Alzheimer's Association-Heart of America Chapter
3846 West 75th Street
Prairie Village KS 66208
Thousands walk to raise critical awareness and funding for Alzheimer's disease.
Web and Phone Contact
Telephone (913) 831-3888
Mission Statement
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Leadership
CEO/Executive Director Mrs. Debra R. Brook
Board Chair Mr. Ben J. Biller
Board Chair Company Affiliation Burns & McDonnell
History and Background
Year of Incorporation 1981
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Background Statement

The Alzheimer's Association - Heart of America Chapter was formed more than 35 years ago to serve the greater Kansas City metropolitan area and has expanded to include 66 counties in Kansas and Missouri. There are currently more than 250,000 individuals, family members and caregivers affected by Alzheimer's disease in our community. The Chapter provides an array of vital and comprehensive services to address the increasing needs of those facing this devastating disease.

The Heart of America Chapter is the only area voluntary health organization dedicated to Alzheimer’s care, support, and education for all those affected by this disease in our community. Our organization provides extensive services, but focuses primarily on individual and family consultations, support groups, educational and training programs, social engagement programs, and advocacy efforts. 
Impact Statement

Families and care partners have many questions and concerns and often need assistance finding and utilizing community resources. Our staff is dedicated to helping people navigate through difficult the decisions and uncertainties faced at every stage of the disease, providing assistance by phone, email, in office, or in the individual's home. In 2016 the Heart of America Chapter served 100,479 people through our 24/7 Information and Support Line calls, visits to the care and support sections of our website, MedicAlert + Safe Return, and online education programs.

Care consultations and family and community education are central to our mission to educate, support and advocate. In 2016, 19,321 people were assisted through our support groups, care consultations and in-person community education, all provided at no cost.

Caring for a family member with Alzheimer’s disease can be very costly. Our Family Service Fund provided assistance for respite, medications, incontinence products and other care related expenses for 181 families. 29% of applications indicated that a loved one was not given necessary medication due to inability to afford. 55% of applications indicated that necessary care had not been provided due to lack of financial resources.

We are also proud to offer innovative social engagement programs, proven to be therapeutic on many different levels for individuals with the disease and/or their caregivers. These programs include Jam Session, for musicians with early stage memory loss and musicians who are caregivers, Memories in the Making, an innovative watercolor art program provided at 38 sites, averaging 474 attendees per month. These are examples of just two of the many programs providing wonderful venues for self-expression and socialization.

Needs Statement
  1. Increased awareness of Chapter services (video production, website enhancements, print collateral) - $25,000
  2. Care Consultations - $50,000
  3. Updated books, videos and other resources for on-site resource center. - $10,000
  4. Family Service Fund dollars to assist families with costs related to caring for a loved one with dementia $40,000
Service Categories
Alzheimer's Disease
Family Services
Areas of Service
MO
KS
Serving the greater Kansas City metropolitan area, including 66 counties in Kansas and Missouri.
CEO/Executive Director/Board Chair Statement

Researchers say that 95% of what we know about Alzheimer’s we have learned in the last 15 years. This accelerated learning curve clearly exemplifies the urgent need for answers due to the rapidly increasing incidence of Alzheimer's disease. The generosity of our donors enables us to maintain our momentum, but the dramatic increase of individuals with Alzheimer's makes it a continual challenge to meet the ever-growing and changing needs of our community. You can join us in advancing our mission in a variety of ways - by making a donation, participating in our annual Walk To End Alzheimer’s, volunteering, or even helping to build awareness by telling a friend or loved one about our services. We are relentless, we are unwavering, and we are passionately committed to creating a world without Alzheimer’s disease.

Programs
Description More than 50 Heart of America Chapter support groups provide a consistent and caring place for group members to discuss the challenges and joys of care-giving. Group members share their feelings and find emotional support as well as exchange information and educate themselves about Alzheimer's disease and other forms of dementia. Support group members bring new ideas to the table, learn about local and Association resources, share new ways of coping, boost each other's energy, and help build confidence. If you are a caregiver for a person with dementia, join a support group; you will benefit and help others.
Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Families, People/Families of People with Health Conditions,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Immediate decrease in stress and anxiety through support, socialization and education.
  2. Sense of empowerment by taking action.
  3. Improved care for individuals with Alzheimer's by educating caregivers on techniques that can be immediately incorporated into their daily routine.
  4. Increased knowledge of resources.
Long-Term Success
  1. Increased support for individuals with Alzheimer's and their caregivers, through education and networking with others in similar situations. 
  2. By learning from others accomplishments and mistakes, and being well-informed, individuals have more time to make preparations before progressing to the moderate/late stages of the disease.
  3. Family members maintain overall mental and physical health by seeking support and education from others in similar situations.
Program Success Monitored By
  1. Monitoring attendance
  2. Attendee surveys
  3. Increased utilization of services
Examples of Program Success
  1. In the past year, an average of 390 individuals per month attended one of our support groups.
  2. 18 new individuals joined in one of our early stage engagement support groups.
  3. 413 new individuals joined in one of our caregiver support groups.
  4. 3 new groups were formed in targeted outreach areas in 2016 
Description
Training is provided to professionals, paraprofessionals and those caring for individuals with Alzheimer's disease in care facilities. Professional workshops, offered regularly throughout the year, provide information and training on dementia care topics such as disease overview, communication, behavior issues and activities. Individualized in-house training for facilities and agencies can be arranged on a variety of topics.
 
