Braden's Hope for Childhood Cancer
15954 Mur Len Box 124
Olathe KS 66062
5 year research total
Web and Phone Contact
Telephone (913) 961-3703
Mission Statement
Braden’s Hope For Childhood Cancer raises awareness and funds for research of precison-medicine (targeted) treatments that shut down the activators of childhood cancers. Our mission is two-fold. We raise awareness because 80% of children diagnosed with cancer are already at stage III or IV compared to only 20% of adults who are at stage III or IV. Cancers are far more treatable when they are caught in earlier stages.
Leadership
CEO/Executive Director Ms. Deliece Hofen
Board Chair Ms. Deliece Hofen
Board Chair Company Affiliation None
History and Background
Year of Incorporation 2010
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Statement
Braden’s Hope For Childhood Cancer raises awareness and funds for research of precison-medicine (targeted) treatments that shut down the activators of childhood cancers. Our mission is two-fold. We raise awareness because 80% of children diagnosed with cancer are already at stage III or IV compared to only 20% of adults who are at stage III or IV. Cancers are far more treatable when they are caught in earlier stages.
Background Statement
Braden’s Hope was created when five year old Braden Hofen was diagnosed with a relapse of neuroblastoma. He was given less than a 10% chance for a five-year survival and they were told there was no known cure for relapsed neuroblastoma.
 
Three months after his relapse, his mom, Deliece, was diagnosed with stage 2 breast cancer and was given targeted treatment options that matched the histology of her disease. Deliece began researching to find out why that difference existed and she learned how underfunded and overlooked childhood cancers are in relation to adult cancer research. All childhood cancers receive less than 3.5% of the NIH’s research budget while breast cancer alone receives 12%.
 
Deliece was grateful for her own odds, but wanted nothing more than for her son to have hope for a future. Braden’s Hope was created to fill that void and provide much needed funding for targeted treatments that shut down the activators of childhood cancers so that no other family has to hear the words, “no known cure.”
 
All children deserve hope. Since our inception, we have worked tirelessly to do just that. We have awarded nearly $600,000 in just four years for research. We have raised those funds through our Hope Gala, Calendars, small fundraisers, and through the hard work and caring hearts of the people of Kansas City. We have also done a great deal to raise awareness about childhood cancer and the need for research and awareness through multiple media appearances and articles. 
Impact Statement
  • Braden's Hope is pleased to announce that we have made a $3 Million Reasons To Hope Promise to researchers at Children's Mercy Hospital and KU Cancer Center to fund three separate ONE MILLION DOLLAR trials over the next three years beginning in 2017. 
  • The first goal of Braden's Hope For Childhood Cancer is to fund research grants for targeted therapies that shut down the activators of childhood cancers. 
  • Our second goal is to raise awareness about childhood cancers. 80% of children diagnosed are already at stage 3 or 4.That is true only 20% of the time for adults. Earlier diagnosis results in more survivors. Childhood cancers are often treated with antiquated therapies which result in 2/3 of our children suffering from long term chronic health effects. We fund targeted therapies that allow our heroes to live fuller lives as survivors.
  • Our successes in 2016 include awarding $600,000 in grant money to researchers. $500,000 of that money stayed in Kansas City with research partnerships between Children's Mercy and KU Medical Center. Those grants were directed at research for sarcomas. $100,000 was awarded to Dr. Yael Mosse at the Children's Hospital of Philadelphia for her world renowned research in Neuroblastoma. 
  • Secondly, we were able to create calendars with our local sports teams: The Kansas City Royals, The Kansas City Chiefs, Sporting Kansas City, and the KC Mavericks. The memories our heroes made during those photo shoots were priceless. 
  • Another success was our Fifth Annual Hope Gala in September of 2016. We had over 1000 attendees and we had a net profit of $647,000.00.
  • We are thrilled that in just five years we have been able to award over $1.17 million in research grants. That is a credit to all of our volunteers, families, and community supporters.
  • We have also been extremely successful in our media appearances across the metro and have been featured on all four news channels, radio, and in print media.
Needs Statement
  1. Funds. We need funds to be able to award grants in the amount of at least $100,000. Our goal for 2017 is to award $700,000 in research grants which would bring our six year total to almost $1.9 million!
  2. We are searching for additional opportunities to partner with events. Those events reach new audiences and create a larger awareness and provide much needed funding. We can provide a great deal of publicity for organizations that partner with us in this way.
  3. We are also seeking financial Sponsors for our Hope Gala. This is our major fundraiser each year and we need increased sponsorships. We started with 350 attendees in 2012, 550 in 2013, 800 in 2014, 850 in 2015 and over 1,000 in 2016.  We need to continue to grow and broaden our base of sponsors.
  4. We are honored to have sponsors such as Kiewit Power who has contributed over $650,000 in just two years, Garmin who has contributed over $100,000 in five years, and Panera who has contributed over $100,000 in five years. We are also honored to partner with several companies since our inception including: Bank of Blue Valley, Shannon Lyon Real Estate, The DLR Group, Garney Construction, TopConsumerReviews.com, Bob Allen Ford, Homebridge Financial and Sun Life. We welcomed aboard new sponsors last year and are partnering with them again this year: Helzberg Jewelers, Lathrop and Gage, Alere E Screen, Noah's Bandage Project, Briova RX, and James Engle Homes. We appreciate and value the long term relationships of these companies and the hearts of the employees at those companies who work so hard to support our heroes.
Service Categories
Cancer
Areas of Service
KS - Johnson County
KS - Wyandotte County
MO - Jackson County
KS - Lawrence
CEO/Executive Director/Board Chair Statement
Braden’s Hope For Childhood Cancer is named after Braden Hofen. I am Deliece Hofen, Braden’s mom and President of Braden’s Hope. Our son was told that he had less than a 10% chance of survival, but we are four years into that time period. Unfortunately, he developed a secondary cancer that was caused by the treatments he had to put him into this second remission. Our oncology teams in KC and Philly have both told us that they have never seen a child survive relapsed neuroblastoma and then this particular type of secondary leukemia Braden has now developed. Not one. Those odds are devastating.
 
