Gilda's Club Kansas City
21 W. 43rd Street
Kansas City MO 64111-1804
Web and Phone Contact
Telephone (816) 531-5444
Mission Statement

The mission of Gilda's Club Kansas City is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

The vision of Gilda's Club Kansas City is "so that no one faces cancer alone."®
Leadership
CEO/Executive Director Siobhan McLaughlin-Lesley
Board Chair Chuck Etherington
Board Chair Company Affiliation American Century Investments
History and Background
Year of Incorporation 2006
Former Names
Friends of Gilda's Kansas City
Financial Summary
 
 
Projected Revenue $455,150
Projected Expenses $458,120
Statements
Mission Statement

The mission of Gilda's Club Kansas City is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

The vision of Gilda's Club Kansas City is "so that no one faces cancer alone."®
Background Statement

Gilda Radner, our namesake, once said,"Having cancer gave me membership into an elite club I'd rather not belong to." At Gilda's Club Kansas City (GCKC), we know that no one wants to have cancer, but we also know that when they do, they seek education and upport from their community. GCKC opened its doors in October 2011 after our founder had seen first hand the impact that another Gilda's Club affiliate had on a friend.  Our Clubhouse is located in midtown Kansas City, providing a warm and welcoming home-like environment for people who need a community of support while they, or a loved one, is living with cancer.

Since opening, GCKC has continued to grow a robust program including support groups facilitated by licensed mental health professionals; educational programs and materials such as the "Frankly Speaking About Cancer" series; healthy lifestyle classes such as nutrition, exercise, and arts; social activities such as comedy nights, cookouts, and remembrances; and resource and referral programs.

Our reach continues to grow.  Most of our programming is done at our midtown Kansas City location; however, special programs are also conducted at North Kansas City Hospital, Saint Luke's East Hospital, Saint Luke's South Hospital and Liberty Hospital and other facilities throughout the community.   
 
GCKC is part of an affiliate network - Cancer Support Community (CSC), the largest employer of oncology social workers in North America. As an affiliate of CSC, we are provided a vast resource and research library, which include the "Frankly Speaking about Cancer" series. Additionally, we are provided three unique tools: Open to Options, Cancer Support Source; and Kid Support.
 
CSC provides an evidenced-based model, training, resource materials and grants to each affiliate; however, each affiliate is an independent 501(c)3 nonprofit organization.  Approximately 1% of our budget goes toward affiliate licensing fees which provides the support given by CSC. All other money raised locally stays in Kansas City.
 
GCKC has a strong board that directs its activities.  A staff of 3 full-time and 3 part-time professionals work hard to provide programming and administration to ensure "that no one face cancer alone."® 
Impact Statement

In 2016, Gilda’s Club Kansas City served 875 unduplicated patients, with a total of over 4,735 visits, representing tremendous growth.

  • Doubled the number of visits since we opened with 2,127 in 2012
  • 33% growth in visits 2016 over 2015
  • 99% growth in unique individuals served, 2016 over 2015
  • 435% growth in our children, teens and family group, 2016 over 2015
We annually survey participants regarding the key attributes our programs are designed to impact. Results from our 2016 survey include:
  • 96% of participants report increased access to information about cancer, treatment, and side effect management;
  • 85% of participants report that they have less psychological distress;
  • 91% of participants report feeling more connected with others living with similar experiences.

We also use CancerSupportSource®, a validated psychometric distress screener, with both internal and external validity and reliability that determines overall level of distress for our participants. In aggregate, our patient population reported distress decreased from a 3.0 rating to 0.25 (on a 0 - 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed”) during their participation in 2015.

Top Goals for 2017:

  • Increase the number of unique individuals served and number of visits to our program by 25%.
  • Continue our free, comprehensive cancer support model resulting in 85% or more of our participants reporting lower stress through our CancerSupportSource® screening tool.
  • Provide our high quality, impactful programs including support groups, educational workshops, healthy lifestyle classes, social activities and resource referral. Participant surveys should result in 85% or more reporting increased knowledge, increased access to information, better family communication and better able to manage stress.
  • Broaden our health care system partnerships to better serve the increased incidence of cancer and our broad geography.
Needs Statement

The American Cancer Society® reports that today, one in two men and one in three women will receive a cancer diagnosis in his or her lifetime. As a result of early diagnosis and advancement in treatment, we are seeing increasing numbers of individuals living with cancer in our community. The American Cancer Society’s report “Cancer Treatment and Survivorship: Facts and Figures 2016 – 2017” estimates 139,660 persons in the state of Kansas and 275,980 persons in the state of Missouri are living with cancer. It is estimated that there are 83,607 people in the local 10-county region and 77,000 in the five-county metro living with cancer. Additional literature cites that approximately 27% of those with a cancer diagnosis has a child aged 18 or younger in the home. 