Many regularly scheduled education programs are offered for individuals with memory loss and their families as well as care partners and community members.  For those who are unable to attend due to scheduling conflicts, face-to-face meetings or other arrangements are made to accommodate and ensure all needs are met.
Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Other Named Groups, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Continued increase in attendance at both professional trainings and family education programs.
  2. Continued increase in the number of care facilities and individuals/families we reach each year - especially in rural communities.
  3. Participant evaluations reflect increased knowledge and understanding about the disease and care issues.
Long-Term Success
  1. Reach all long term care facilities/agencies in our 66 county service area.
  2. Improve overall quality of care to individuals with Alzheimer's disease throughout our 66 county service area.
  3. Empower family caregivers and professionals alike with tools and techniques that can be readily applied and therefore create improved living arrangements, behavior, communication and overall understanding of the disease process.
Program Success Monitored By
  1. More than 6800 individuals, family members and/or health professionals participated in one of our educational programs this past year.
  2. Attendance is tracked for statistical reporting.
  3. Participants complete a training evaluation.
Examples of Program Success Recent evaluation feedback includes: "I think it (training) was perfect! I wish classes such as these were mandatory for all healthcare workers. Continue the excellent work!" 
Description A toll-free number, 800-272-3900, is answered by staff 24 hours, 7 days a week in 140 languages to provide information, assistance and resources.  
Category Human Services, General/Other Information & Referral
Population Served People/Families of People with Health Conditions, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Ensure timely response to all calls received.
  2. Ensure timely follow-up on all open cases.
Long-Term Success
Individuals and families affected by Alzheimer's never feel isolated or helpless regardless of time, place or situation.  Families continually refer others to us for services. 
Program Success Monitored By
  1. Monthly monitoring of database utilization, ensuring all calls and interactions are documented appropriately and timely.
  2. Monthly statistical reporting and analysis of call volume, volume by type, open cases for follow-up, and reach, based on county and other pertinent demographics.
  3. Monthly nation-wide utilization and volume discussion calls.
Examples of Program Success Calls are diligently monitored until they are resolved. A recent example includes: A family called in crisis. An in-home visit was established the same day and our Chapter helped the family get the medical care they needed within 24 hours of the original call.
Description

The Alzheimer's Association - Heart of America Chapter is proud to offer the Resource Library to anyone seeking information about Alzheimer's disease, care-giving techniques, coping skills, and many other important topics.

Individuals with dementia, their families, and their caregivers are all welcome to visit this informative Resource Library. It is located in the Main Chapter office at 3846 W. 75th Street in Prairie Village, KS and is open 8:30 a.m. to 5:00 p.m. Monday through Friday.

In addition to a large inventory of books and videos, which can be checked out for your use, the Chapter offers individual information sheets (free of charge) on common topics of discussion.

Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Aging, Elderly, Senior Citizens, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
Utilization of the on-site Resource Library is tracked.
 
