Alzheimer's Association-Heart of America Chapter
3846 West 75th Street
Prairie Village KS 66208
Web and Phone Contact
Telephone (913) 831-3888
Fax 913- 831-1916
Mission Statement
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Leadership
CEO/Executive Director Mrs. Debra R. Brook
Board Chair Mr. Ben J. Biller
Board Chair Company Affiliation Burns & McDonnell
History and Background
Year of Incorporation 1981
Volunteer Opportunities
Ways to donate, support, or volunteer
The Heart of America Chapter is supported by the community through donations from individuals, foundations and corporations, program grants, and participation in fundraising events. Cash, check, and credit card are all acceptable forms of donation.  Credit card transactions may be handled via our website. Whether it is with events, public policy, advocacy, or assistance in our office, volunteers are an integral part of our organization, giving of their time and talents to help support the 50,000 individuals and 200,000 family members in our 66-county area struggling daily with the physical, financial, and emotional challenges of Alzheimer's disease.
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Background Statement

The Alzheimer's Association - Heart of America Chapter was formed more than 35 years ago to serve the greater Kansas City metropolitan area and has expanded to include 66 counties in Kansas and Missouri. There are currently more than 250,000 individuals, family members and caregivers affected by Alzheimer's disease in our community. The Chapter provides an array of vital and comprehensive services to address the increasing needs of those facing this devastating disease.

The Heart of America Chapter is the only area voluntary health organization dedicated to Alzheimer’s care, support, and education for all those affected by this disease in our community. Our organization provides extensive services, but focuses primarily on individual and family consultations, support groups, educational and training programs, social engagement programs, and advocacy efforts. 
Impact Statement
Families and care partners have many questions and concerns and often need assistance finding and utilizing community resources. Our staff is dedicated to helping people navigate through difficult the decisions and uncertainties faced at every stage of the disease, providing assistance by phone, email, or in office. In fiscal year 2018 the Heart of America Chapter served 121,504 people through our programs and services.

Care consultations, family, community, and professional education, and support groups are central to our mission to educate, support and advocate. In fiscal year 2018, 5900 people were supported through these core programs.

Caring for a family member with Alzheimer’s disease can be very costly. Our Family Service Fund provided assistance for respite, medications, incontinence products and other care related expenses for 143 families, totaling $104335.80. Several of these recipients indicated that a loved one was not given necessary medication due to inability to afford. Others indicated that necessary care had not been provided due to lack of financial resources.

We are also proud to offer innovative social engagement programs, proven to be therapeutic on many different levels for individuals with the disease and/or their care partners. Each unique program offers various opportunities to learn, socialize, meet new people, explore new ideas, and stay engaged in the community. Such programs include Jam Session, Arts and Inspiration, Memory Café, Minds in Motion - a partnership with the Nelson-Atkins Museum of Art, and Movies and Memories – a partnership with the Kansas City Public library, Plaza Branch. Together, these programs draw attendance of more than 100 people on a monthly basis.
Needs Statement
  1. Increased awareness of Chapter services (video production, website enhancements, print collateral) - $25,000
  2. Care Consultations - $50,000
  3. Updated books, videos and other resources for on-site resource center. - $10,000
  4. Family Service Fund dollars to assist families with costs related to caring for a loved one with dementia $40,000
Service Categories
Alzheimer's Disease
Family Services
Areas of Service
MO
KS
Geographic Area Served Narrative We serve 66 counties throughout Kansas and Missouri.
CEO/Executive Director/Board Chair Statement

Researchers say that 95% of what we know about Alzheimer’s we have learned in the last 15 years. This accelerated learning curve clearly exemplifies the urgent need for answers due to the rapidly increasing incidence of Alzheimer's disease. The generosity of our donors enables us to maintain our momentum, but the dramatic increase of individuals with Alzheimer's makes it a continual challenge to meet the ever-growing and changing needs of our community. You can join us in advancing our mission in a variety of ways - by making a donation, participating in our annual events, such as Walk To End Alzheimer’s, or The Longest Day, volunteering, or even helping to build awareness by telling a friend or loved one about our services. We are relentless, we are unwavering, and we are passionately committed to creating a world without Alzheimer’s disease.