This is where Gilda’s Club Kansas City comes in. We offer our evidence-based, professionally led program to those impacted by cancer – free of charge to participants. To keep pace with the increasing demand, we are hopeful our community can help with the following:

 

  1. Financial donations for support groups
  2. Financial donations to underwrite Educational Workshops and Healthy lifestyle classes
  3.  Financial donations to help with general operating
  4. Sponsorships of our two major 2017 fundraisers: Golf Fore Gilda in May, with sponsorships starting at $250; and, Gilda’s Night With a View in September, with sponsorships starting at $1,000.
  5. We maintain a “wish list” on our website that reflects ongoing needs of our clubhouse. Frequently listed items include gift cards to cover community meals, materials and canvases for art classes, and books of stamps. We also currently need to update many of our rooms with paint and furniture repairs.

 

Service Categories
Health Support
Support NEC
Human Services
Areas of Service
MO
KS
KS - Johnson County
KS - Wyandotte County
MO - Clay County
MO - Jackson County
MO - Platte County
KS - Lawrence
MO - Liberty
MO - Ray County
CEO/Executive Director/Board Chair Statement
In the 4 years that GCKC has been opened, more than 1500 people have visited the programs and activities 10,000 times to get support at a time when it is needed most. Everyday, we hear stories from our members about the positive impact GCKC has had on their lives, their relationships, their treatment decisions, and their quality of life.
 
When someone is diagnosed with cancer, the whole family is impacted, along with friends and co-workers.  GCKC exists to provide support to all who are impacted.  Everyone that is involved with GCKC, including members, staff and board, has a cancer story. We have all been touched by cancer in some way, either directly or through a loved one.  Kansas City has remarkable medical facilities and practitioners.  GCKC is here to complement treatment - providing a variety of support depending on the needs and desires of our family.  The entire program is provided free of charge not only because cancer treatment is a financial burden to most, but because we are creating a true community of support - one in which we want everyone to feel equal in the support the deserve and receive.  Because our programs are all offered free, one of our biggest challenges is funding.  We continue to apply for grants, make appeals to donors and build partnerships with corporations and health systems...so that no one faces cancer alone.  
 
Another challenge is making sure that people who need us, know that we are here.  We reach out to community organizations, civic groups, health care providers, and anyone else who will listen.  We continue a Tell Five program that includes business cards that describe GCKC and a request that our members and partners tell at least 5 people about us. We provide bulk mailings of our bi-monthly calendars and other materials to over 125 cancer-related health care providers and community organizations as well as direct mail to hundreds of individuals and members.  
 
No one should have to face cancer alone. GCKC is doing all we can to ensure that no one in the Kansas City area will.   
 
 
 
 
Programs
Description

GCKC support groups are offered for both those living with cancer and for families and friends, all facilitated by a licensed mental health professional. Support groups are focused on the emotional and social aspects of living with cancer throughout the entire experience, from newly diagnosed, in active treatment, in post-treatment, or end-of-life and bereavement. Consistent with best practices, GCKC support groups are 90 minutes long and led by a licensed mental health professional. The groups follow the Patient Active Model, designed and utilized by Cancer Support Community affiliates around the world. In advance of joining a support group, each member engages in a one-hour clinical interview to determine appropriateness for group participation.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer, ,
Program is linked to organization's mssion Yes
Short-Term Success

91% of participants report feeling more connected with others living with similar experiences.

Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By

To evaluate the effectiveness of the program, Gilda's Club Kansas City will assess program participation, program satisfaction and a variety of self-reported indicators related to the quality of life. To assess program participation, Gilda's Club Kansas City will track attendance and outreach efforts to ensure that benchmarks are being met. We survey participants at the end of each workshop and offer an overall member survey each year to ensure we are meeting the needs of those we serve.