Recent changes have been made to our website to include the ability for visitors (individuals, family members and professionals) to download more than 50 free information and resource documents.  This enhancement has allowed far greater numbers of individuals to benefit from the resources we provide.
Long-Term Success
Our Resource Library is often times the first step in recognizing and accepting other forms of assistance.  Since its inception, the number visitors  has steadily increased each year.
Program Success Monitored By The number of visitors to our on-site library and our website are tracked. Book and video reservations and book purchases are tracked and new additions are continually being added.  
Examples of Program Success The Resource Library is often the first step toward recognizing and accepting other forms of assistance.  Family members and care partners have many questions and concerns and often need assistance finding and utilizing community resources. Once in the door, our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties faced at every stage of the disease, helping everyone realize they do not have to face this journey alone.  Many individuals have been quoted as saying "I don't know how I could have done this alone!"
Description This distinctive and innovative art program provides persons with Alzheimer's with a means of creative expression to communicate with watercolor what they can no longer say with words. Even if just for a moment, families can experience a precious glimpse into their loved one's world as the artists capture their rich histories and important lives. Experienced volunteer artists work weekly with groups in assisted living facilities, nursing homes, adult day programs and in community settings.
Category Health Care, General/Other Occupational Therapy
Population Served Aging, Elderly, Senior Citizens, ,
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Increased self esteem, confidence and well-being despite having Alzheimer's or a related dementia.
  2. Families are enthusiastic about the program as they observe the artist's creative, enjoyable experience.
  3. Provides treatment options that include supportive, structured, non-pharmacological interventions that enhance and maintain the artist's sense of well-being.
Long-Term Success
  1. This program is outside of traditional models supporting individuals and taking into consideration their abilities, strengths and deficits.
  2. Fosters the reminder of the artist's retained strengths and abilities and provides a visual legacy.
  3. Allows for improved quality of life in individuals with Alzheimer's and related disorders.
Program Success Monitored By The Alzheimer's Association utilized an observation tool to observe 7 domains of well-being among individuals with dementia who participate in Memories in the Making. The same tool was utilized on the same individuals during more traditional adult day care activities. We have incorporated these findings into our program.
Examples of Program Success Memories in the Making participant, Dorothy, painted a house with rays of light streaming from the front windows. The picture itself was fairly nondescript, but the significance was in the painting's title, "Leave the Light on For Me". The title allowed Dorothy to express the true depth of her feelings, communicating that despite the limitations imposed by Alzheimer's disease, she is still present.
CEO Comments The programs listed above are just a small sampling of the many services and educational opportunities the Heart of America Chapter provides. Community outreach and ensuring that everyone facing Alzheimer’s has the resources they need is an essential component of our mission. We strive to provide support for the individuals with the disease, family members and caregivers. Our Chapter understands that peoples' needs vary, not only between those who are in the early, moderate, and late stages of Alzheimer's, but also among families. Our expertise and deep understanding of this disease and related disorders makes us the Alzheimer's care and education leader in our community.
Executive Director/CEO
Executive Director Mrs. Debra R. Brook
Term Start May 2000
Experience Debra has served as the Executive Director of the Alzheimer's Association – Heart of America Chapter since May 2000. Her responsibilities include overall management of the Chapter and ensuring that the Chapter carries out the mission and goals of the Alzheimer's Association in its designated territory. She provides executive leadership in developing and implementing Chapter strategic plans, policies, procedures and services to those served by the Association. She holds both bachelors and masters degrees in Organizational Communication from Northwestern University.
Co-CEO/Executive Director
Term Start
Compensation Last Year
Senior Staff
Title Director of Operations
Experience/Biography Jan has been with the Chapter since 2006, and has been the director of operations since 2012.  Her responsibilities include managing accounts receivables, supervision of clerical staff, database and technology management and overall Chapter operations.  She holds a bachelors degree of social work from Avila University and has more than 25 years experience in the non-profit field. 
Title Program Director
Experience/Biography Michelle has served as Director of Education of the Heart of America Chapter of the Alzheimer’s Association since January 2001. Her responsibilities include providing and coordinating educational opportunities for all those involved in the Alzheimer’s experience, directing program services as well as assisting in advocacy efforts in addressing the needs of this vulnerable population. She holds both bachelors and masters degree in social work from the University of Kansas and has spent the majority of her 22 + years in social work working with individuals in geriatric psychiatric settings. She also teaches social work practice at the University of Kansas.
Staff
Paid Full-Time Staff 13
Paid Part-Time Staff 5
Volunteers 200
Paid Contractors 0
Retention Rate 100%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy No
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
  • United Way
  • University of Kansas Memory Clinic
  • University of Kansas School of Social Welfare
  • University of Missouri-Kansas City
  • Johnson County Community College
  • Pittsburgh State University
  • Central Missouri State University
  • HCA Midwest
  • KC Area Agencies on Aging
  • Rehab Institute Memory Clinic
  • Missouri Department of Senior Services