Programs
Description More than 30 Heart of America Chapter support groups provide a consistent and caring place for group members to discuss the challenges and joys of care-giving. Group members share their feelings and find emotional support as well as exchange information and educate themselves about Alzheimer's disease and other forms of dementia. Support group members bring new ideas to the table, learn about local and Association resources, share new ways of coping, boost each other's energy, and help build confidence. If you are a caregiver for a person with dementia, join a support group; you will benefit and help others.
Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Families, People/Families of People with Health Conditions
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Immediate decrease in stress and anxiety through support, socialization and education.
  2. Sense of empowerment by taking action.
  3. Improved care for individuals with Alzheimer's by educating caregivers on techniques that can be immediately incorporated into their daily routine.
  4. Increased knowledge of resources.
Long-Term Success
  1. Increased support for individuals with Alzheimer's and their caregivers, through education and networking with others in similar situations. 
  2. By learning from others accomplishments and mistakes, and being well-informed, individuals have more time to make preparations before progressing to the moderate/late stages of the disease.
  3. Family members maintain overall mental and physical health by seeking support and education from others in similar situations.
Program Success Monitored By
  1. Monitoring attendance
  2. Attendee surveys
  3. Increased utilization of services
Examples of Program Success
  1. In the past year, 450 people attended one of our support groups.
  2. 170 individuals joined in one of our early stage social engagement groups.
  3. 1508 people attended our education programs
  4. 3 new groups were formed in targeted outreach areas.
Description
Training is provided to professionals, paraprofessionals and those caring for individuals with Alzheimer's disease in care facilities. Professional workshops, offered regularly throughout the year, provide information and training on dementia care topics such as disease overview, communication, behavior issues and activities. Individualized in-house training for facilities and agencies can be arranged on a variety of topics.
 
Many regularly scheduled education programs are offered for individuals with memory loss and their families as well as care partners and community members.  For those who are unable to attend due to scheduling conflicts, face-to-face meetings or other arrangements are made to accommodate and ensure all needs are met.
Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Other Named Groups
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Continued increase in attendance at both professional trainings and family education programs.
  2. Continued increase in the number of care facilities and individuals/families we reach each year - especially in rural communities.
  3. Participant evaluations reflect increased knowledge and understanding about the disease and care issues.
Long-Term Success
  1. Reach all long term care facilities/agencies in our 66 county service area.
  2. Improve overall quality of care to individuals with Alzheimer's disease throughout our 66 county service area.
  3. Empower family caregivers and professionals alike with tools and techniques that can be readily applied and therefore create improved living arrangements, behavior, communication and overall understanding of the disease process.
Program Success Monitored By
  1. More than 3035 (un-duplicated number) individuals, family members and/or health professionals participated in one of our educational programs this past year.
  2. Attendance is tracked for statistical reporting.
  3. Participants complete a program evaluation.
Examples of Program Success Recent evaluation feedback includes: "I think it (the program) was perfect! I wish classes such as these were mandatory for all healthcare workers. Continue the excellent work!" 
Description A toll-free number, 800-272-3900, is answered by staff 24 hours, 7 days a week in 140 languages to provide information, assistance and resources.  
Category Human Services, General/Other Information & Referral
Population Served People/Families of People with Health Conditions
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Ensure timely response to all calls received.
  2. Ensure timely follow-up on all open cases.
Long-Term Success
Individuals and families affected by Alzheimer's never feel isolated or helpless regardless of time, place or situation.  Families continually refer others to us for services. 
Program Success Monitored By
  1. Monthly monitoring of database utilization, ensuring all calls and interactions are documented appropriately and timely.
  2. Monthly statistical reporting and analysis of call volume, volume by type, open cases for follow-up, and reach, based on county and other pertinent demographics.
  3. Monthly nation-wide utilization and volume discussion calls.
Examples of Program Success Calls are diligently monitored until they are resolved. A recent example includes: A family called in crisis. An in-home visit was established the same day and our Chapter helped the family get the medical care they needed within 24 hours of the original call.
Description

The Alzheimer's Association - Heart of America Chapter is proud to offer the Resource Library to anyone seeking information about Alzheimer's disease, care-giving techniques, coping skills, and many other important topics.