Examples of Program Success

“I want to thank you for the wonderful work you do with families impacted by cancer. I am inspired by your love and concern for those dealing with the confusion, despair, and anger caused by cancer. You are also very important in helping us celebrate life. Some of the biggest takeaways for me as a member of the care givers group were to appreciate the time we have and celebrate the good times. With that, I also learned to embrace the uncertainty. Thank you and the legions of people that make Gilda’s Club a safe haven.” –Steve, GCKC Member

Description

Educational workshops are a core component of our program offerings at GCKC. As therapeutic moments and issues may arise, we have a licensed mental health professional facilitate, lead or participate in each workshop. Educational workshops provide people impacted by cancer with information related to many aspects of the cancer experience, including specific diagnosis and treatment information, post-treatment/survivorship concerns, and financial and insurance issues. Classes include a variety of topics from our Frankly Speaking About Cancer series. Healthy Lifestyle classes address exercise, nutrition, stress management, expressive arts and other mind/ body education that have been demonstrated to positively affect the experience of people who are impacted by cancer.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer, ,
Program is linked to organization's mssion Yes
Short-Term Success

  • 96% of participants report increased access to information about cancer, treatment, and side effect management.
  • 85% of participants report that they have less psychological distress.

 

Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By To evaluate the effectiveness of the program, Gilda's Club Kansas City will assess program participation, program satisfaction and a variety of self-reported indicators related to the quality of life. To assess program participation, Gilda's Club Kansas City will track attendance and outreach efforts to ensure that benchmarks are being met. We survey participants at the end of each workshop and offer an overall member survey each year to ensure we are meeting the needs of those we serve.
Examples of Program Success

“All of us that have benefited, and continue to benefit, from the assistance provided through Gilda’s Club, are eternally grateful to have this amazing resource available in Kansas City. While going through the incredible expense of cancer care and treatment, it is such a blessing to be able to attend Gilda’s Club at no cost to the participant. I know my husband and I would not be able to participate in this organization if there was a cost involved. We have benefited so much from attending Gilda’s Club, and do not know where we would be emotionally, or where we would be as a couple, if we hadn’t been able to attend the wonderful support groups available through this Club.” –Jenny, GCKC Member

Description

Noogie Nights

Noogie Nights is a weekly support group for children (ages 4+) who have been impacted by a parent or grandparent’s cancer diagnosis providing children with a safe place to relax and play while discussing the emotional aspects of their cancer journey down in Noogieland, our children’s area.

Families Connect

This is a bi-monthly program for all family members when a parent, grandparent or adult relative has cancer. An adult support group is held while children (ages 4-12) meet for support and fun in Noogieland.

Kid Support

Kid Support is a 10-week support program for children (ages 5-12) who have been impacted by cancer. The group offers children the opportunity to make friends and learn skills to help them live with the stresses of cancer. Parents take part in their own support group at the same time.

Category Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer, ,
Program is linked to organization's mssion Yes
Short-Term Success

  • 83% or more children report increased knowledge about cancer, its treatment and side effects.
  • 83% or more children report better family communication.
  • 83% or more children report that they have learned techniques for relaxation.
  • 83% or more adults report less psychological distress.
  • 83% or more adults report better family communication.
  • 83% or more adults report feeling that their children are better informed about cancer and its treatment.

 

Long-Term Success

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability, is used to determine overall level of distress of our members. We expect to see CSS ratings for those with a cancer diagnosis, at the end of the session, of 1.5 or less. (CSS rates distress on a 0 to 4 point scale, with 0 representing “no distress” and 4 representing “very seriously distressed.”)

Program Success Monitored By

Cancer Support Source™, a validated psychometric distress determinant screener, with both internal and external validity and reliability that determines overall level of distress for our members.

We will utilize CancerSupportSource®, our distress measurement tool, and a post-program member survey for both the parents and children participating in Kid Support.

Examples of Program Success

“I think Kid Support means to me that I got help to understand what was going on and to be confident in myself. Kid Support is a good resource to help kids feel comfortable and not have stress. You don't have to be worried and know that you have good peers around you. Kid Support is special.” –Sommer, age 8

“Dealing with a cancer diagnosis in your family is an incredibly difficult experience. Kid Support at Gilda's Club helped my family in more ways than we can explain. My daughter had a safe environment to discuss the issues surrounding her Mom's diagnosis. Both my wife and I experienced the support group for patients, caregivers and survivors. We were able to express our concerns and get support all under the guidance of a trained professional. Kid Support helped make sense of an unimaginable journey. I don't know how we would have coped without it.” –Joe, GCKC Member

CEO Comments
According to the Institute of Medicine report,  “Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs”:  Psychological and social problems created or exacerbated by cancer cause additional suffering, weaken adherence to prescribed treatments, and threaten patients’ return to health.