This cause could not be more personal and as a result, Braden’s Hope was created. Every child deserves a chance to hope for a future. We awarded nearly $600,000 to local researchers in September of 2016 and have pledged to provide $3,000,000 in funding to Children's Mercy Hospital and KU Cancer Center researches who are working together collaboratively over the next three years. We will fund three $1,000,000 trials during that time frame and that is a lot of hope. We are helping children right here in KC, and I know those faces.  We are blessed with an army of volunteers who are just as passionate and active as I am and we are making a difference together.
 
Our calendar photo shoots gives our Hope Families a chance to spend about 30-45 minutes with a professional athlete. It always turns out that the athletes end up realizing that the children are the true heroes. One of our heroes had her autographed football and calendar right beside her casket at her funeral because that day meant so much to her. This past year, our Hope Hero, Amelia was featured with Yordano Ventura in the month of January. Amelia earned her angel wings in October and Ventura earned his in January. Many stories were done about how special the time they shared on the field during our photo shoots was to both of them. A photo of Ventura with our Hope Hero, Tyler, was in the panels that guests signed in memory of him at Fan Fest.
 
Our greatest challenge is securing funds for our research grants for targeted therapies of childhood cancers. Another challenge is finding volunteers who want to assume leadership roles and take initiative for event planning and implementation rather than being an active member on a committee. We would love to have additional volunteers!
 
We are happy to state that only 8.4% of our finances go toward administrative costs thanks to so many wonderful volunteers. 
Programs
Description We fund Research Grants for targeted therapies to shut down the activators of childhood cancers in a minimum amount of $100,000. We have a Research Advisory Board consisting of the top researchers in childhood cancer treatments that advise us about trends in research. We also have a Research Grant Review Board that accepts, reviews, and makes a recommendation about which grants should be funded by evaluating scientific validity and a match to our mission. Our Executive Board then has approval rights about those recommendations.
Category Medical Research, General/Other Cancer Research
Population Served Children and Youth (0 - 19 years), ,
Short-Term Success Our clients are the children with cancer and their families as well our donors and sponsors. They have been extremely supportive and positive about what we are doing and the manner in which we do things. This is evidenced by sponsorships the following year being given by companies and individuals who contributed. Many of these CEO’s are on our Hope Gala Advisory Board as well and they provide essential input and assistance to us as we grow. Our general fan base is extensive with a reach of over 20,000 on social media. We receive national recognition and appreciation for our work.
Long-Term Success
We have made a promise to researchers at Children's Mercy Hospital and KU Cancer Center to fund $3,000,000 for precision-based (targeted) research to shut down the activators of childhood cancers. We will fund three $1,000,000 research trials over three years beginning in the fall of 2017. Trials of this magnitude will have significant results and hope for our children fighting cancer.
 
KC has a unique opportunity to change the face of childhood cancer research through our well-qualified researchers and an in-house drug development center at KU Medical Center. Only 3 drugs have been developed and approved for children since 1980 with over 50 for adults in that same time. Big pharmaceutical industries are not invested in childhood cancer drug development because there are fewer children than adults with cancer. We are able to circumvent big pharmaceutical industries and develop drugs because of our unique advantage as one of six such centers in the entire country. 
 