Individuals with dementia, their families, and their caregivers are all welcome to visit this informative Resource Library. It is located in the Main Chapter office at 3846 W. 75th Street in Prairie Village, KS and is open 9:00 a.m. to 5:00 p.m. Monday through Friday.

In addition to a large inventory of books and videos, which can be checked out for your use, the Chapter offers individual information sheets (free of charge) on common topics of discussion.

Category Diseases, Disorders & Medical Disciplines, General/Other Alzheimer Disease
Population Served Aging, Elderly, Senior Citizens
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
Utilization of the on-site Resource Library is tracked.
 
Recent changes have been made to our website to include the ability for visitors (individuals, family members and professionals) to download more than 50 free information and resource documents.  This enhancement has allowed far greater numbers of individuals to benefit from the resources we provide.
Long-Term Success
Our Resource Library is often times the first step in recognizing and accepting other forms of assistance.  Since its inception, the number visitors  has steadily increased each year.
Program Success Monitored By The number of visitors to our on-site library and our website are tracked. Book and video reservations and book purchases are tracked and new additions are continually being added.  
Examples of Program Success The Resource Library is often the first step toward recognizing and accepting other forms of assistance.  Family members and care partners have many questions and concerns and often need assistance finding and utilizing community resources. Once in the door, our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties faced at every stage of the disease, helping everyone realize they do not have to face this journey alone.  Many individuals have been quoted as saying "I don't know how I could have done this alone!"
Description Several social engagement activities provide opportunities for individuals with Alzheimer's to stay socially active and contribute to their community.  These programs include: Jam Session - for individuals  with memory loss who are musicians and caregivers who are musicians, Arts and Inspiration - Creative encounters for the person with Alzheimer's, Minds in Motion - in partnership with the Nelson-Atkins Museum of Art, providing free gallery tours for people with memory loss and their caregivers, memory Cafe - providing a safe environment for learning and socialization, and opportunities to meet new people and explore new ideas, Movies and Memories - a special inter-generational cinema series for individuals with dementia, their friends and families.
Category Diseases, Disorders & Medical Disciplines, General/Other Diseases & Disorders
Population Served Aging, Elderly, Senior Citizens
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
  1. Increased self esteem, confidence and well-being despite having Alzheimer's or a related dementia.
  2. Families are enthusiastic about these programs as they observe their loved-one's creative, enjoyable experience.
  3. Provides treatment options that include supportive, structured, non-pharmacological interventions that enhance and maintain the artist's sense of well-being.
Long-Term Success
  1. These programs are outside of traditional models supporting individuals and taking into consideration their abilities, strengths and deficits.
  2. Fosters the individual(s) strengths and abilities and provides social stimulation.
  3. Allows for improved quality of life in individuals with Alzheimer's and related disorders.
Program Success Monitored By Repeated attendance and overall satisfaction surveys.
Examples of Program Success One participant, Dorothy, painted a house with rays of light streaming from the front windows. The picture itself was fairly nondescript, but the significance was in the painting's title, "Leave the Light on For Me". The title allowed Dorothy to express the true depth of her feelings, communicating that despite the limitations imposed by Alzheimer's disease, she is still present.
CEO Comments The programs listed above are just a small sampling of the many services and educational opportunities the Heart of America Chapter provides. Community outreach and ensuring that everyone facing Alzheimer’s has the resources they need is an essential component of our mission. We strive to provide support for the individuals with the disease, family members, and caregivers. Our Chapter understands that peoples' needs vary, not only between those who are in the early, moderate, and late stages of Alzheimer's, but also among families. Our expertise and deep understanding of this disease makes the Heart of America Chapter the Alzheimer's care and education leader in our community.
