Arthritis Foundation Western Missouri/Greater KC
1900 W. 75th Street
Suite 200
Prairie Village KS 66208
Web and Phone Contact
Telephone (913) 262-2233
Mission Statement
The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases.
Leadership
CEO/Executive Director Mr. Steve Rock
Board Chair Dr. Mark Box
Board Chair Company Affiliation Kansas City Internal Medicine
History and Background
Year of Incorporation 1979
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases.
Background Statement Approximately 640,000 adults and children are affected by arthritis throughout our service area. The services provided by our office include life-changing information and resources, access to optimal care, advancements in science and community connections; quarterly "Arthritis 101" seminars designed for those newly diagnosed with arthritis; an annual JA Symposium designed for families with young children recently diagnosed with arthritis; annual JA Fun Day activities for children with arthritis; and more. The National Arthritis Foundation was founded in 1948 and is the only voluntary health agency that works on behalf of people with all forms of arthritis. Volunteers support research, advocacy and government affairs, service and educational programs as well as fundraising events. Research is the Arthritis Foundation's first national priority followed by providing information and services to aid people with arthritis in taking control of their disease. The Greater Kansas City office is the only organization in the area representing the national Arthritis Foundation in its research program and providing services throughout the bi-state area.
Impact Statement
Goals:
 
  • To expand our public education efforts to reach more people with arthritis in the area through educational programs, public forums and elsewhere. 
  • To improve the effectiveness of our development activities to allow us to improve our financial stability and to fund our program goals 
  • To increase our ability to leverage our volunteer and partner contacts to enable us to add more opportunities for people throughout our area to participate in educational activities
 
Accomplishments:
 
  • In 2015, we delivered evidence-based programs to more than 5,000 participants through our partnerships with community organizations. We continued to expand the reach of our public education programs by offering regular "Arthritis 101" educational seminars and a JA Symposium, designed specifically for families of children recently diagnosed with arthritis. All "101" programs are free. 
  • We increased our volunteer base of support and staged the largest Jingle Bell Run/Walk in Kansas City history, the largest Art for Arthritis gala in Kansas City history, and the largest Walk in Kansas City since 2008. 
  • We increased our donations and event revenue from 2014, continuing an upward trend despite the unstable economy. 
  • We expanded our already-strong Leadership Board by adding integral members in 2015. 
  • We coordinated our summertime camp for children with Juvenile Arthritis, a 4-night overnight camp called Camp Joint Adventures.
Needs Statement
  1. A stronger corporate base of donors and Arthritis Foundation partners to support our special events and provide reliable, consistent funding throughout the year. 
  2. More resources to plan, implement, and promote our programs and fundraising efforts. 
  3. Greater financial support to help us to stabilize our finances, to better fund arthritis research, and to maintain our research, education and advocacy levels. 
  4. Additional partnerships with third parties through whom we can reach more individuals with arthritis. 
  5. In-kind donations that can be used as items in silent auctions, fundraiser incentives, prizes for drawings, etc.
Service Categories
Arthritis
Arthritis Research
Areas of Service
MO
MO - Jackson County
MO - Clay County
MO - Platte County
KS - Wyandotte County
KS - Johnson County
MO - Eastern Jackson Co
MO - Jackson County Urban Core
KS - Wyandotte County Urban Core
MO - Ray County
CEO/Executive Director/Board Chair Statement More than 50 million Americans live with arthritis, the nation’s leading cause of disability. The Centers for Disease Control and Prevention (CDC) states that the annual cost of arthritis to the United States economy was $128 billion in 2003 and increased by $20 billion between 1997 and 2003. The CDC attributes the dramatic increase to the aging of the population, predominantly baby boomers, and increased prevalence of arthritis. CDC also estimates an additional 8 million new cases of arthritis will be diagnosed in the next decade. To meet the current needs and to face the future challenges of the estimated increase of those with arthritis, our local chapter of over 400 volunteers, the Leadership Board and staff work hard to raise funds. The Board directs the staff to utilize these funds to continue to provide exceptional services to those 640,000 adults and children affected by arthritis in our service area through programs, public education and research. The Board is focused on building and strengthening our current funds for additional programming as well as creating more dollars for arthritis research. We are also proud that we have brought on new young members to our Board and some seasoned members who have years of experience and expertise with our Foundation as well as with not-for-profit boardsmanship. In 2016, we seek to build new relationships and partnerships, including new grant sources, corporate and private funding, and sponsorships to help meet the increasing needed services of those affected by arthritis.