Program Success Monitored By Each grant that is awarded requires researchers at both Children's Mercy and KU Cancer to work in collaboration with our Research Review Board to develop trials that fit our mission. This is a unique collaboration and insures we are developing trials that truly are precision-based therapies to shut down the activators of childhood cancers. Each year, we receive an update on the research progress and budget expenditures and at the end of three years, there must be published materials in addition to final results.  of summary of results at the end of one calendar year. That is a very formal and extensive report. Both our Research Review Board and our Executive Board receive that report yearly and at the end of the three year period for review. Our boards are very strict in enforcing research that is result based. Beginning this year, the hospital chairs are doing an annual public presentation about the results of their work for our funders and supporters.
Examples of Program Success The first grant we awarded was to Dr. Jason Shohet at Texas Children’s and it was for research on a group of what he viewed to be stem cells that were what he believed were responsible for the poor prognosis of children with neuroblastoma. His research worked to isolate those cells and then treat them to render them “non-stem like” meaning they would not tell other cells to become neuroblastoma cells. His work is extremely promising and is working to shut down the activator of that type of childhood cancer, which is one of the least curable childhood cancers. Dr. Shohet learned some extremely important lessons about these cells and continues his work in a new phase thanks to the funding Braden’s Hope provided. Dr. Shohet submitted a very detailed report about the results of his work but those results have still been marked as confidential so I cannot share the specifics until such time he allows us to do so which is usually when the doctors publish.
Description Bradens HOPE Gala – is held annually to raise the bulk of our funding for the year. We hold it each September because that is Childhood Cancer Awareness Month.
Category Medical Research, General/Other Cancer Research
Population Served Children and Youth (0 - 19 years), ,
Short-Term Success Since it’s inception in 2012, we have doubled attendance each year starting with 350 guests in attendance in 2012 and in 2016 hosting 1,000 attendees at the Overland Park Convention Center and raising more funding than ever before. We are getting our message out via presentations to groups; radio and television interviews and various fundraisers in the Kansas City area. The success we have at the Hope Gala grows our group of supporters, volunteers, sponsors, and connections and allows us to fund our Research Grants.
Long-Term Success
Our goal is to create enough funding to fund research at a level that would allow all children with cancer to have treatment options. Ultimately, we hope to wipe childhood cancers out.
Program Success Monitored By The program is successful if we raise enough funds to allow us to award, at minimum, one $100,000 grant. Last year, we were able to award two grants. We support research that seeks to find the activators for childhood cancers (the switch that is flipped that makes a regular cell become a cancerous one), and targeted treatments that then shut those activators down. Each grant recipient completed a formal report at the end of their one year grant cycle and reports back what they learned from the work we funded. This document is reviewed by both our Executive Board, and our Research Review Board.
Examples of Program Success In just five years we have grown from a group of 350 to a group of over 1,000. We have gone from raising $70,000 our first year to $647,000 our fifth year. Many people at the Hope Gala then reach out to partner and create new events for our organization so we can raise additional funds to continue to award grants. We have several local celebrities and VIPs attend our Hope Gala including starting athletes from the KC Chiefs and Sporting KC, alumni from all of our sports organizations, local leaders, politicians, and chairmen/women of influential companies. We also invite several Hope Hero families to attend courtesy of the event sponsors who donate additional 2 seats per table they purchase for that purpose.
Executive Director/CEO
Executive Director Ms. Deliece Hofen
Term Start Dec 2010
Experience
Deliece is a former Principal and HR Director in the Blue Valley Schools. She has served as the President of Braden's Hope since its inception.
 
Deliece has won multiple awards since working with Braden's Hope For Childhood Cancer including:

 

  • Rising Star of Philanthropy Award, 2013—Non-Profit Connect
  • 4435 South “Every Mom Awardee” May 2011
  • Assurant Person of Perseverance, 2015—Assurant Employee Benefits One of three in the nation chosen for this award. Other awardees are J.R. Hernandez,  Champion Dancing With The Stars, and Charity Tillemann-Dick Top Female Opera Star
  • Go To Bat Award, 2013--Kansas City Royals
  • Kansas City’s Most Deserving Woman, 2016—Just For Her Event
  • Keynote Address, Susan G. Komen, KC Brunch, 2016
  • Blue KC First Pass Kansas City Chiefs Champion, 2016 

 

