Center for Practical Bioethics
Harzfeld Building, Suite 500
1111 Main
Kansas City MO 64105-2116
Web and Phone Contact
Telephone (816) 221-1100
Fax 816- 221-2002
Mission Statement
Mission: To raise and respond to ethical issues in health and healthcare.
 
Vision: Ethical discourse and action advance the health and dignity of all persons.
 
As science and technology expand what medicine CAN do, decisions faced by patients, families, providers and policymakers about what they OUGHT to do grow increasingly difficult and complex. The world of health and healthcare is a world of tough choices.
 
Founded in 1984 and based in Kansas City, the Center for Practical Bioethics (CPB) addresses ethical issues in health and healthcare on three levels: On the PERSONAL level, CPB provides guidance to patients, families and clinicians grappling with hard choices. On the PROFESSIONAL/EDUCATIONAL level, it teaches bioethics to medical students, clinicians and lay leaders. On the POLICY level, it brings diverse groups together to work collaboratively, recommend guidelines and policies, develop programs and disseminate thousands of free resources. More than 341,000 resource pages and educational materials were viewed at www.PracticalBioethics.orgin 2018.
 
“Practical” is what distinguishes CPB from nearly all other bioethics centers across the country, most of which are based in academic institutions and focus primarily on theoretical issues. CPB’s practical approach applies bioethics to lived experience by: (1) Using the tools of ethics based on principles of philosophy and ethics developed over centuries; (2) Seizing opportunities to advance awareness of issues and causes; (3) Bringing diverse, multi-disciplinary groups together to work collaboratively; and (4) Finding common ground through public and professional education, consumer and clinical consultation, research, publications, public engagement and advocacy.
 
A dedicated Board of Directors and staff representing multiple disciplines and fields of expertise, as well as individuals and organizations committed to advancing ethical practices and policies in health and healthcare support CPB.

Leadership
CEO/Executive Director John G. Carney MEd
Board Chair Sandra R. Stites MD
Board Chair Company Affiliation Kansas City Women's Clinic
History and Background
Year of Incorporation 1984
Former Names
Midwest Bioethics Center
Volunteer Opportunities
Ways to donate, support, or volunteer The Center is grateful for all types of giving and welcomes inquiries regarding volunteer opportunities. 
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement
Mission: To raise and respond to ethical issues in health and healthcare.
 
Vision: Ethical discourse and action advance the health and dignity of all persons.
 
As science and technology expand what medicine CAN do, decisions faced by patients, families, providers and policymakers about what they OUGHT to do grow increasingly difficult and complex. The world of health and healthcare is a world of tough choices.
 
Founded in 1984 and based in Kansas City, the Center for Practical Bioethics (CPB) addresses ethical issues in health and healthcare on three levels: On the PERSONAL level, CPB provides guidance to patients, families and clinicians grappling with hard choices. On the PROFESSIONAL/EDUCATIONAL level, it teaches bioethics to medical students, clinicians and lay leaders. On the POLICY level, it brings diverse groups together to work collaboratively, recommend guidelines and policies, develop programs and disseminate thousands of free resources. More than 341,000 resource pages and educational materials were viewed at www.PracticalBioethics.orgin 2018.
 
“Practical” is what distinguishes CPB from nearly all other bioethics centers across the country, most of which are based in academic institutions and focus primarily on theoretical issues. CPB’s practical approach applies bioethics to lived experience by: (1) Using the tools of ethics based on principles of philosophy and ethics developed over centuries; (2) Seizing opportunities to advance awareness of issues and causes; (3) Bringing diverse, multi-disciplinary groups together to work collaboratively; and (4) Finding common ground through public and professional education, consumer and clinical consultation, research, publications, public engagement and advocacy.
 
A dedicated Board of Directors and staff representing multiple disciplines and fields of expertise, as well as individuals and organizations committed to advancing ethical practices and policies in health and healthcare support CPB.

Background Statement
The concept of bioethics was relatively new in 1984 when Mary Beth Blake, an in-house attorney at the University of Kansas Medical Center, Dr. Karen Ritchie, a family practice physician and psychiatrist, and Dr. Hans Uffelmann, a philosophy professor at the University of Missouri-Kansas City, founded the Midwest Bioethics Center, now the Center for Practical Bioethics.
 
At that time, most of the few existing ethics centers were based in academia and focused on theoretical issues. At the same time, ethical dilemmas presented by advances in medicine and technology increasingly galvanized public attention and professional concern:
  • The horrors of the Tuskegee Syphilis Study, started in 1932 and exposed in 1972, prompted the creation of the National Commission for the Protection of Human Subjects in 1974.

