Who Is Carter Foundation, Inc.
800 E. 18th Street
Kansas City MO 64108-1514
Web and Phone Contact
Telephone (816) 868-9671
Mission Statement
The Who Is Carter Foundation changes the conversation around childhood brain injury—whether among physicians, families, communities, or society as a whole—from one of limitations to one of empowerment and possibility. We are dedicated to inspiring people and improving lives around the world, showing that there is beauty and hope in every circumstance.
CEO/Executive Director Emily Abbott
Board Chair Emily Abbott
Board Chair Company Affiliation Abbott Properties
History and Background
Year of Incorporation 2018
Volunteer Opportunities
Ways to donate, support, or volunteer
Supporters of the Who Is Carter Foundation may give in a variety of ways:
  • Donate online (via credit card) by visiting www.whoiscarter.org/donate. You may submit a one-time gift or set up a monthly gift.
  • Mail a check, made out to Who Is Carter Foundation, to 800 E. 18th St., Kansas City, MO 64108.
  • Donate a vehicle by visiting https://www.v-dac.com/org?id=82-1950994 or calling 1-877-999-8322.
  • Give from the sale of a business or real estate by contacting info@whoiscarter.org.
  • Host an online fundraiser by visiting https://whoiscarter.z2systems.com/np/clients/whoiscarter/createFundraiser.jsp?campaignId=2&&test=true.
  • Search for matching gifts from your employer by visiting https://doublethedonation.com/whoiscarter.
  • Volunteer your time and talents by contacting info@whoiscarter.org.
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

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Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Mission Statement The Who Is Carter Foundation changes the conversation around childhood brain injury—whether among physicians, families, communities, or society as a whole—from one of limitations to one of empowerment and possibility. We are dedicated to inspiring people and improving lives around the world, showing that there is beauty and hope in every circumstance.
Background Statement The Who Is Carter Foundation is named in memory of Carter Abbott, who was born in 2010 and passed away as the result of brain damage at 20 months of age. Carter’s parents, Matt and Emily Abbott, sought out the best possible treatment for Carter’s brain damage but discovered that finding access to information about complementary treatment methods and practitioners was challenging. They became aware of the lack of hope and possibility for not only their family, but for all families of children with brain injuries. It became their goal to help these families, and the vision for the Who Is Carter Foundation was born.
Impact Statement
  • In 2018, Who Is Carter launched TheBrainPossible.com, a resource website for parents of children with brain injury and other neurological conditions.  The website sees an average of 70 monthly users.
  • In November 2018, Who Is Carter hosted its first annual Gala & Auction in Kansas City, Missouri.  The sold-out event was attended by over 500 guests, and the event raised $250,000.
  • In 2018, the Who Is Carter Foundation hired its first full-time staff member, Operations Director Allison Murray.
  • In 2019, TheBrainPossible.com is undergoing total redevelopment to expand the site's resources, to make it even more effective for families, and to reach more families in need.  New features of the website will include interactive discussion forums for families; a searchable registry of complementary medicine practitioners; regularly published blog posts of news, inspiration, product reviews, and advice; and a podcast to accompany blog posts.  The new site is set to launch in September 2019.
  • In November 2019, the Who Is Carter Foundation will host its Second Annual Gala & Auction.  Plans are in the works to make this event even more impactful and financially successful than last year's event.
Needs Statement
Who Is Carter's greatest needs include:
  • Approximately $60,000 to complete the redesign and redevelopment of TheBrainPossible.com.
  • Volunteers to plan and execute the Second Annual Gala & Auction.
  • In-kind donations of auction items and other services at the Second Annual Gala & Auction.
  • Research volunteers to populate the Practitioner Registry on TheBrainPossible.com.
  • Additional operating funds to hire a Development Director in 2020.
Service Categories
Health Support
Neurology & Neuroscience
Areas of Service
Geographic Area Served Narrative Our operations are located in Kansas City, Missouri, so outreach to families in need has begun with the pediatric medical community in the Kansas City metropolitan area.  However, we plan to scale our reach nationally, as the reach of resources on TheBrainPossible.com are certainly not limited by geographical area.  We want families across the United States--and in other parts of the world--to make use of the resources available on TheBrainPossible.com.
CEO/Executive Director/Board Chair Statement
The leadership of the Who Is Carter Foundation is thrilled to celebrate several successes since our organization launched in 2017:
  • The organization's website, WhoIsCarter.org, launched in July 2017.
  • The parent resource website, TheBrainPossible.com, launched in July 2018.
  • Our first-ever Gala & Auction in 2018 was a tremendous success, and we are set to improve on that success with our 2019 event.
  • When the redesign of TheBrainPossible.com goes live later this year, it will be even more effective in supporting families whose children need the best possible care for their neurological diagnosis.
  • In the future, we plan to build a retreat center so families can find the rest, reconnection, and rejuvenation the whole family needs.
The challenges we face include:
  • Making sure that families who need our support know about the resources available at TheBrainPossible.com.
  • Making our work known to a wider audience to build our donor and volunteer support base.