Programs
Description The Program funds research with the greatest potential for improving the lives of people with arthritis. The research includes studies relevant to many forms of arthritis and related conditions as well as studies that focus on specific conditions.
Category Medical Research, General/Other Arthritis Research
Population Served Adults, Children and Youth (0 - 19 years),
Short-Term Success The Foundation funded $14 million in research in 2015.
Long-Term Success Since 1948, the Arthritis Foundation has spent more than $450 million to support over 2,000 scientists and physicians in arthritis research and has been involved in virtually every significant breakthrough regarding arthritis research in the last four decades.
Program Success Monitored By Arthritis Today, the consumer health and lifestyle magazine published by the Arthritis Foundation, offers the Drug Guide, a free comprehensive reference to help -- more -- people make informed decisions in dealing with the pain of arthritis.
Examples of Program Success The Arthritis Foundation is the leading health organization addressing the needs of some 46 million Americans living with arthritis, the nation’s number-one cause of disability. Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has 46 chapters and 150 community service points located throughout the country. The Arthritis Foundation is the largest private, not-for-profit contributor to arthritis research in the world, funding more than $450 million in research grants since 1948. The foundation helps individuals take control of arthritis by providing public health education and pursuing public policy and legislation.
Description Information and referrals, including free brochures on more than 70 arthritic related topics. Arthritis 101 Programs providing educational information on management of arthritis disease, exercise and diet, including the latest trends in treatment and medication.
Category Health Care, General/Other Patient Education
Population Served General/Unspecified, ,
Short-Term Success Thousands of people will have immediate access to life-changing information.
Long-Term Success This service provides current and accurate information about arthritis to those affected by or may become affected by the disease.
Program Success Monitored By Public Education and Referral Services Program continues to be a strong utilized program at the foundation. People want information to manage their disease and they continue to contact their local office for support and referral services. Many times we can refer people to our web site but for arthritis disease and research information but for local patient services, physician referral and local Arthritis Foundation programs people want to contact and speak with their local chapter.
Examples of Program Success The Public Education and Referral Services Program is successful because of its continued use by people with arthritis and those affected by arthritis. We also get many calls from patients that have been newly diagnosed with arthritis and their physician has suggested they call us for more information.
Description One of the Arthritis Foundation's core focuses in 2016 will be our commitment to children struggling with Juvenile Arthritis. Through public education programs, summertime camps, regular "JA Fun Days" and seminars, we'll re-double our efforts to help the 300,000-plus children in the United States who suffer from some form of Juvenile Arthritis.
Category Medical Research, General/Other Arthritis Research
Population Served Children and Youth (0 - 19 years), ,
Short-Term Success By supporting research efforts and hosting programs for children, the Arthritis Foundation empowers children by surrounding them with others who have fought similar battles.
Long-Term Success Various types of juvenile arthritis share many common symptoms, like pain, joint swelling, redness and warmth. Some types of juvenile arthritis affect the musculoskeletal system while others involve the eyes, skin, muscles and gastrointestinal tract. The long-term goal of the Arthritis Foundation is to mitigate these symptoms for 300,000 children throughout the country who have juvenile arthritis.
Program Success Monitored By By forging a partnership with the Childhood Arthritis and Rheumatology Research Alliance (CARRA), the Arthritis Foundation has a mechanism in place to implement comparative effectiveness studies and to increase community engagement in research.
Examples of Program Success One of CARRA's keystone projects that is supported by the Arthritis Foundation is the CARRA Registry, whose mission is to collect long-term information on the epidemiology, diagnoses, treatments, outcomes and impact of pediatric rheumatic diseases. This registry serves as a valuable resource for patients, physician-scientists and other researchers seeking to learn more about arthritis and other rheumatic diseases in children.
Description By developing a nationwide network of volunteers and staff members committed to creating more access to health care, the Arthritis Foundation is leading the charge in advocacy efforts for people suffering from arthritis. Those efforts are spearheaded by the Arthritis Foundation's national office and includes a focused, driven approach that reaches into state governments, Capitol Hill, local and federal legislation, and elsewhere.
Category Health Care, General/Other Patient Care/Health Care Delivery
Population Served General/Unspecified, ,
Short-Term Success One immediate priority is the Patients' Access to Treatments Act (PATA), which would limit cost-sharing in specialty tiers to the non-preferred brand drug tier - which, in turn, would make specialty medications much more accessible and affordable to patients.