  • In 1976, the New Jersey Supreme Court ruled in favor of removal of a ventilator at the request of the parents of Karen Ann Quinlan who was in a persistent vegetative state.

  • The President’s Commission for the Protection of Human Subjects of Biomedical and Behavioral Research published the Belmont Report in 1978, which led to the requirement that any federally funded research institution have an Institutional Review Board to ensure that “beneficence, respect and justice” govern research involving human subjects.

  • In 1978, the first “test-tube” baby was born.

  • In the early 1980s, a number of Baby Doe cases established precedents for the obligations of healthcare professionals in the care and treatment of seriously disabled newborns.

Hans, Mary Beth and Karen knew that bioethics should be brought to the bedside and believed also that bioethics could provide valuable tools and resources to help those making the most ethically complex life and death decisions.
In founding the Center, they adopted three bedrock principles:
  • Bring diverse, multidisciplinary groups together to work collaboratively.
  • Focus on the practical and theoretical, with emphasis on the practical.
  • Remain independent, free-standing and unfettered by special interests.

For 36 years, the Center has led the way in making bioethics meaningful to patients and families from all walks of life, as well as their clinicians and institutions.
Impact Statement

ACCOMPLISHMENTS

1. Disseminated double projected Caring Conversations materials (20,586) plus new Spanish translations. Implemented MyDirectives.com partnership enabling upload of advance care planning (ACP) documents.

2. Received funding for ACP in African American Faith Communities project expansion. Began curriculum development for community events and pastor training.

3. KCP&L expanded Caring Conversations in the Workplace program. Talks with The University of Kansas Health System (TUKHS) underway.

4. Training across KS/MO led to increase in institutions adopting TPOPP standard of care for treating seriously ill and frail elderly.

5. Led KCU Bioethics Department, growing dual degree DO/MA program to 125 students and provided bioethics instruction to 860 medical students.

6. Presented successful professional/community education programs.

7. More than 341,000 pageviews at PracticalBioethics.org.

8. Provided 130 ethics consultations for TUKHS in 2018, nearly double anticipated.

9. Staff provided guidance to 100+ callers seeking guidance in healthcare crises.

10. Convened 7 KC Regional Hospital Ethics Committee Consortium programs involving 17 hospitals.

11. Successfully transitioned the PAINS Project. Continue to coordinate PAINS-KC citizen leaders group focused on comprehensive pain care as standard of care in KC.

12. Initiated response to several emerging issues.

GOALS

1. Increase ACP participation with emphasis on minority communities.

2. Increase participation in Ethics Committee Consortium training opportunities and improve skills to resolve difficult cases and oversee ethics of hospital policies.

3. Implement embedded Clinical Ethics Service in all KC area health systems.

4. Sustain enrollment in the KCU DO/MA Bioethics program, with expansion also on the new Joplin campus.

5. With Cerner, convene/lead Ethical.AI Consortium tasked with identifying best practices and developing audit mechanism to monitor application.

Needs Statement
PERSONAL – We need support for staff time providing guidance to patients, families and clinicians who contact us frantic for help, and to build coalitions and train providers across MO/KS in documenting patients’ goals of care as physician orders that follow patients.
 
PROFESSIONAL/EDUCATIONAL – We teach bioethics to medical students, clinicians and lay leaders. In 2018, more than 341,000 educational materials were viewed at PracticalBioethics.org. Our greatest need in this category is funding for educational programs we offer to the community and staff time to develop and present webinars/workshops for the Ethics Committee Consortium.
 
POLICY – We address ethical issues by bringing diverse groups together to work collaboratively, recommend guidelines and policies, develop programs and disseminate thousands of free resources. We especially need funding for Ethical.AI, a project to identify best practices for AI in healthcare and develop an audit mechanism to monitor application.
 
Our annual budget approaches $2M. We fund programming through earned income, endowment proceeds, grants and donations. Our need for the remainder of 2019 in grants and donations is $50,000 in program grants and $215,000 in general donations. Our need for 2020 in program grants and donations is $727,500.
Service Categories
Research Institutes & Public Policy Analysis
Areas of Service
MO - Jackson County Urban Core
MO - Jackson County
MO - Clay County
MO - Platte County
KS - Wyandotte County
KS - Johnson County
National
MO
KS
Geographic Area Served Narrative

Many of our programs (teaching KU/KCU med students, ethics consultations, community lectures) serve GKC and MO/KS. Others have broader reach. Our Advance Care Planning for African American Faith Communities project reaches nationwide. Of our website’s 341,663 pageviews in 2018, 5.3% were from KC. Over 70% of online visitors were from across the US (primarily colleges/universities). Other countries worldwide, such as Canada, Australia and the UK, accessed our free healthcare resources.

