard & Gorman
Mr. Chris WilsonThe University of Kansas Heath System
Mr. David WurthCommunity Volunteer
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 23
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 17
Female 6
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 3
Board Meeting Attendance % 73%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 23%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
Standing Committees
Board Development / Board Orientation
Board Governance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Investment
Nominating
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Operations
CEO Comments
The Ice Bucket Challenge has allowed for the growth and expansion of multidisciplinary clinics.  Through transformational gifts and greater fundraising efforts, we are working toward sustainably funding them while allowing for future growth and expansion of services.
Financials
Fiscal Year Start Feb 01, 2019
Fiscal Year End Jan 31, 2020
Projected Revenue $2,083,563
Projected Expenses $2,186,636
Foundation Comments
  • FYE 1/31/2019, 2018, 2017: Financial data reported using IRS Form 990.
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Expense Allocation
Fiscal Year201920182017
Program Expense$1,763,864$1,534,618$1,485,362
Administration Expense$186,024$167,710$167,757
Fundraising Expense$308,889$284,302$220,352
Payments to Affiliates------
Total Revenue/Total Expenses1.111.051.10
Program Expense/Total Expenses78%77%79%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201920182017
Total Assets$2,008,308$1,678,750$1,541,752
Current Assets$820,030$348,289$164,680
Long-Term Liabilities$0$0$0
Current Liabilities$280,774$202,645$157,373
Total Net Assets$1,727,534$1,476,105$1,384,379
Short-Term Solvency
Fiscal Year201920182017
Current Ratio: Current Assets/Current Liabilities2.921.721.05
Long-Term Solvency
Fiscal Year201920182017
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201920182017
Top Funding Source & Dollar Amount -- $150,000 --
Second Highest Funding Source & Dollar Amount -- $100,000 --
Third Highest Funding Source & Dollar Amount -- $25,000 --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments
The ALS Association Mid-America Chapter has been fighting on behalf of people living with ALS and their families since its inception in 1978. With over 40 years of experience serving the ALS community, and our partnership with the National ALS Association, we lead the way in research, care services, public education, and public policy by giving help and hope to those facing the disease.
People living with ALS and their families come first in everything we do. We proudly support five ALS-specific multidisciplinary clinics throughout our three-state service area; and help families navigate challenges presented to them at every turn by this complex and devastating disease. Our care services staff members walk with our families every step of the way and are a shoulder for them to lean on. The continuation of these essential services relies on the donations of generous supporters, unwavering volunteers and dedicated staff.
 
2018 was a year of record breaking: the number of clients we served, and dollars we raised. We look forward to 2019 with a sense of urgency. Now is our time to defeat ALS.
 
Other Documents
The ALS Association Mid-America Chapter Brochure2018View
The ALS Association Mid-America Chapter Annual Report2018View
The ALS Association Mid-America Chapter Annual Report2017View
The ALS Association Mid-America Chapter Article of Incorporation2014View
Organization Name ALS Association Mid-America Chapter
Address 6950 Squibb Road
Suite 210
Mission, KS 66202
Primary Phone (913) 648-2062
CEO/Executive Director Ms. Colleen E Wachter
Board Chair Mr. Chris Tonniges
Board Chair Company Affiliation Mutual of Omaha Bank
Year of Incorporation 1985
Former Names
ALS Association - Keith Worthington Chapter