Long-Term Success People with arthritis face unique barriers to care: high costs of treatment, difficulty accessing medications, scarcity of specialists and coinsurance that limits access to treatment. The Arthritis Foundation's sophisticated advocacy network is designed to make access to medical care more affordable and more available to more people through legislative change at the state and federal levels.
Program Success Monitored By We diligently track our success by monitoring our legislative priorities on the state and federal levels and our engagement with local and federal legislators. In 2015, the Arthritis Foundation touched over 1,500 state legislators and impacted legislative outcomes through advocacy visits and testimony in 20 states.
Examples of Program Success The Arthritis Foundation has actively engaged 159 bills in 46 states, positively impacting the lives of at least 106 million people in 28 states, ensuring affordability, protecting the patient-provider relationship and creating transparency in state insurance plans.
CEO Comments The Arthritis Foundation is the Champion of Yes for 50 million Americans living with arthritis. Leading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections, Our goal is to chart a winning course, guiding families in developing personalized plans for living a full life - and making each day another stride toward a cure. The Arthritis Foundation leads the way through access and advocacy on Capitol Hill and beyond, scientific discovery, help & support, juvenile arthritis initiatives to support 300,000-plus children who have arthritis, and community connections.
Executive Director/CEO
Executive Director Mr. Steve Rock
Term Start Jan 2010
Experience Steve Rock, who took over as Executive Director on Jan. 1, 2012, started with the Arthritis Foundation in January 2010 as the organization's Director of Special Events. He re-formatted the Foundation's menu of special events, re-located the venues for the organization's marquee events, overhauled the organization's Leadership Board, implemented no- and low-cost educational programs and built a stronger base of corporate donors. Previously, Mr. Rock spent 15-plus years as an investigative reporter, editor and writer for The Kansas City Star.
Co-CEO/Executive Director
Term Start
Compensation Last Year
Former CEOs
NameTerm
Mrs. Annette Teson Aug 1994 - Dec 1998
Mr. Brad Ziegler Mar 1999 - Jan 2009
Senior Staff
Title Director of Chapter Operations
Title Programming Coordinator
Title Director of Special Events
Staff
Paid Full-Time Staff 4
Paid Part-Time Staff 0
Volunteers 400
Paid Contractors 0
Retention Rate 75%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency N/A
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1979
Awards
Award/RecognitionOrganizationYear
Designated beneficiary organizationKansas City Corporate Challenge2007
Designated beneficiary organizationKansas City Corporate Challenge2006
Designated beneficiary organizationKansas City Corporate Challenge2005
Designated beneficiary organizationKansas City Corporate Challenge2004
Chief's NIght Awardn/a2005
Government Licenses
Is your organization licensed by the government? No
CEO Comments The Greater Kansas City chapter is advised by a local Leadership Board. The chapter is affiliated with the Arthritis Foundation, and participates as one of 48 chapters nationwide in a federated structure that benefits from both centralized functions and local independence where each provides the greatest value to the chapter. The budget for the chapter and the chapter's strategic and annual plans of work are developed by the Kansas City office of the Foundation, and all decisions regarding the budget and the plans of work are made locally. The board meets bi-monthly to review the chapter's financial status and progress with the annual plan of work. Many of the chapter Leadership Council members are personally impacted by arthritis and bring a special passion and understanding of the mission of the organization to the board and its functions. Chapter staff is located in Prairie Village, KS, in an office that is open to the public and that hosts twice-weekly exercise classes for arthritis seniors at no charge. The chapter is always seeking to enhance the diversity of the board, staff and volunteers. We recognize the benefits that different skill sets, cultural backgrounds and experience levels bring to the chapter. We are also striving to implement and effectively utilize technology and customer oriented business practices to enhance our efficiency and impact.
