Infant Loss Resources Inc.
1734 E. 63rd Street, #301
Kansas City MO 64110
Web and Phone Contact
Telephone (800) 421-3511
Mission Statement
To promote safe practices which reduce the risk of infant death and to provide grief support for families who have lost babies.
CEO/Executive Director Lori Behrens LCSW
Board Chair Ms. Samantha Werner
Board Chair Company Affiliation UMB Bank
History and Background
Year of Incorporation 1984
Financial Summary
Revenue Expense Area Graph

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Mission Statement To promote safe practices which reduce the risk of infant death and to provide grief support for families who have lost babies.
Background Statement
SIDS Resources is the only organization in Missouri dedicated to providing support for families who have experienced sudden infant death AND to providing vital risk reduction information to the community. Through outreach, training and risk reduction efforts, SIDS Resources has helped lower the number of babies who die in the first year of life by 50% since 1994. Families who do experience the sudden and unexpected loss of a baby receive free bereavement support services. SIDS Resources works in partnership with bereaved families, the Department of Health, health care professionals, emergency care professionals and corporate representatives from throughout the state to provide the best possible services and to improve infant health.
The agency has evolved from its origin in 1974 as a federally funded project, first in St. Louis and later statewide. This project was begun by a parent who had lost a baby (and was a social worker by profession) and a neonatologist. In 1982, the project was awarded the contract by the state of Missouri for provision of SIDS services. In 1984, SIDS Resources was incorporated as a non-profit organization. Services continue to be funded through the generosity of individuals, corporations, and foundations. SIDS Resources has been the recipient of two Healthy Start awards in the boot heel of Missouri.
SIDS Resources has regional offices in Kansas City, St. Louis, and Springfield, and serves families in all of Missouri, and surrounding counties in metropolitan St. Louis and Kansas City. A Board of Directors representing the entire service area governs the agency. Regional Development Boards assist in local fund raising and community awareness.
Each year, SIDS Resources' provides bereavement support to over 100 families. In addition, SIDS Resources' staff members provide educational programs to over 100 professional/community groups annually, representing 3,000 individuals who receive information on SIDS.
Impact Statement
2016 Accomplishments: 
  1. SIDS Resources participates in and is an active member of the Kansas City area Safe Sleep Task Force, a group of multidisciplinary professionals and community members working to increase awareness and implementation of safe sleep strategies for babies. 
  2. SIDS Resources increased special event revenue over 2015 totals.
  3. SIDS Resources met the increased demand for safe sleep education of child care providers, after a new law in the state of Missouri mandated the education.
Goals for 2017:
  1. Continue process of examining the need for rebranding efforts.
  2. Implement self care awareness for staff as part of Trauma Informed practice.
  3. Implement updated training for hospital based nursery nurses.
Needs Statement
  1. Maintain consistent funding
  2. Utilize in kind technology support services
  3. Utilize new donor data base
  4. Increase number of individual donors
  5. Increase in kind PR support
Service Categories
Mental Health & Crisis Intervention NEC
Areas of Service
KS - Wyandotte County
KS - Johnson County
CEO/Executive Director/Board Chair Statement

My SIDS story started on May 28, 2010. Our life was hectic and crazy raising 3 boys under the age of 2.  But we loved every minute of it.  The twins had just begun smiling and making noises at us.  Then we received the phone call that every parent dreads - something is wrong with your child. It was the Friday of the Memorial Day weekend when my husband called me at work. Our neighbor had called him to ask why ambulances were at our house. When we had no idea our neighbor went inside and got a paramedic on the phone. One of the boys was in cardiac arrest. Our nanny had found Mason unresponsive in his crib when she checked on him during his morning nap. My husband and I met the paramedics at the hospital and were able to hold Mason's hands until they ultimately pronounced his death. He was 3 months and 23 days old. Our world shattered in that ER room.  We were a lucky family in that the staff at the hospital was amazing.  Unlike many families, we were allowed in the ER while they worked on Mason. After they called his time of death they unhooked him and allowed us to hold him.  The hospital also made molds of his hands and his feet for us -- a gift I will forever be grateful for. 

As a family we had to learn how to move forward -- raising Mason's twin brother Will and their older brother Caden.  SIDS Resources was an integral part in helping us move forward through their bereavement support.  We were introduced to so many other families.  Our request was to meet another twin family who could share the unique circumstances surrounding raising one twin after the loss of the other. The family we were matched with are a couple years further down the road than us. We've helped each other along all the milestones that many take for granted -- first teeth, crawling, first words, first steps, first birthday, first days of school.  Those milestones never stop, the pain never stops and we help each other through it all.