Cancer Support Community affiliates, including GCKC, offer an evidence-based program proven to work in 50 different cities. Specialized programs include Open to Options, a one-on-one treatment decision model conducted by certified counselors; Cancer Support Source, a distress screening tool that helps identify sources of stress and provides resources to assist in relieving the stress; Kid Support, a program directed at children and youth who have cancer in their family; Frankly Speaking About Cancer series of educational workshops and resource materials relating to specific types of cancers and treatments as well as other issues such as supporting loved ones from a distance, coping with the cost of care, talking to children about cancer and more.
 
The mission of Gilda's Club is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community....so that no one faces cancer alone.  
 
As we grow the program to meet the needs of our current members as well as reach more in the community, we rely on paid mental health professionals and volunteer experts throughout the community.  We are fortunate to have very strong relationships with the medical community.  They provide us with many referrals as well as speakers and experts. We also rely on other specialists in the community - including artists, comedians, nutritionists, writers, meditation facilitators, and so on. 
 
Gilda's Club closely monitors all expenses and donations and is grateful for the generous donors who ensure that we can continue to offer free programs to all impacted by cancer...so that no one faces cancer alone.  
Executive Director/CEO
Executive Director Siobhan McLaughlin-Lesley
Term Start Oct 2016
Experience

Siobhan McLaughlin Lesley has over two decades of experience in providing marketing communications leadership to some of Kansas City’s most successful and visible marketing communications companies, as well as civic and arts organizations.

Prior to joining Gilda’s Club Kansas City, Siobhan served as vice president and director of client services at Walz Tetrick Advertising and served as president and COO at Valentine Radford.

Siobhan also serves on the Board of Directors of The Kansas City Ballet, Goodwill Industries of Western Missouri and Eastern Kansas, The Health Care Foundation’s Community Advisory Committee and Kansas City Friends of Alvin Ailey. She is also a trustee of Pembroke Hill School and serves on the Parents’ Association Arts Council.

Siobhan has her master’s degree from the University of Kansas and a bachelor’s degree from Vanderbilt University in Nashville, Tennessee.