Board Chair
Board Chair Dr. Mark Box
Company Affiliation Kansas City Internal Medicine
Term Nov 2008 to Dec 2016
Board Members
NameAffiliation
Dr. Mark Box MDSt. Joseph Hospital
Mrs. Julie Crook Sierra's Cakes
Mr. John Cusick Holman Schiavone
Mrs. Lisa Diven WIN for KC
Mr. Glenn Helverson Jackson County Fire Protection District
Ms. Elena Hermanson Blue Valley School District
Ms. Cara Hoffart MDChildren's Mercy Hospital
Mrs. Whitney Kiesling Plowman Constuction
Mr. Dave Meyer Ash Grove Cement
Mrs. Carrie Mihordin DOMid-America Rheumatology Consultants
Mrs. Frances Pugh U.S. Bank
Mr. Joe Reid Tyco Integrated Security
Mr. Michael Smith MDCenter for Rheumatic Disease
Mr. Rich Snyder Dairy Farmers of America
Mrs. Cheryl Zwerenz Select Medical
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 15
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 7
Female 8
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 0
Board Meeting Attendance % 80%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 36%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
CEO Comments The Greater Kansas City office of the Arthritis Foundation is managed and run by the Arthritis Foundation staff and governed by the Heartland Region of the Arthritis Foundation. A local Leadership Board, comprised of prominent members of the community, serves the Foundation staff in an advisory and fundraising capacity. The Kansas City office is closely aligned with the national office of the Arthritis Foundation, serving in one of eight regions that are sprinkled throughout the country. The federated structure allows the Kansas City office to tap into regional resources while maintaining local autonomy. The budget for the chapter and the chapter's strategic and annual plans of work are developed by the Kansas City staff - with input from the Leadership Board - and all decisions regarding the budget and the plans of work are made locally. The Leadership Board meets bi-monthly to review the chapter's financial status and progress of each of the office's primary fundraisers. Many of the chapter Leadership Board members are personally impacted by arthritis and bring a special passion and understanding of the mission of the organization to the Board and its functions. Chapter staff is located in Prairie Village in space that is open to the public and invites twice-weekly exercise classes at no charge. The chapter is always seeking to enhance the diversity of the Board, staff and volunteers. We recognize the benefits that different skill sets, cultural backgrounds and experience levels bring to the chapter. We are also striving to implement and effectively utilize technology and customer-oriented business practices to enhance our efficiency and impact.
Financials
Fiscal Year Start Jan 01, 2016
Fiscal Year End Dec 31, 2016
Projected Revenue $4,907,651
Projected Expenses $3,644,692
Endowment Value $159,888
IRS Letter of Exemption
Foundation Comments
  • FY 2015, 2014: Financial data reported using the IRS Form 990 for Arthritis Foundation - Heartland.
  • FY 2013: Financial data reported using audited financial statement for Arthritis Foundation - Heartland.
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201520142013
Foundation and
Corporation Contributions
($145)$7,229,273$674,923
Government Contributions$79,896$90,528$96,255
Federal----$0
State----$0
Local----$0
Unspecified$79,896$90,528$96,255
Individual Contributions----$1,976,208
$276,165$327,975$339,305
$14,869$28,889$50,240
Investment Income, Net of Losses$112,348$144,722$53,731
Membership Dues$0$0$1,267,916
Special Events$2,337,480$2,440,884$2,330,402
Revenue In-Kind$145$151,445$8,000
Other$1,228$1,143$0
Expense Allocation
Fiscal Year201520142013
Program Expense$4,926,866$7,051,384$5,714,081
Administration Expense$725,576$965,117$674,430
Fundraising Expense$871,602$1,163,677$905,025
Payments to Affiliates----$0
Total Revenue/Total Expenses1.121.130.93
Program Expense/Total Expenses76%77%78%
Fundraising Expense/Contributed Revenue32%12%17%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$9,010,549$8,448,300$7,454,358
Current Assets$5,442,823$4,654,871$5,324,693
Long-Term Liabilities$66,145$133,356$0
Current Liabilities$297,831$248,641$742,618
Total Net Assets$8,646,573$8,066,303$6,711,740
Short-Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities18.2718.727.17
Long-Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets1%2%0%
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years Yes
Organization Comments In 2010, the Kansas City office of the Arthritis Foundation became part of the Heartland Region, based in Chicago. Financial numbers represent the entire region, not just the Greater Kansas City Metro area. The Kansas City office is a member of Community Health Charities and, as such, receives very limited donor-designated dollars through the United Way campaign; we do not receive direct funding from the United Way. Minimal revenue is derived from service fees and materials sales, but the majority of the chapter's programs are provided at low or no cost to participants. The region is working to add additional capacity to raise major gifts and planned gifts to further diversify its revenue base and reduce its dependency on more cyclical development activities. We have invested in training and technology to enhance the region's customer relationship system and have begun to see more effective and efficient results.
Organization Name Arthritis Foundation Western Missouri/Greater KC
Address 1900 W. 75th Street
Suite 200
Prairie Village, KS 66208
Primary Phone (913) 262-2233
Contact Email srock@arthritis.org
CEO/Executive Director Mr. Steve Rock
Board Chair Dr. Mark Box
Board Chair Company Affiliation Kansas City Internal Medicine
Year of Incorporation 1979