I joined the board of SIDS Resources in November 2010 to give back to a group who helped my family. As a member of the board I want to help other families realize they are not alone in this journey -- unfortunately there are many of us. However, families can and do survive this loss.  Most importantly, I want to help raise awareness regarding SIDS and the safe sleep recommendations. While SIDS can't be prevented, the risks can be reduced. The ABC’s of safe sleep are:  the infant should be Alone, on their Back and in a Crib.
In 2014, SIDS Resources marked their 40th year of helping families to heal and educating the community. All services are free of charge.  We continue to implement strategies that will enable us to have diversified revenue streams so that we may strive forward, in the belief all babies should live.   Samantha Werner, Board Chair
The outreach and education program of SIDS Resources strives to permeate the infant care giving community with the information necessary to keep babies healthy and safe.
The risk reduction and safe sleep messages are designed for all care providers (grandparents and child care providers) so that all those who care for infants (or teach others to care for infants) know the strategies to prevent infant death. Because SIDS/sleep related infant death remains the # 1 cause of infant death in the age range from one month to one year, and because 90-95 % of sudden infant death situations occur in unsafe sleep situations; it is critical that the community understand the risk and apply risk reduction/safe sleep strategies.
In FY 2016, we reached over 6,000 individuals statewide with information on SIDS and sleep related infant death.  For direct educational presentations, we reached our target goals of pre to post test increases in reports of beliefs about SIDS risk factors.
Program Budget $168,732.00
Category Health Care, General/Other Early Intervention & Prevention
Population Served General/Unspecified, ,
Short-Term Success A majority of those who attend informational presentations demonstrate significant attitude/belief change, as well as intent to change behavior, as a result of attending the presentation (as measured by pre and post testing).   When parents, caregivers, and professionals understand why we recommend safe sleep and othe risk reduction strategies (and the evidence behind the recommendations), the strategies are more likely to be implemented.   For example, 99% of those who attended our community presentations reported the belief that it is important to place babies on their backs to sleep.
Long-Term Success The ultimate goal is to reduce the number of babies who die from sleep related infant death.   Risk reduction and safe sleep strategies, when understood and implemented, will significantly reduce the risk of infant death.  For example, each year in Missouri, less than 5 % of all infant deaths occur in safe sleep situations, meaning we have the potential to prevent a majority of infant deaths where the sleep environment is the only risk factor. It is also important for caregivers to understand the importance of not smoking while pregnant and for baby to be in a smoke free environment.
Program Success Monitored By We implement pre and post testing during educational presentations to measure effectiveness and intent to change behavior.
Examples of Program Success 92% to 100% of respondents on pre- and post-test surveys indicated intent to change behavior as a result of attending an educational presentation given by SIDS Resources’ staff.  In addition, child care providers who have attended safe sleep presentations are encouraged to adopt safe sleep policies for the babies in their care. 
Families and friends are devastated by this sudden loss, usually the infant appears healthy prior to the death. Families and professionals affected seek accurate information about SIDS and other infant death, and about the diagnostic process. The professional groups consist of child care providers, first responders, emergency department personnel, and pediatric and public health professionals.
We assist families as they wait for the diagnosis and connect them with other families who have experienced a loss through peer support. Some families require assistance to cope with an uncertain diagnosis or with a diagnosis that implies potential preventability (i.e. accidental suffocation). Families receive services regardless of the diagnosis. We also provide support to the extended family members, siblings, and others within the social support network of the bereaved family. In FY 2016, we served 282 individuals through our bereavement support program.
Program Budget $113,362.00
Category Mental Health, Substance Abuse Programs, General/other Grief Counseling
Population Served General/Unspecified, ,
Short-Term Success We receive feedback consistently from families who choose to participate in our service delivery about the benefits of having connected with staff and other families through SIDS Resources.
Long-Term Success The ultimate goal is to reduce the sense of isolation that bereaved parents feel and to increase their overall sense of support.
Program Success Monitored By Family support service surveys.
Examples of Program Success
100% of parents who responded to our survey indicated that the services received from SIDS Resources helped them to experience an increased sense of support during the grieving process.
CEO Comments
The most significant challenge we currently face as an organization has to do with the process of deciding on a potential new brand.  We have University students (MBA students) assisting us with this challenge as part of our strategic planning process.  We are encouraged by the fact that the rate of infant death has been decreasing, both locally and nationally, for the last 3 years!