Executive Director/CEO
Executive Director Mrs. Debra R. Brook
Term Start May 2000
Experience Debra has served as the Executive Director of the Alzheimer's Association – Heart of America Chapter since May 2000. Her responsibilities include overall management of the Chapter and ensuring that the Chapter carries out the mission and goals of the Alzheimer's Association in its designated territory. She provides executive leadership in developing and implementing Chapter strategic plans, policies, procedures and services to those served by the Association. She holds both bachelors and masters degrees in Organizational Communication from Northwestern University.
Senior Staff
Title Director of Operations
Experience/Biography Jan has been with the Chapter since 2006, and has been the director of operations since 2012.  Her responsibilities include managing accounts receivables, supervision of clerical staff, database and technology management and overall Chapter operations.  She holds a bachelors degree of social work from Avila University and has more than 25 years experience in the non-profit field. 
Title Director of Programs
Staff
Paid Full-Time Staff 14
Paid Part-Time Staff 5
Paid Contractors 0
Volunteers 350
Retention Rate 100%
Staff Diversity (Gender)
Female 17
Male 2
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
  • United Way/Community Health Charities
  • University of Kansas Alzheimer's Disease Research Center
  • University of Kansas School of Social Welfare
  • University of Missouri-Kansas City
  • Johnson County Community College
  • Central Missouri State University
  • KC Area Agencies on Aging
  • MARC
  • Shepherd's Center of Greater Kansas City
  • EITAS
  • Jewish Family Services
  • Missouri Department of Senior Services
  • Missouri Assisted Living Association
  • Kansas Association of Homes and Services for the Aging (KAHSA)
  • Kansas City Public Library
  • Nelson Atkins Museum of Art
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1981
Government Licenses
Is your organization licensed by the government? No
CEO Comments Not long ago, Alzheimer’s disease was widely considered a hopeless condition. It was poorly understood by doctors, researchers, and policy makers. People with the disease and their caregivers had few resources for information and support. Today, the Alzheimer’s Association is the world leader in Alzheimer’s research, education, and advocacy, and the largest voluntary health organization dedicated to this cause. There are currently more than 250,000 individuals, families, and caregivers in our 66-county service area throughout Kansas and Missouri currently affected by Alzheimer’s disease. By the year 2025, the number of individuals with Alzheimer’s is expected to increase by 24 percent in Kansas and by 18 percent in Missouri. The Heart of America Chapter is proud to offer an array of comprehensive services to address the needs of those facing this disease in our community. We provide a variety of resources including support groups, educational opportunities, training, advocacy and public policy efforts, research information and assistance twenty-four hours a day, seven days a week. With the exception of professional training, our services are provided free of charge. Our priority is to ensure no one faces this devastating disease alone. Our services and outreach continues to evolve based on the needs of our community, and we are committed to providing these vital services until we one day know a world without Alzheimer’s disease.
Board Chair
Board Chair Mr. Ben Biller
Company Affiliation Burns & McDonnell
Term July 2015 to June 2019
Board Members
NameAffiliation
John C. AisenbreyStinson Leonard Street
Debbie BiehlGarden Terrace at Overland Park
Ben J. BillerBurns & McDonnell
Andrew Black
Kim Brennan
Jane Dickinson KressDickinson Financial Corporation
Mike LevitanRED Brokerage
Martin M. LoringHusch Blackwell, LLP
Joseph P. PlattGrandbridge Real Estate Capital
David SchleeSchlee, Huber, McMillan & Krause
Chad StoutPolsinelli PC
Rob SweattLockton Companies
Cathy Tivol MaslanTivol Jewels
Josh Wright
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 10
Female 4
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 4