CEO/Executive Director/Board Chair Statement
My first exposure to the Center for Practical Bioethics was as a guest at the Annual Dinner event with my husband, who is a physician at the University of Kansas. But it was my experience as an OB/GYN physician that really sparked my desire to get more involved.
 
As an OB/GYN, and especially in OB, ethics comes into play throughout pregnancy. I can remember one of my first patients, a senior at in high school, who wasn’t allowed to graduate because she was pregnant.
 
Now, with the growth of technology in medicine we have sophisticated prenatal testing, which raises questions about what to do with the information, how it’s presented, how it’s perceived and who makes decisions about what happens. If delivery is premature or there’s a problem with delivery or birth defects, again, questions arise about how this is handled, perceived and who makes decisions.
 
Knowing not only that there is help locally to address those types of situations but also of the Center’s national influence underscores how lucky Kansas City is to have this resource.
 
Good friends advised me a few years ago that if I ever went looking for a place to devote my spare time, I should think about volunteering for the Center.
 
I joined the Center’s board in 2015, and will soon start my second year as its chair. I can honestly say I have never worked with a governing board with 100% of its members so invested, from so many walks of life and diverse points of view, all allowing for well-rounded discussion and constructive strategic guidance. People ask me how they can be part of this. That’s because of the work of the board and a small staff that works extremely hard.
 
If asked to name one challenge we face as an organization, I would say funding. Bioethics isn’t a typical funding category. The field’s breadth and complexity, involving multiple disciplines, makes general operating expenses especially difficult to secure. The one or two foundations that focus on bioethics are primarily interested in research, not practical community-based bioethics.
 
Nevertheless, I have no doubt that, as it has for nearly 36 years, the Center will continue to thrive. I am particularly encouraged by our growing emphasis on earned income through consulting contracts and fee-based agreements, such as the Clinical Ethics Service.
 
It is my honor and privilege to serve, to grow with the Center, and to further its vision to advance the health and dignity of all persons.
Programs
Description CPB pioneered Advance Care Planning (ACP) in the 1980s and published the first Caring Conversations® workbook guide to ACP in 2002. Today we focus on increasing ACP participation by the American public, where it hovers at 35%, and especially in minority communities, where it is extremely low (15-20%). Our CARE program, which corporations provide as an employee benefit, includes ACP training plus access to CPB staff for consultation and advocacy when the employee or loved one experiences serious illness.In 2019, through an agreement with ADVault, we began offering consumers free accounts on MyDirectives.com to upload, store and share their ACP documents and videos. We also began revising and updating Caring Conversations®. We continue to build Transportable Physician Orders for Patients Preferences (TPOPP) coalitions and train MO/KS providers in documenting seriously ill patients’ goals of care as physician orders.
Category Health Care, General/Other Bioethics & Medical Ethics
Population Served People/Families of People with Health Conditions, At-Risk Populations, General/Unspecified
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success In 2020, Caring Conversations® (including Spanish) will reach 10,000 people via downloads, bulk purchases and workshops. CPB will convene 5 one-day educational events for pastors and senior leaders of African American faith communities. We will present 3 educational programs each for CARE program employers (Hallmark, KCP&L & North KC Hospital) and reach 1,000 additional employees at health fairs. CPB will increase participation in MyDirectives traceable to CPB. CPB will address needs of those living with advanced illness through TPOPP with focus on training and support for coalitions developing in KC, St. Louis and rural areas and promote use of new “TPOPP Handbook for Clinicians.”
Long-Term Success
More people will have their end-of-life preferences respected and be satisfied with their care. More families will have peace of mind about their loved ones’ last days. Clinicians will experience less moral distress. Costs for non-beneficial care will be reduced.
Program Success Monitored By
We will (a) trackCaring Conversations® downloads, bulk purchases and distribution at workshops; (b) convene educational events in African American faith communities; (c) track CARE workplace programs/attendance; (d) track MyDirectives use by workplace program employees; (e) document progress of TPOPP implementation in KC, St. Louis and rural areas.
Examples of Program Success Disseminated 10,000+ Caring Conversations®. Implemented project to increase ACP in African American faith communities. KS/MO training led to increase in institutions adopting TPOPP standard of care for treating seriously ill/frail elderly. Presented CARE workshops and health fairs, with positive feedback: “I wanted to send a huge thank you to all of you for helping make Hallmark Leavenworth’s Health Fair a successful one this year. Your time, devotion and interaction with the employees who attended was amazing and so appreciated by all. I have received many positive comments from the employees….so well done! This year we had 6 individuals who came to me with screening results that were flagged and they have or will be soon getting this results looked into via their health care provider. It’s the simple screening and information presented at these fairs that can be life-changing for some. I also had many come in with follow-up questions regarding many of the topics that were presented.”
Description

PROFESSIONALCPB teaches and leads the largest medicine/bioethics dual degree program (~130 students) and one of the largest graduate bioethics programs anywhere at Kansas City University of Medicine and Biosciences (KCU). Tarris Rosell (CPB Flanigan Chair) is a full professor at KU School of Medicine and directs TUKHS’s ethics consultation service. CPB leadsthe KC Regional Hospital Ethics Committee Consortium (ECC). We are introducing Ethics+ Clinical Ethics Service.

