Head for the Cure
1607 Oak Street
Kansas City MO 64108-1426
Web and Phone Contact
Telephone (816) 218-6892
Mission Statement

The mission of Head for the Cure is to raise awareness and funding to inspire hope for the community of brain cancer patients, their families, friends, caregivers and other supporters, while celebrating their courage, spirit and energy.

We accomplish this by hosting a series of 5K runs/walks and other events to raise funding in support of brain cancer research benefiting local beneficiaries and our national beneficiary, The Brain Tumor Trials Collaborative (BTTC). We also provide support through our programs including Brains for the Cure, survivor luncheons and other community engagements. All of these events and programs allow us to raise funds, awareness and hope for the brain tumor community.

Leadership
CEO/Executive Director Jenna Heilman
Board Chair Matt Anthony
Board Chair Company Affiliation
History and Background
Year of Incorporation 2007
Volunteer Opportunities
Ways to donate, support, or volunteer
We welcome any donations rather monetary, in-kind, volunteering, or general support!
Monetary donations can be mailed to our office or submitted online at https://www.headforthecure.org/content/donate.
If you wish to donate in-kind items, please email info@headforthecure.org and we will make sure the appropriate person responds and coordinates with you.
If you are interested in volunteering or supporting Head for the Cure in another capacity, please email info@headforthecure.org, and the appropriate person will respond and work with you.
Thank you for your support!
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement

The mission of Head for the Cure is to raise awareness and funding to inspire hope for the community of brain cancer patients, their families, friends, caregivers and other supporters, while celebrating their courage, spirit and energy.

We accomplish this by hosting a series of 5K runs/walks and other events to raise funding in support of brain cancer research benefiting local beneficiaries and our national beneficiary, The Brain Tumor Trials Collaborative (BTTC). We also provide support through our programs including Brains for the Cure, survivor luncheons and other community engagements. All of these events and programs allow us to raise funds, awareness and hope for the brain tumor community.

Background Statement
Head for the Cure was founded in 2003 after the passing of Chris Anthony, and was officially established a a 501(c)3 organization in 2007. Head for the Cure started as one 5K in Kansas City and has now grown to over 20 cities across the country. We partnered with MD Anderson Cancer Center to establish the Brain Tumor Trials Collaborative in 2007. The BTTC's mission is to develop and perform state-of-the-art clinical trials in a collaborative and collegial environment. The BTTC is our primary and national beneficiary. 
 
In 2017, Head for the Cure hosted it's 100th event since 2003, and we have officially raised over $12 million. 
Impact Statement
2018 was a record setting year! We had more participants, teams, sponsors, and volunteers at our 5K races hosted across the country. Because of that great success, we were able to grant over $1,000,000 to our local and national beneficiaries for brain cancer research and programs. We were also able to launch the video portion of our patient navigator, Brains for the Cure.
 
In 2019, we will be adding more 5K races that help us to raise awareness, funds, and hope for the brain tumor community. We are continuing to evolve Brains for the Cure and plan to incorporate more of that program in the hospitals we work with.  
 
Needs Statement Head for the Cure is lucky to have a great group of supporters across the country, but we welcome anyone and everyone that feels a connection to our organization. Our primary source of fundraising is our 5K Run/Walks across the country. In order for those events to be so successful, we always have a need for volunteers and sponsors. There are a wide variety of volunteer opportunities leading up to the event and on the day of, as well as several sponsorship levels for companies, organizations, or families. As our organization grows, we hope to bring races closer to those who have not participated before, but for those not near our race locations, we love to help others still be a part of Head for the Cure. One way to do that is host your own event or fundraiser on behalf of Head for the Cure. 
Service Categories
Fund Raising & Fund Distribution
Areas of Service
National
Geographic Area Served Narrative Head for the Cure is represented across the country, and host 5K run/walks in 28 cities with plans to expand to more cities in 2020. We welcome support from across the country through generous donors, creative fundraising events, and support across social media.
CEO/Executive Director/Board Chair Statement

In 2018 Head for the Cure saw new milestones, partnerships, creative fundraising and an unmatched determination to defeat brain cancer step by step! Sine 2003, our 5K run/walk events have been our signature fundraising and hope-raising programs across our Foundation. That was again the case in 2018, with over 17,000 participants, volunteers, sponsors and well-wishers joining us in 21 events across the country. HFTC Event participation fuels the energy and engagement that drives our foundation forward.