Board Meeting Attendance % 90%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation No
Number of Full Board Meetings Annually 4
Standing Committees
Communications / Promotion / Publicity / Public Relations
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Program / Program Planning
CEO Comments Not long ago, Alzheimer’s disease was widely considered a hopeless condition. It was poorly understood by doctors, researchers, and policy makers. People with the disease and their caregivers had few resources for information and support. Today, the Alzheimer’s Association is the world leader in Alzheimer’s care, support, research, education, and advocacy, and the largest voluntary health organization dedicated to this cause. There are currently more than 250,000 individuals, families, and caregivers in our 66 county service area throughout Kansas and Missouri currently affected by Alzheimer’s disease. By the year 2025, the number of individuals with Alzheimer’s is expected to increase by 24 percent in Kansas and by 18 percent in Missouri. The Heart of America Chapter is proud to offer an array of comprehensive services to address the needs of those facing this disease in our community. We provide a variety of resources including care consultations, support groups, education, training, advocacy and public policy efforts, clinical trial information and assistance twenty-four hours a day, seven days a week. With the exception of professional training, our services are provided free of charge. Our priority is to ensure no one faces this devastating disease alone. Services and outreach continue to evolve based on the needs of our community, and we are committed to providing these vital services until we all live in a world without Alzheimer’s disease.
Financials
Fiscal Year Start July 01, 2018
Fiscal Year End June 30, 2019
Projected Revenue $1,809,071
Projected Expenses $1,902,026
Foundation Comments
  • FYE 6/30/2018, 2017: Financial data reported using the national headquarter's Form 990 (consolidated under national umbrella).
  • FYE 6/30/2016: Financial data reported using the local chapter's Form 990. 
  • Foundations/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201820172016
Foundation and
Corporation Contributions
$282,795,389$278,525,353$1,680,520
Government Contributions$22,529,518$22,096,172$170,171
Federal----$0
State----$0
Local----$0
Unspecified$22,529,518$22,096,172$170,171
Individual Contributions----$0
$0--$33,224
$11,038,427$10,021,009$33,992
Investment Income, Net of Losses$6,410,118$6,179,743$7,477
Membership Dues$512,050$439,669$0
Special Events$8,999,034$7,963,124$0
Revenue In-Kind$11,782,522$5,754,565$0
Other$1,391,569$2,234,280$233
Expense Allocation
Fiscal Year201820172016
Program Expense$273,687,443$252,341,486$1,365,662
Administration Expense$16,570,908$19,712,772$195,647
Fundraising Expense$69,319,116$56,097,504$154,371
Payments to Affiliates----$0
Total Revenue/Total Expenses0.961.001.12
Program Expense/Total Expenses76%77%80%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201820172016
Total Assets$354,052,059$345,089,789$3,730,284
Current Assets$130,291,270$132,858,483$2,838,482
Long-Term Liabilities$14,726,923$6,356,753$0
Current Liabilities$83,120,446$70,866,890$149,219
Total Net Assets$256,204,690$267,866,146$3,581,065
Short-Term Solvency
Fiscal Year201820172016
Current Ratio: Current Assets/Current Liabilities1.571.8719.02
Long-Term Solvency
Fiscal Year201820172016
Long-Term Liabilities/Total Assets4%2%0%
Top Funding Sources
Fiscal Year201820172016
Top Funding Source & Dollar Amount -- --Individual Donor $600,000
Second Highest Funding Source & Dollar Amount -- --Individual Donor $232,500
Third Highest Funding Source & Dollar Amount -- --Individual Donor $50,137
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments The Heart of America Chapter is supported by the community through donations from individuals, foundations and corporations, program grants, and participation in fundraising events.  Please feel free to contact us with any additional questions.
Other Documents
Education Calendar2019View
Chapter Brochure2018View
Education Calendar2018View
Alzheimer's Awareness Guide2018View
Organization Name Alzheimer's Association-Heart of America Chapter
Address 3846 West 75th Street
Prairie Village, KS 66208
Primary Phone (913) 831-3888
Contact Email jhorn@alz.org
CEO/Executive Director Mrs. Debra R. Brook
Board Chair Mr. Ben J. Biller
Board Chair Company Affiliation Burns & McDonnell
Year of Incorporation 1981