 
COMMUNITY–We present programs for professional and lay audiences (Berkley Symposium, Flanigan Lecture, Christopher Forum, Current Issues in Bioethics, Art of the Wish Exhibition). Our bioethics library contains 3,000+ reports, guidelines, policy briefs, audio/video recordings from late 1980s to present.

Our staff responds to calls from families and healthcare professionals for guidance (end of life, decision-making capacity, transplantation, etc) and from employees of companies that offer the ACP benefit.

Category Health Care, General/Other Bioethics & Medical Ethics
Population Served General/Unspecified, At-Risk Populations
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success

PROFESSIONAL–Teach 860 KCU med students (KC & Joplin) and continue to lead KCU dual degree program (130 students) in 2019/20. Teach ~350 TUKHS clinicians and students. Oversee 100+ ethics consultations at TUKHS. Serve on 5 hospital ethics committees. Present 8 educational webinars and 2 half-day workshops for ECC members. With KCU, present 4 Current Issues in Bioethics lectures by national experts attended by 432+ med students. Implement Ethics + Clinical Ethics Service in majority of KC area health systems.

 
COMMUNITY–Present other community education programs (Annual Dinner, Berkley Symposium, Flanigan Lecture, Christopher Forum, Art of the Wish). Continue to build bioethics web library and increase pageviews from 341,663 in 2018 to 500,000 by the end of 2020. Respond to 100+ consumer calls for help.
Long-Term Success

Patients and families will be less likely to experience mental stress and potentially adverse outcomes from treatment. Bioethicists, clinicians, students and ethics committee members will deepen understanding of  high-level issues; the general public will deepen understanding of popular bioethics issues. Online resources will support educational goals of users worldwide. The ECC will continue to improve healthcare institutions’ ability to resolve ethical issues satisfactorily. Providers participating in Ethics+ will reap the benefits of the program and renew contracts.

Program Success Monitored By

PROFESSIONAL–At KCU, we monitor total number of total students enrolled and in dual degree program. At TUKHS, we monitor number of clinicians and med students taught/supervised, and track number of ethics consultations provided. We monitor attendance and survey feedback for ECC webinars and workshops. We will monitor success in launching Ethics+ based on number of hospitals/health systems that become program members. We consider the longevity of these relationships a reflection of satisfaction with our services.

 
COMMUNITY—We track attendance and survey feedback for community education programs. We track web resources pageviews. We track CPB staff hours devoted to responding to consumer calls for guidance.
Examples of Program Success

In 2017-18, CPB guided preparation and implementation of bioethics curriculum and faculty development on newly opened KCU Jopling campus. Also at KCU, we continue to oversee bioethics education of nearly 500 med students. At TUKHS, we interacted with 350+ med students/clinicians and directed its consultation service. In 2018/19, we presented the 25thAnnual Flanigan Lecture, 12thAnnual Berkley Symposium and Annual Dinner (our only fundraising event) attended by 600+. Staff served on 5 hospital ethics committees, presented 40 local, regional and nationally invited lectures, and responded to 100+ consumer calls for guidance. Website traffic has grown from 183,000 pageviews in 2016 to 341,663 in 2018 with 500,000 projected by the end of 2020.

Description

EMERGING ISSUES –Newbioethical issues are emerging and affecting healthcare delivery at an accelerating pace. CPB stays abreast of these issues and proactively calls attention to them, provides guidance and develops programs, policies and publications to address them. We are focusing on three issues in 2019/20: Ethics of Artificial Intelligence in Healthcare (Ethical.AI Project), Genetic Engineering, and Chronic Pain with a focus on improving provider-patient communication.

 
HEALTH POLICY–Local, state and national legislators, regulators and institutional leaders have an “open line” to CPB senior staff, who provide hours of background, guidance and testimony on healthcare policy issues.
Category Health Care, General/Other Health Care Issues
Population Served At-Risk Populations, Other Named Groups
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success

EMERGING ISSUES–CPB with Cerner and other stakeholders develops and implements Ethical.AI Project in Kansas City. CPB is viewed by stakeholders as the premier resource for understanding the ethical implications of genetic engineering. More than 25 PAINS-KC Citizen Leaders  attend bi-monthly meetings. Active listening improves relationships and patient-centered outcomes.