Executive Director/CEO
Executive Director Lori Behrens LCSW
Term Start Oct 2005
Compensation $50,001 - $75,000
Experience Ms. Behrens has been with SIDS Resources, Inc. since 1995 and has been Executive Director since 2005. She is a licensed clinical social worker with experience in bereavement counseling, infant development, and program planning and implementation.
Co-CEO/Executive Director
Term Start 0
Compensation Last Year
Paid Full-Time Staff 2
Paid Part-Time Staff 6
Volunteers 153
Paid Contractors 1
Retention Rate 90%
Staff Diversity (Ethnicity)
African American/Black 1
Caucasian 7
Staff Diversity (Gender)
Female 8
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Bi-Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Bi-Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Under Development
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
We collaborate with  numerous public health and social service organizations in order to assist us in expanding our reach for risk reduction messaging.  We also collaborate with other grief support groups and counselors to refer families who may best be served by others.
Lifetime Child Adbvocate AwardMissouri Alliance for Children Youth and Families2016
Government Licenses
Is your organization licensed by the government? No
CEO Comments SIDS Resources continues to be a leader in the public health and social service community on reducing the risk for SIDS and sleep related infant death, including Safe Sleep for babies.  SIDS Resources also provides a unique service which is compassionate grief support to the specific population of those who have experienced the sudden death of an infant.  We continue to meet the challenge of providing critical information to "hard to reach" families to fight a tragedy which is often unrecognized in the larger community.
Board Chair
Board Chair Ms. Samantha Werner
Company Affiliation UMB Bank
Term Jan 2014 to Dec 2017
Board Members
Karl R. Barnickol Husch Blackwell Sanders
Mr. Clayton Bax Commerce Bank
Debra Burgess GE Capital
Mr. Ross Chickering Fifth Third Bank
Mr. Tom Dahl retired
Ms. JanNysse Gray St. Louis County Department of Health
Laura S. Hillman M.D.University of Missouri Hospital, Columbia, MO
Dr. Cathy Hogan PhDMaryville University
Ms. Lillie Jackson St. Louis University
Ms. Rebecca Larason UMB Bank
Rebecca Nickelson HeplerBroom
Mr. Sean Patton Grey Eagle Distributing
Dr. Janelle Spaulding Mercy Health
Samantha Werner US Bank
Board Demographics - Ethnicity
African American/Black 3
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 5
Female 9
Unspecified 0
Board Term Lengths 3
Board Term Limits 0
Board Meeting Attendance % 75%
Written Board Selection Criteria? No
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Board Governance
Strategic Planning / Strategic Direction
Fiscal Year Start Oct 01, 2016
Fiscal Year End Sept 30, 2017
Projected Revenue $323,360
Projected Expenses $322,573
Spending Policy Income Only
Foundation Comments
  • FYE 9/30/2016, 2015, 2014: Financial data reported using IRS Form 990. 
  • Foundation/corporate revenue line item may include contributions from individuals
Detailed Financials
Expense Allocation
Fiscal Year201620152014
Program Expense$260,339$249,499$202,511
Administration Expense$17,480$14,434$11,508
Fundraising Expense$20,709$19,847$16,108
Payments to Affiliates------
Total Revenue/Total Expenses0.990.951.09
Program Expense/Total Expenses87%88%88%
Fundraising Expense/Contributed Revenue8%8%7%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$90,554$77,894$75,971
Current Assets$80,052$64,702$75,971
Long-Term Liabilities$0$0$0
Current Liabilities$23,444$14,100$10,561
Total Net Assets$67,110$63,794$65,410
Short-Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities3.414.597.19
Long-Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountUnited Way of Greater St. Louis $44,462 -- --
Second Highest Funding Source & Dollar AmountMissouri Foundation for Health $42,958 -- --
Third Highest Funding Source & Dollar AmountIndividual Donor $26,600 -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments The Board and staff of SIDS Resources is encouraged by recent return on investment of the implementation of new fundraising strategies. We continue to refine and develop new ideas which have been incorporated into our fundraising plan.
Organization Name Infant Loss Resources Inc.
Address 1734 E. 63rd Street, #301
Kansas City, MO 64110
Primary Phone (800) 421-3511
CEO/Executive Director Lori Behrens LCSW
Board Chair Ms. Samantha Werner
Board Chair Company Affiliation UMB Bank
Year of Incorporation 1984