Co-CEO/Executive Director
Term Start 0
Compensation Last Year
Staff
Paid Full-Time Staff 1
Paid Part-Time Staff 0
Volunteers 100
Paid Contractors 2
Retention Rate 95%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Under Development
Organization Has a Strategic Plan Yes
Management Succession Plan Under Development
Organization Policy and Procedures Under Development
Nondiscrimination Policy Yes
Whistleblower Policy No
CEO Comments We have one paid staff member, our President. We also pay two contract services, our accountant and our event planner for the Hope Gala. All other efforts are done through volunteerism.  We have several boards working with Braden’s Hope. Our Executive Board is our governing board and we meet annually. Our Advisory Board meets three times per year. Our Young Professionals Advisory Board meets three times per year.  Our Hope Gala Executive Board meets approximately 5 times per year. Our Research Review Board meets twice each year, once to write the Request for Proposals and once to Review the Grants and then select a winner that is presented to the Executive Board for approval.
Board Chair
Board Chair Ms. Deliece Hofen
Company Affiliation None
Term Dec 2010 to Dec 2018
Email deliecehofen@bradenshope.org
Board Members
NameAffiliation
Ms. Christine Barbour Vault Denim
Ms. Andrea Bennett Church of the Resurrection
Ms. Jenny Grindel Harvest Moon Natural Foods
Mr. Brian Hofen Future Electronics
Ms. Deliece Hofen Community Volunteer
Mr. Jon Holmes Psychologist
Ms. Kim Stanley
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 7
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 2
Female 5
Unspecified 0
Governance
Board Term Lengths 0
Board Term Limits 0
Board Meeting Attendance % 100%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Number of Full Board Meetings Annually 1
Advisory Board Members
NameAffiliation
Ms. Stacy Albin Waddell and Reed/Ivy Fund
Mrs. Nichole Asquith City of Olathe
Mrs. Keri Bahun Community Volunteer
Cole Blaise Young Professionals BoardKCPT
Kelsey Bradley Young Professionals BoardFuller Real Estate
Ms. Maureen Brady McShane and Brady Law Offices
Hunter Browning Young Professionals BoardSelf Employeed
Mrs. Laura Buckman Teacher
Mr. Phillip Charlton Monster.com
Laura Cooke Young Professionals BoardCommunity Volunteer
Mr. Brian Dolezal TopConsumerReviews.com
Mrs. Laura Dolezal TopConsumerReviews.com
Christian Duke Young Professionals BoardSporting KC
Abigail Eden Young Professionals BoardFox 4 Anchor
Mrs. Mikel Flickinger Community Volunteer
Mr Jon Fuller The DLR Group
Mr. Brian Gregory Network Innovations
Ms. Amanda Grosdidier Royals
Mr. Charlie Hill Bank of Blue Valley
Taylor Hill Young Professionals BoardCommunity Volunteer
Scott Hill Young Professionals BoardCerner
Ms. Jene' Hong Self Employeed
Ms. Shannon Lyon Shannon Lyon Real Estate
Brittney Macchi Young Professionals BoardChildren's Mercy
Katie MacGregor Young Professionals BoardChildren's Mercy
Mr Steve McCandless Garney Construction
Mr Aaron McKee McKee Law Firm
Mr. Tug McTighe Callahan Creek
Mrs. Jill Meyer Helzberg Jewelers
Ms. Laurie Minard Garmin
Ms. Melissa Murphy
Lauren Njeldski Young Professionals BoardChildren's Mercy
Ms. Lucia O'Connor Come Join Us LLC.
Dr. Shelly Oza Community Volunteer
Evan Palmer Young Professionals BoardChildren's Mercy
Ms. Natalie Rafanan T-Mobile
Ms. Laura Reed Blue KC
Allison Reese Young Professionals BoardChildren's Mercy
Anna Ruckman Young Professionals BoardCommunity Volunteer
Mrs. Kim Stanley Convenant Health Care
Mr. Lee Walton Bob Allen Ford
Jenna Wetzel Young Professionals BoardChildren's Mercy
Brittney Winter Young Professionals BoardChildren's Mercy
Financials
Fiscal Year Start Jan 01, 2017
Fiscal Year End Dec 31, 2017
Projected Revenue $1,100,000
Projected Expenses $315,000
Audit Documents
IRS Letter of Exemption
Foundation Comments
  • FY 2015, 2014, 2013: Financial data reported using IRS Form 990.
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
 
Expense Allocation
Fiscal Year201520142013
Program Expense$293,710$191,952$107,233
Administration Expense$0$23,789$15,808
Fundraising Expense$0$0$0
Payments to Affiliates----$0
Total Revenue/Total Expenses0.911.091.04
Program Expense/Total Expenses100%89%87%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$545,114$177,270$160,684
Current Assets$545,114$177,270$160,684
Long-Term Liabilities$0$0$0
Current Liabilities$284,886$14$3,607
Total Net Assets$260,228$177,256$157,077
Short-Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities1.9112662.1444.55
Long-Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Organization Comments We began a formal external audit process of our books in 2016 and will continue annually due to our rapid growth. We want to make certain we are following all appropriate procedures and laws.  
Organization Name Braden's Hope for Childhood Cancer
Address 15954 Mur Len Box 124
Olathe, KS 66062
Primary Phone (913) 961-3703
CEO/Executive Director Ms. Deliece Hofen
Board Chair Ms. Deliece Hofen
Board Chair Company Affiliation None
Year of Incorporation 2010