 
HEALTH POLICY–By providing timely consultation, legislators and policymakers will have practical knowledge and better understanding of implications of legislation and regulation and be better equipped to make informed recommendations and decisions, with fewer unintended consequences.
Long-Term Success

EMERGING ISSUES–Partnership with Cerner and other stakeholders results in best practices for ensuring ethical use of Artificial Intelligence in Healthcare with audit mechanism to monitor application. Better understanding of the ethical issues surrounding Genetic Engineering leads to thoughtful decision making and reasonable policies to ensure safety, equity and justice. PAINS-KC Citizen Leaders participate in CME qualified education with the American Academy of Family Physicians. Increased access to comprehensive pain care improves lives, saves dollars and reduces opioid prescribing. 

 
HEALTH POLICY–Better legislation, regulation and policies improves people’s lives.
Program Success Monitored By

EMERGING ISSUES–We identify ethical dilemmas and implement strategies to address them. Once identified, we collaborate with stakeholders to build consensus and workable solutions.

 
HEALTH POLICY–CPB staff track number of hours devoted to institutional consultation, research, background and testimony.
Examples of Program Success

In 2018, two PAINS-KC Citizen Leaders were invited to participate as panelists in the inaugural KU Frontiers External Advisory Board Patient Engagement Conference. Weprovided 400+ hours consultation on policy issues. We completed work on a grant funded by Pew Charitable Trusts to examine diverse views on palliative care and advance care planning among Catholics. 

CEO Comments
Because the Center's mission is to raise and respond to ethical issues in health and healthcare, we have a combination of continuing programs such as our education, consultation and resource efforts, as well as programs that develop around a specific need or emerging issue.
 
Such issues present themselves every day, across the country, affecting millions. What is brain death? When is artificial hydration and nutrition appropriate? What about resuscitation? Genomic testing? The issues are endless.
 
Our mission requires the Center to be knowledgeable on a vast range of subjects, as well as capable of responding quickly, practically and effectively. Indeed, virtually all of our programs have sprung from real-life issues and problems that have arisen in communities and bedsides across the country. The under-treatment of pain, for example, was a focus of the Center for more than a decade when the Institute of Medicine issued a report on this important topic in 2011and  it was elevated to the national stage. The Center is experienced at seizing opportunities to advance a cause when public attention is focused there.
Executive Director/CEO
Executive Director John G. Carney MEd
Term Start Dec 2011
Experience

In December 2011, John G. Carney, MEd, became the second President and CEO of the Center for Practical Bioethics, succeeding the founding director who had held the position since the organization’s inception in 1984. His previous commitment to the Center’s work was well established having served as Vice President of the organization from mid-2004 to late 2010, focusing his work primarily on improving shared decision making for patients and families and care for those in the final chapters of life. 

John’s dedication to those on the edges of life spans three decades. He devoted his early career in the 1980s-2000s to the development of hospice and palliative care in Kansas and throughout the Midwest, serving in executive positions at the provider and state association levels. His policy and advocacy work in the areas of aging, advanced illness and advance care planning includes executive leadership positions at the state and national association levels as well. His passionate voice advocating for families facing difficult healthcare decisions has been heard in rural communities, town halls and national forums from coast to coast.

In 2008, John co-authored a report to Congress on Advance Care Planning and worked with the Centers for Disease Control and the National Institutes of Health on improving end-of-life care for all Americans. During the early 2000s, he served in leadership roles at the National Hospice and Palliative Care Organization and directed education programs for America’s Health Insurance. He has also been recognized for his leadership in executive management of small healthcare organizations. In 2017, he coordinated a year-long project examining perspectives on advance care planning, palliative care and end of life among Catholics in the U.S with support from The Pew Charitable Trusts. 

He holds an undergraduate degree in philosophy from Newman University (Wichita, KS) and a Master’s from Wichita State University.

Former CEOs
NameTerm
Myra Christopher1985 - Dec 2011
Senior Staff
Title Executive Vice President/Chief Operating Officer
Experience/Biography
Linda Ward joined the Center in 2004 after serving on the board. Previously, she was executive vice-president of corporate relations and strategic planning for Health Midwest and was part of the team that led Health Midwest through its sale to HCA. 

At the Center, she has responsibility for finance/audit, planning, governance, resource development including endowment and planned giving as well as operations and program funding, membership, human resources. She also works with area benefits leaders to provide corporate programs offering employee education in advance care planning as well as coaching and advocacy when dealing with advanced illness.