 
Head for the Cure continued to support research in 2018 through the funds raised throughout our 5K events. For the first time this year, we are partnering with Agenus to administer grants for a clinical trial through our national beneficiary, the Brain Tumor Trials Collaborative (BTTC) housed within the National Institutes of Health (NIH). The BTTC continues to anchor brain tumor research across the country and is the catalyst for making an impact in innovative treatment across the country.
Programs
Description
In April 2017, we launched our first program built specifically for patients and caregivers: Brains for the Cure—an online navigator to help them understand, manage, and cope with all the twists and turns of a brain tumor diagnosis.
 
When there’s nobody to turn to and everything feels overwhelming, Brains for the Cure offers a level of understanding that meets patients and supporters exactly where they are and helps them find a useful forward step to take, whatever their situation.
 
We’re investing in the future of Brains for the Cure. We’re developing new features for the site to fuel its evolution into a constantly-updating publication. Along the way, we’re making it easier to find from web searches (so people who’ve never heard of us can still get the answers they need when they need them), easier to use from mobile devices, and more current with the latest medical advances in brain tumor treatment.
Category Health Care, General/Other Patient Education
Population Served People/Families of People with Cancer
Program is linked to organization's mssion Yes
Short-Term Success Brains for the Cure is currently working on creating a video platform for those using our resource. These videos will focus on the questions and topics most relevant to a patient and their support system. We have videos featuring survivors, current patients, and the doctors we work with. We will continue to add to this platform as we work with other individuals and discover more questions that need answers.
Long-Term Success Brains for the Cure aims to help any and every patient or family navigate through the treatment of a brain tumor as well as life after treatment. This resource will be ever changing as the research changes and evolves and as more treatments and resources are discovered.
Program Success Monitored By Brains for the Cure was tested by doctors, patients, and caregivers that would be using the site and they responded enthusiastically and many of the doctors signed on to help guide the site into the future.
Examples of Program Success Brains for the Cure continues to evolve and grow as a new resource for the brain tumor community.
Executive Director/CEO
Executive Director Jenna Heilman
Term Start Mar 2017
Staff
Paid Full-Time Staff 9
Paid Contractors 2
Volunteers 750
Formal Evaluations
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Board Chair
Board Chair Matt Anthony
Term Feb 2007 to Dec 2020
Board Members
NameAffiliation
Krista Allen
Harry S Campbell
Jon Cook
Danay Fast
John Holt
Eric Lichtenstein
Mario Lichtenstein
Adam Lichtenstein
David Matson
Shari Nederhoff
Tom Sadowski
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 13
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 9
Female 3
Unspecified 0
Governance
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Standing Committees
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Communications / Promotion / Publicity / Public Relations
Financials
Fiscal Year Start Jan 01, 2019
Fiscal Year End Dec 31, 2019
Projected Revenue $2,300,000
Projected Expenses $280,000
Foundation Comments
  • FY 2017, 2016, 2015: Financial data reported using IRS Form 990.
  • Foundation/corporate revenue line items may include contributions from individuals.
Detailed Financials
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201720162015
Foundation and
Corporation Contributions
$189,596$207,456$147,422
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified----$0
Individual Contributions------
----$0
$14,742$10,502$10,738
Investment Income, Net of Losses$1,134$1,214$539
Membership Dues----$0
Special Events$1,264,367$1,164,426$1,156,138
Revenue In-Kind$8,610--$0
Other----$0
Expense Allocation
Fiscal Year201720162015
Program Expense$1,267,305$1,333,739$1,089,361
Administration Expense$163,148$122,761$94,215
Fundraising Expense$278,893$244,552$185,799
Payments to Affiliates------
Total Revenue/Total Expenses0.860.810.96
Program Expense/Total Expenses74%78%80%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201720162015
Total Assets$151,397$391,154$708,358
Current Assets$147,414$386,375$708,358
Long-Term Liabilities$0$250$0
Current Liabilities$0$0$0
Total Net Assets$151,397$390,904$708,358
Short-Term Solvency
Fiscal Year201720162015
Current Ratio: Current Assets/Current Liabilities------
Long-Term Solvency
Fiscal Year201720162015
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201720162015
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Other Documents
Organization Name Head for the Cure
Address 1607 Oak Street
Kansas City, MO 641081426
Primary Phone (816) 218-6892
Contact Email info@headforthecure.org
CEO/Executive Director Jenna Heilman
Board Chair Matt Anthony
Year of Incorporation 2007