  • Establishing diverse, sustainable funding sources to continue the work of TheBrainPossible.com, to strengthen our operations by expanding staff, and to fund the planning and eventual construction of the retreat center.
Description The Brain Possible is a website (TheBrainPossible.com) that inspires and empowers parents, caregivers, and practitioners who care for children with brain injuries. Through our information and community-based website, we provide a safe and positive space for those touched by brain injury to come together and find support, resources, and hope. The Brain Possible provides information about pediatric brain conditions, alternative treatments and complementary therapies for those conditions, and additional resources for parents of children living with brain injury. The Brain Possible is building a searchable practitioner registry, an interactive online community for parents, and aims to provide even more services as the website and its audience expand.
Program Budget $300,000.00
Category Health Care, General/Other Alternative Health Care
Population Served Children and Youth (0 - 19 years)
Program is linked to organization's mssion Yes
Program Frequently Assessed Yes
Short-Term Success
Short-Term Goals for The Brain Possible include:
1) Completing the redesign of TheBrainPossible.com by December 31, 2019
2) Enrolling at least 5,000 alternative medicine practitioners in The Brain Possible's Practitioner Registry by June 30, 2020 and publishing that Registry on the website by July 30, 2020
3) Helping at least 300 families nationwide through resources on The Brain Possible by December 31, 2020
Long-Term Success The ultimate outcome intended from the creation of The Brain Possible is that no parent will ever feel helpless or limited after their child's neurological diagnosis. The Brain Possible provides a free, centralized, easy-to-access source of information on complimentary and alternative medical treatments for pediatric neurological conditions, saving parents hours of emotionally burdensome searching for answers for their child's health. The result of this access is that every child with a neurological diagnosis will receive the treatment or team of treatments he/she needs to achieve the best quality of life possible.
Program Success Monitored By
The primary methods of measuring the success of The Brain Possible include:
  • Google Analytics for tracking of website traffic, reach, and use, which provides insights into which resources on the website visitors use most;
  • a database of practitioners who join the registry;
  • surveys of practitioners who join the registry;
  • and surveys of families who provide their contact information to the website.
Examples of Program Success The impact of this program has not yet been recorded, as the website has not yet reached a large number of families, and a method of contacting those families has not yet been established. As the new website is completed and launched in late 2019, its reach will be expanded by search engine optimization (SEO) and other marketing strategies, and a method of contacting families will be made available on the website. Once these families have been contacted, surveyed, and the website's impact recorded, we will update this section of program information.
Executive Director/CEO
Executive Director Emily Abbott
Term Start June 2017
Senior Staff
Title Operations Director
Paid Full-Time Staff 1
Paid Contractors 7
Volunteers 30
Staff Diversity (Gender)
Female 100
Plans & Policies
Organization Has a Fundraising Plan Under Development
Organization Has a Strategic Plan Under Development
Management Succession Plan No
Organization Policy and Procedures Under Development
Nondiscrimination Policy No
Whistleblower Policy No
Document Destruction Policy No
Seal of ExcellenceAmerica's Best Charities2019
Board Chair
Board Chair Emily Abbott
Company Affiliation Abbott Properties
Term June 2017 to
Email emily@whoiscarter.org
Board Members
Matt AbbottAbbott Properties
Emily Abbott
Joseph GengReal Estate Investor
Jennifer RagazzoFunctional Medicine Coach
Brian VotavaNorthPoint Development
Dr. Lindy WoodardPediatric Alternatives
Board Demographics - Gender
Male 3
Female 3
Number of Full Board Meetings Annually 4
Fiscal Year Start Jan 01, 2019
Fiscal Year End Dec 31, 2019
Projected Revenue $837,500
Projected Expenses $572,985
Form 990s
Detailed Financials
Expense Allocation
Fiscal Year201720162015
Program Expense$29,799----
Administration Expense$1,995----
Fundraising Expense$0----
Payments to Affiliates------
Total Revenue/Total Expenses1.26----
Program Expense/Total Expenses94%----
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201720162015
Total Assets$8,723----
Current Assets$8,723----
Long-Term Liabilities$0----
Current Liabilities$396----
Total Net Assets$8,327----
Short-Term Solvency
Fiscal Year201720162015
Current Ratio: Current Assets/Current Liabilities22.03----
Long-Term Solvency
Fiscal Year201720162015
Long-Term Liabilities/Total Assets0%----
Top Funding Sources
Fiscal Year201720162015
Top Funding Source & Dollar Amount ------
Second Highest Funding Source & Dollar Amount ------
Third Highest Funding Source & Dollar Amount ------
Capital Campaign
Currently in a Capital Campaign? No
Other Documents
Who Is Carter Annual Report2018View
Organization Name Who Is Carter Foundation, Inc.
Address 800 E. 18th Street
Kansas City, MO 641081514
Primary Phone (816) 868-9671
Contact Email info@whoiscarter.org
CEO/Executive Director Emily Abbott
Board Chair Emily Abbott
Board Chair Company Affiliation Abbott Properties
Year of Incorporation 2018