She served on the board of MetroCare/NorthlandCare from inception in 2006 until 2016, a program incubated at the Center that provides specialty care for people without access to care, and as board chair in 2013-14. She is also a member of KU Med Center’s Institute for Neurological Disorders Advisory Council, the advisory board of the National Research Network of the American Academy of Family Physicians, and the Central Exchange. She has participated in Frontiers Leadership Team, a regional consortium managing a $20 million CTSA – Clinical and Translational Science Award.

She served on the board for the United Way of GKC and chaired its Health Impact Council. She was the first woman to chair the Westminster College board of trustees, She was a director of Lawson Bank from 1999-2017. Linda is an active participant in the Women’s Public Service Network and co-founded the Northland Giving Circle. She is past chair of the Port Authority of KCMO. She served on the Northland Community Foundation founding board and continued on it for 21 years, She is a past chair of the Boys & Girls Clubs of GKC, Missouri Children’s Trust Fund, Harvest Ball Society and Women’s Foundation of GKC. and past vice-chair of the Partnership for Children and Crittenden.


Title Rosemary Flanigan Chair
Experience/Biography

As Rosemary Flanigan Chair and contractually on behalf of the Center, Dr. Terry Rosell provides bioethics education and consultation at Kansas City University of Medicine and Biosciences (Chair, Department of Bioethics) and the University of Kansas Medical Center (Clinical Professor, School of Medicine). He is also a Professor of Pastoral Theology (Ethics and Ministry Praxis) at Central Baptist Theological Seminary in Shawnee, Kansas. He completed a fellowship in clinical ethics at Vanderbilt University and earned the PhD there in Ethics and Society from the graduate department of religion. His first doctorate is in Pastoral Theology from Colgate-Rochester Divinity School.

Staff
Paid Full-Time Staff 8
Paid Part-Time Staff 1
Paid Contractors 1
Volunteers 73
Retention Rate 80%
Staff Diversity (Ethnicity)
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 10
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Staff Diversity (Gender)
Female 6
Male 4
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy No
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations

The Center maintains formal and informal relationships with academic institutions, healthcare organizations, patient advocacy groups, community and state-based coalitions and national organizations. Examples of local organizations with which we collaborate include Frontiers: University of Kansas Clinical and Translational Science Institute, all three Kansas City regional schools of medicine and allied health sciences (Kansas City University of Medicine and Biosciences, The University Of Kansas Health System, and the University of Missouri-Kansas City School of Medicine), as well as Children’s Mercy Hospitals and Clinics, Saint Luke's Health Systems, HCA Midwest, and other hospitals and medical centers. 

Nationally, the Center collaborates with the National Academy of Medicine (formerly the Institute of Medicine), American Bar Association’s Commission on Law and Aging, National POLST Paradigm, and several conferences of black churches, including the Samuel DeWitt Proctor Conference.