  • Missouri Assisted Living Association
  • Kansas Association of Homes and Services for the Aging (KAHSA)
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1981
Government Licenses
Is your organization licensed by the government? No
CEO Comments Not long ago, Alzheimer’s disease was widely considered a hopeless condition. It was poorly understood by doctors, researchers, and policy makers. People with the disease and their caregivers had few resources for information and support. Today, the Alzheimer’s Association is the world leader in Alzheimer’s research, education, and advocacy, and the largest voluntary health organization dedicated to this cause. There are currently more than 250,000 individuals, families, and caregivers in our 66-county service area throughout Kansas and Missouri currently affected by Alzheimer’s disease. By the year 2025, the number of individuals with Alzheimer’s is expected to increase by 24 percent in Kansas and by 18 percent in Missouri. The Heart of America Chapter is proud to offer an array of comprehensive services to address the needs of those facing this disease in our community. We provide a variety of resources including support groups, educational opportunities, training, advocacy and public policy efforts, research information and assistance twenty-four hours a day, seven days a week. With the exception of professional training, our services are provided free of charge. Our priority is to ensure no one faces this devastating disease alone. Our services and outreach continues to evolve based on the needs of our community, and we are committed to providing these vital services until we one day know a world without Alzheimer’s disease.
Board Chair
Board Chair Mr. Ben J. Biller
Company Affiliation Burns & McDonnell
Term July 2015 to June 2017
Board Members
NameAffiliation
John C. Aisenbrey Stinson Leonard Street
Debbie Biehl Garden Terrace at Overland Park
Ben J. Biller Burns & McDonnell
Jane Dickinson Kress Dickinson Financial Corporation
Mike Levitan RED Brokerage
Martin M. Loring Husch Blackwell, LLP
David Marks The Collaboration LLC
Joseph P. Platt Grandbridge Real Estate Capital
David Schlee Schlee, Huber, McMillan & Krause
Chad Stout Polsinelli PC
Rob Sweatt Lockton Companies
Cathy Tivol Maslan Tivol Jewels
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 12
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 9
Female 3
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 4
Board Meeting Attendance % 90%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation No
Number of Full Board Meetings Annually 4
Standing Committees
Communications / Promotion / Publicity / Public Relations
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Program / Program Planning
CEO Comments Not long ago, Alzheimer’s disease was widely considered a hopeless condition. It was poorly understood by doctors, researchers and policy makers. People with the disease and their caregivers had few resources for information and support. Today, the Alzheimer’s Association is the world leader in Alzheimer’s research, education and advocacy, and the largest voluntary health organization dedicated to this cause. There are currently more than 250,000 individuals, families and caregivers in our 66 county service area throughout Kansas and Missouri currently affected by Alzheimer’s disease. By the year 2025, the number of individuals with Alzheimer’s is expected to increase by 24 percent in Kansas and by 18 percent in Missouri. The Heart of America Chapter is proud to offer an array of comprehensive services to address the needs of those facing this disease in our community. We provide a variety of resources including support groups, educational opportunities, training, advocacy and public policy efforts, research information and assistance twenty-four hours a day, seven days a week. With the exception of professional training, our services are provided free of charge. Our priority is to ensure no one faces this devastating disease alone. Services and outreach continue to evolve based on the needs of our community, and we are committed to providing these vital services until we one day know a world without Alzheimer’s disease.
Financials
Fiscal Year Start July 01, 2016
Fiscal Year End June 30, 2017
Projected Revenue $2,081,500
Projected Expenses $2,081,500
Foundation Comments
  • FYE 6/30/2015, 2014, 2013: Financial data reported using the local chapter's 990.
  • Foundations/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201520142013
Foundation and
Corporation Contributions
$1,886,667$1,720,375$1,300,242
Government Contributions$115,270$157,972$121,228
Federal$0$0$0
State$0$0$0
Local$0$0$0
Unspecified$115,270$157,972$121,228
Individual Contributions$0$0$0
$110,078$70,089$103,933
$82,980$26,624$26,724
Investment Income, Net of Losses$3,728$6,364$74,977
Membership Dues$0$0$0
Special Events$24,380$35,689$16,459
Revenue In-Kind$29,729$21,459$17,382
Other$834$73$39
Expense Allocation
Fiscal Year201520142013
Program Expense$1,484,073$1,424,113$1,244,399
Administration Expense$154,305$144,786$127,992
Fundraising Expense$171,186$198,595$168,665
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.251.151.08
Program Expense/Total Expenses82%81%81%
Fundraising Expense/Contributed Revenue8%10%11%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$3,493,722$3,124,391$2,810,705
Current Assets$2,550,599$2,125,035$1,789,165
Long-Term Liabilities$0$0$0
Current Liabilities$122,594$197,365$154,830
Total Net Assets$3,371,128$2,927,026$2,655,875
Short-Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities20.8110.7711.56
Long-Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar AmountIndividual Donor $102,997Individual Donor $115,979 --
Second Highest Funding Source & Dollar AmountCommunity Health Charities of Kansas & Missouri $76,112Individual Donor $50,733 --
Third Highest Funding Source & Dollar AmountJohn Speas Memorial Trust $50,000Individual Donor $50,000 --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments The Heart of America Chapter is supported by the community through donations from individuals, foundations and corporations, program grants, and participation in fundraising events.  Please feel free to contact us with any additional questions.
Organization Name Alzheimer's Association-Heart of America Chapter
Address 3846 West 75th Street
Prairie Village, KS 66208
Primary Phone (913) 831-3888
Contact Email dbrook@alz.org
CEO/Executive Director Mrs. Debra R. Brook
Board Chair Mr. Ben J. Biller
Board Chair Company Affiliation Burns & McDonnell
Year of Incorporation 1981