Co-CEO/Executive Director
Term Start
Compensation Last Year
Former CEOs
NameTerm
Gail Nichols June 2012 - Dec 2011
Senior Staff
Title Program Director
Staff
Paid Full-Time Staff 3
Paid Part-Time Staff 3
Volunteers 225
Paid Contractors 2
Retention Rate 100%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
We have forged collaborative relationships with the oncology community and other nonprofits in the Kansas City community, including Saint Luke's Health System, Truman Medical Center, North Kansas City Hospital, Children's Mercy Hospital, Cancer Action, Turning Point, Leukemia and Lymphoma Society, K.C. Oncology Nursing Society, Bloch Cancer Foundation, Susan G. Komen for the Cure, Young Survivor's Coalition, Ronald McDonald House Charities. We work closely with all health systems in the area.
Affiliations
AffiliationYear
Nonprofit Connect of Greater Kansas City2007
Government Licenses
Is your organization licensed by the government? Yes
CEO Comments We have expanded community relationships to include North Kansas City, Southern Johnson County, and Eastern Jackson County.  
Board Chair
Board Chair Chuck Etherington
Company Affiliation American Century Investments
Term Feb 2015 to Feb 2018
Email chuck_etherington@americancentury.com
Board Members
NameAffiliation
Erwin Abrams Retired Healthcare Professional
Pamela Bruce Community Volunteer
Chuck Etherington American Century Investments
Susan Jackson BMO Harris
Salli Katz Community Volunteer
Theresa Leinwetter University of Kansas Cancer Center
Ashley Leuck CPABKD, LLP
Frank Lipsman Kreamer Kincaid Taylor Lipsman Parks & Arney, LC
Mike Mohlman Smith Mohlman LeRoy, LLC
Beth Nay Elizabeth Drill Nay Law Office L.L.C.
Bridget Romero Lathrop and Gage
Doris Royals Community Volunteer
Michelle Smith Smith Group, Inc
Steve Swanson Centric Projects
Shari Weyrauch Smart Cookies Bakery
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 6
Female 9
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Board Governance
Marketing
Executive
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Finance
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Advisory Board Members
NameAffiliation
Mary Calys PT, DPTNorth Kansas City Hospital
Joan M.T. Collison MDUniversity of Kansas Medical Center
Meagan L Dwyer PhDUniversity of Kansas Cancer Center
Caroline Gill LMSW, LCSWChildren's Mercy Hospital
Cathy Glennon RN, MHS, OCN, NE-BCUniversity of Kansas Cancer Center
Stephanie Graff MDSarah Cannon at Research Medical Center
Julie C Holding MDUniversity of Kansas Medical Center
Roy A Jensen MDUniversity of Kansas Cancer Center
Andrea Jewell MDUniversity of Kansas Cancer Center
Colleen Johnson RN, CBPNSt. Joseph Medical Center
Rhonda Johnson PhDSaint Luke's Cancer Center
Hope Krebill RN, BSN, MSWMidwest Cancer Alliance
Sharon Lewis DNP, APRN-NP, AOCNPUniversity of Kansas - Clinical Research Center
Jaime Orlich Shawnee Mission Cancer Center
Yvette Rees LSCSWSarah Cannon at Overland Park Regional Medical Center
Erin Shonkwiler APRN-BC, AOCNUniversity of Kansas Cancer Center
Christoper Sirridge MDUniversity of Kansas Cancer Center
Sherry Woods Phoenix Hospice
CEO Comments The board is continuing to transition from a working board who accomplished the day-to-day operations prior to having a full staff, to a board more focused on governance and policy.  We have added diversity in terms of geography, community representation, skill set, and so on, but continue to struggle to accomplish racial diversity.  The board is committed, energetic and enthusiastic!  
 
 
Financials
Fiscal Year Start Jan 01, 2017
Fiscal Year End Dec 31, 2017
Projected Revenue $455,150
Projected Expenses $458,120
IRS Letter of Exemption
Foundation Comments
  • FY 2014, 2013, 2012:  Financial data reported using IRS Form 990.  
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
Expense Allocation
Fiscal Year201420132012
Program Expense$325,462$296,520$273,786
Administration Expense$41,616$65,323$55,541
Fundraising Expense$35,158$14,345$22,403
Payments to Affiliates----$0
Total Revenue/Total Expenses0.701.110.70
Program Expense/Total Expenses81%79%78%
Fundraising Expense/Contributed Revenue16%3%11%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$285,698$406,893$359,055
Current Assets$272,722$387,880$333,377
Long-Term Liabilities$0$0$0
Current Liabilities$16,058$14,905$9,346
Total Net Assets$269,640$391,988$349,709
Short-Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities16.9826.0235.67
Long-Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountAmerican Century Investments $35,000 -- --
Second Highest Funding Source & Dollar AmountEducate, Enrich & Enable Fund $25,000 -- --
Third Highest Funding Source & Dollar AmountAmeristar Casino Kansas City $20,000 -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years Yes
Organization Comments
 As an affiliate of the Cancer Support Community CSC, we have the strength of CSC's research, outstanding educational materials, and resources to use here in Kansas City.  As our model is to offer our program completely free of charge, we must raise all of the dollars it takes to provide the staff, the facility, the materials and the programs.  The benefit is that all of the money raised is used directly in our community.  Our challenge is  to continue to diversify our portfolio of individuals, corporations, local businesses and foundations and be less reliant on event funds. 
 
We ended 2016 with a slight deficit, which is attributed to program growth needs outpacing donations. In 2017, we expect to realize a balanced budget as we implement the marketing and development plan created by our new Executive Director, Siobhan McLaughlin-Lesley, staff, and board.
Organization Name Gilda's Club Kansas City
Address 21 W. 43rd Street
Kansas City, MO 641111804
Primary Phone (816) 531-5444
Contact Email info@GildasClubKC.org
CEO/Executive Director Siobhan McLaughlin-Lesley
Board Chair Chuck Etherington
Board Chair Company Affiliation American Century Investments
Year of Incorporation 2006
Former Names
Friends of Gilda's Kansas City