Awards
Award/RecognitionOrganizationYear
President's AwardNational Association of Attorneys General2003
Marion Gray-Secundy Sankofa AwardLast Miles of the Way Home Conference - Robert Wood Johnson Foundation2004
Non-Profit Executive of the Year AwardNonprofit Connect2006
William F. Yates Medallion for Distinguished ServiceWilliam Jewell College2008
Head and Heart AwardAmerican Association ofPain Management2009
Consumer Advocacy AwardAmerican Academy of Pain Medicine2010
President's AwardAmerican Academy of Palliative Medicine2012
Interagency Pain Research Coordinating CommitteeNational Institutes of Health2014
Pioneer AwardHealth Care Chaplaincy Network2014
Starr Women's Hall of Fame (Myra Christopher)University of Missouri-Kansas City2015
Volunteer of the YearNonprofit Connect2017
Arthur S. Flemming AwardNational Association of States United for Aging and Disabilities2017
Starr Women's Hall of Fame (Rosemary Flanigan)University of Missouri-Kansas City2017
Lifetime Achievement Award (Myra Christopher)American Society for Bioethics & Humanities2017
Health Hero Award (John Carney)Black Health Care Coalition2018
Health Sciences Policy Board (Richard Payne)National Academy of Sciences, Engineering & Medicine2018
Government Licenses
Is your organization licensed by the government? No
CEO Comments
Bioethics touches each of us, every day. Our ability to access, pay for, benefit from and consume health services raises thorny issues that nearly every American considers one of the most important issues of our time. Every day the Center helps ordinary folks and extraordinary clinicians face troubling ethical issues that perplex, confound, infuriate and challenge safe, effective and outcome-oriented care. Regardless of age, social status, race, ethnicity or religious differences, we all deserve to be treated respectfully, justly, fairly and with dignity. Our job is to provide relief and resolution, to seek remedy and correction, and to point to a better and more promising future. And we do it because the communities we serve and the benefactors who support us demand it.
Taking on some of the most difficult and complex healthcare issues of the day, including emerging ones like artificial intelligence and genetic engineering, can be challenging for a small, independent nonprofit. We collaborate with large multibillion-dollar corporations employing vast numbers of employees serving millions of patients a year because we are all in this together. The Center manages to speak prophetically and authentically for patients and families, not as masses of humanity but as persons in need of an advocate, a navigator, a colleague on a journey despite the challenges of an impersonal and fragmented health system.
The Center’s 35-year history of listening to patients and families and translating what we’ve learned into action is at the core of the Center’s work. Its programs, projects, policy documents, guidelines and preferred practices have proven valuable to providers and have contributed to the important work of resolving differences and deficiencies.
The Center’s success can be attributed to the professionalism of its members and collaborators and the passions of a tireless group of patients, families and advocates. Our staff and volunteers commit daily to the task of improving patient outcomes and finding common ground among those who struggle with genuine differences while respectfully disagreeing. Our work is to clarify the facts, identify the “oughts,” attend to the safe and respectful conduct of science and research while never losing sight of what “good health” and “good healthcare” mean. The Center’s reliance on the generosity of its community of donors and benefactors keep us true to the pledge that we will pursue our goals with integrity and passion and that we will remain grateful to many and beholden to none.
Board Chair
Board Chair Sandra Stites MD
Company Affiliation Kansas City Women's Clinic
Term Jan 2019 to Dec 2020
Email sandraresea@aol.com
Board Members
NameAffiliation
Abiodun Akinwuntan PhD, MPH, MBAKU School of Health Professions
Drew BillingsleyAmerican Century Investments
Mary Beth Blake JDRetired Attorney (Polsinelli)
Brian Carter MDUMKC & Children's Mercy Hospital
Nancy CohnCommunity Volunteer
Karen Cox RN, PhD, FACHE, FAAN
Darrin D'Agostino DO, MPH, MBAKansas City University of Medicine and Biosciences
Alan EdelmanRetired
Sukumar Ethirajan MDDr. E.T.'s Concierge Care
Tresia Franklin CEBS, CFA, CCP
Eva Karp RN-C, MBA, FACHECerner Corporation
Jane Lombard MDPalo Alto Medical Foundation
Jan Murray JDSaint Luke's Health System
Stephen Salanski MDPartners in Primary Care Clinics & Transcend Population Health Mgt.
Sandra R. Stites MDKansas City Women's Clinic
Liza Townsend JD, MSWCommunity Volunteer
Peter M. WilkinsonRx Savings Solutions
John D. Yeast MD, MSPHSaint Luke's Hospital
Board Demographics - Ethnicity
African American/Black 2
Asian American/Pacific Islander 2
Caucasian 14
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 8
Female 9
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 3
Board Meeting Attendance % 81%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
Standing Committees
Board Governance
Executive
Finance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
CEO Comments

The Center responds to a universal need because the issues it confronts–from aging, end of life and healthcare disparities to genetic engineering and artificial intelligence–affect all humans. Accelerating technology and innovation add enormous complexity to these issues. The Center offers proven tools to address their ethical dimensions. 

We believe the Center is unique among bioethics centers in the US. It is the only independent, community-based nonprofit specifically serving the practical needs of patients and families struggling with often heartbreaking dilemmas in healthcare. One of the Center’s most valuable contributions is addressing real-life ethical concerns raised by patients, families, healthcare professionals and policy makers.

The Center often convenes groups of diverse stakeholders to clarify ethical issues, identify common ground, and develop programs, institutional policies and public health strategies that can be defended ethically and implemented in the "real world." For example…

1. In 2018, with VITAS Healthcare, we recruited 9 African American churches in 6 cities to train ambassadors to teach and advocate for advance care planning (ACP) in their congregations. With Harman Foundation funding, we are now refining ACP curricula for African American pastors, congregations and community organizations, and in 2020 will present these curricula in 5 regional workshops for pastors and congregants representing 25 churches.

2. Upon invitation by The Pew Charitable Trusts, we examined diverse views on palliative care and advance care planning among US Catholics. Results were widely shared. Two national organizations representing both the progressive/conservative Catholic spectrum published the report.

3. The Center continues bringing the PAINS-KC Citizen Leaders group together to give voice to those who live with chronic pain.

4. The Center’s leadership in coordinating TPOPP (medical orders for seriously ill patients) to ensure that the expressed wishes of patients living with advanced disease are honored across settings and among different healthcare providers in multiple communities across KS and MO demonstrates the trust and confidence many large and small healthcare providers have in the Center’s efforts at advancing improved patient outcomes, especially for the most vulnerable patient populations.

Financials
Fiscal Year Start Jan 01, 2019
Fiscal Year End Dec 31, 2019
Projected Revenue $1,604,990
Projected Expenses $1,597,550
Endowment Value $6,067,411
Spending Policy Percentage
Percentage 5
IRS Letter of Exemption
Foundation Comments
  • FY 2017, 2016, 2015: Financial data reported using the IRS Form 990.
  • Foundation/corporate revenue line item may include contributions from individuals. 
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201720162015
Foundation and
Corporation Contributions
$560,335$1,274,493$477,416
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified--$0$0
Individual Contributions------
--$0$0
$290,714$251,030$220,178
Investment Income, Net of Losses$90,858$96,373$95,250
Membership Dues$98,760$114,200$95,150
Special Events$179,701$205,812$227,647
Revenue In-Kind--$0$0
Other$14,474$9,782$9,390
Expense Allocation
Fiscal Year201720162015
Program Expense$1,597,776$1,387,238$1,252,744
Administration Expense$288,555$194,498$219,224
Fundraising Expense$272,907$306,476$290,458
Payments to Affiliates------
Total Revenue/Total Expenses0.571.030.64
Program Expense/Total Expenses74%73%71%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201720162015
Total Assets$7,092,665$4,246,546$3,909,799
Current Assets$3,703,448$884,043$549,459
Long-Term Liabilities$535,677$277,599$208,351
Current Liabilities$198,613$226,767$240,579
Total Net Assets$6,358,375$3,742,180$3,460,869
Short-Term Solvency
Fiscal Year201720162015
Current Ratio: Current Assets/Current Liabilities18.653.902.28
Long-Term Solvency
Fiscal Year201720162015
Long-Term Liabilities/Total Assets8%7%5%
Top Funding Sources
Fiscal Year201720162015
Top Funding Source & Dollar AmountUnited States Cancer Pain Relief Committee $150,000Milbank Foundation for Rehabilitation $150,000Francis Family Foundation $142,420
Second Highest Funding Source & Dollar AmountMilbank Foundation $150,000United States Cancer Pain Relief Committee $150,000Milbank Foundation for Rehabilitation $100,000
Third Highest Funding Source & Dollar AmountFrancis Family Foundation $146,247Francis Family Foundation $145,691John & Wauna Harman Foundation $62,337
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years Yes
Organization Comments

Revenues come from program grants (17.0%), earned income (17.29%), donations/membership (28.4%), special events (15.6%), endowments (19.4%), including the Bioethics Leadership Fund introduced in 2018 in support of the Christopher Forum, practical responses to emerging issues in bioethics, support for young scholars, and to increase understanding of bioethics. We have two endowed chairs and an investment fund. The Rosemary Flanigan Chair is held by Tarris Rosell, PhD, DMin ($2.0M). Due to the January 2019 death of Richard Payne, MD, we will fill the John B. Francis Chair in Bioethics later this year ($3.0M). CPB also has the Kathleen M. Foley Investment Fund ($852,396). Francis funds are held on our behalf at the GKC Community Foundation; the others are managed by the CPB Board.

The Center has expanded its efforts to increase earned income though consulting contracts and fee-based agreements with our members, health systems and investor-owned companies in the region. We are excited about the Ethics + program that we began introducing in Summer 2019, which provides direct service to improve outcomes and performance through consultation, engagement, research and advance care planning and TPOPP program assistance.

We will continue to seek program grants from foundations in Kansas City and across the country, but there are virtually no foundations that indicate bioethics as their focus. The Center thrives because thoughtful foundation decision-makers recognize that the Center does unique and essential work that affects each and every one of us. We are grateful that so many have stepped up to support this worthy work.

Other Documents
Practical Bioethics Newsletter2019View
34 Years of Accomplishments2017View
Caring Conversations in Spanish2017View
Pathways to Convergence: Catholic Perspectives on Advance Care Planning, Palliative Care and End-of-Life Care2017View
Advancing the Common Good through Public-Private Relationships for Biomedical Innovation2016View
30th Anniversary Case Statement2014View
Kansas-Missouri TPOPP Coalition2014View
Impact Story: Bert and Joan Berkley2014View
Impact Story: Helen Emmott2014View
Impact Story: John Yeast, MD2014View
Caring Conversations Workbook2013View
Organization Name Center for Practical Bioethics
Address Harzfeld Building, Suite 500
1111 Main
Kansas City, MO 641052116
Primary Phone (816) 221-1100
CEO/Executive Director John G. Carney MEd
Board Chair Sandra R. Stites MD
Board Chair Company Affiliation Kansas City Women's Clinic
Year of Incorporation 1984
Former Names
Midwest Bioethics Center