National Parkinson Foundation Heartland
8900 State Line Road
Suite 320
Leawood KS 66206-1936
Moving Day Walk for Parkinson's Team "Dancing with Dorothy"
Web and Phone Contact
Telephone (913) 341-8828
Mission Statement

The mission and vision of the Heartland Chapter of the  National Parkinson Foundation Heartland is to make life better for people with Parkinson's through expert care and treatment. Everything we do helps people actively enjoy life with their friends, families, children and grandchildren until there is a tomorrow without Parkinson's.

Leadership
CEO/Executive Director Ms. Jane Ann Gorsky
Board Chair Mr Graham Smith
Board Chair Company Affiliation Gould Evans
History and Background
Year of Incorporation 1981
Former Names
Parkinson Association of Greater Kansas City
Parkinson Foundation of the Heartland
Financial Summary
 
 
Projected Revenue $443,500
Projected Expenses $420,091
Statements
Mission Statement

The mission and vision of the Heartland Chapter of the  National Parkinson Foundation Heartland is to make life better for people with Parkinson's through expert care and treatment. Everything we do helps people actively enjoy life with their friends, families, children and grandchildren until there is a tomorrow without Parkinson's.

Background Statement
The Parkinson Foundation of the Heartland was established in 1981 as the Parkinson Association of Greater Kansas City. The organization was founded to raise awareness of Parkinson's disease, to help find its cause and cure; and to provide education and support to patients, their families and caregivers.
 
Parkinson's disease is a progressive neurological-degenerative brain disorder that results in loss of motor control and coordination. 
 
Initially, the organization focused on raising money in support of a cure and for clinical services. In 1999, the organization began to initiate new and exciting educational and support programs and hired its first Executive Director. By 2003, the organization hired its second full time employee and took on additional space to further serve the needs of people with Parkinson's and those who love them.
 
In March 2013, the local chapter unified with its national organization and is now called the Heartland Chapter of the National Parkinson Foundation.  The chapter includes onsite wellness/exercise classes, a wellness and resource center, three full-time and one part-time staff, and five active board committees and a 13 member board of directors. 
 
The focus of the organization is to make lives better for people with Parkinson's through expert care and research and a community approach to providing outreach and education.  
Impact Statement
Past year accomplishments include: 
  • Served 3, 867 people with Parkinson's through wellness/exercise classes held four days a week onsite.
  • Served 1,880 people with Parkinson's and their caregivers through 9 metro area support groups.  Served another 2,790 through 34 additional support groups throughout our service area (state of Kansas and Western Missouri).  Total of 43 support groups.
  • Reached 1,300 people with information about Parkinson's disease and the resources offered by our foundation through new client packets, regional symposia and health fairs.
  • Doubled active community partnerships from 75 to 150.
  • Moving Day Walk  Kansas City 2016 more than doubled its gross proceeds over 2015: from $85,896 to $195,556.
 
Top Three Goals for Year:
  • Increase awareness about disease and services/resources offered by Heartland Chapter.
  • Initiate major gifts  and  monthly giving programs.
  • Increase number and participation of Friend and Family Teams for Moving Day Walk Kansas City 2017.
Needs Statement
  1. Corporate and family walk teams and solicitors for annual Moving Day Walk -- June 10, 2017
  2. Administrative, event and board committee volunteers.
  3. Financial support for our wellness program: $15,000
  4. Financial support for our support group program: $10,000
  5. Financial support for our PD Friendly Fitness Training:  $5,000
Service Categories
Specifically Named Diseases
Patient & Family Support
Neurology & Neuroscience Research
Areas of Service
MO
KS
CEO/Executive Director/Board Chair Statement
We are proud and  happy that we successfully completed our legal unification with our national organization, the National Parkinson Foundation. In fact, we have already experienced the benefits of economy of scale in backroom and HR assistance as well as in the sharing of resources, ideas and expertise in the areas of programming, marketing and fundraising. We are excited about the benefits that this unifcation has afforded us, particularly the ability to focus even more on what is important: providing needed support and resources to people with Parkinson’s, their families and their caregivers, while building the friend and donor base necessary to support those efforts.
 
And we couldn’t be prouder of what we accomplished last year! We had a 19% growth in the establishment of new support groups, 100% growth in the number of PD Friendly exercise options from 43 to 86 throughout the metro area because of new training offered, doubled the number of community partners who help us deliver on our mission, and more than doubled our growth in net proceeds from our annual Moving Day Walk for Parkinson’s over last year’s event. It was quite a year!
 
As the new president of the NPF Heartland Chapter Board, I couldn’t be more excited about our plans and goals for the coming year. We hope to build on last year’s success in thoughtful and deliberate ways to ensure our continued growth. With the help of our committed board members, dedicated staff and YOU --passionate volunteers, people with Parkinson’s, caregivers and family members – we can truly make life better for everyone we serve in the Heartland.
Programs
Description People with Parkinson's disease attend the Wellness Program which is offered four times per week at our State Line Road facility. Activities include 1 hour of seated exercise led by an professional instructor (four days a week); 1/2 hour lunch and 1 hour of social/activity time which may include activities such as cognitive games, occupational therapy activities or recreational therapy (Tuesdays and Thursdays only).  Caregivers are encouraged to use this time for respite.  Once per month, caregiver support groups meets at the same time.  Programs are free, with donations accepted for lunch.  
Category Diseases, Disorders & Medical Disciplines, General/Other Parkinson Disease
Population Served People/Families of People with Health Conditions, People/Families with of People with Disabilities,
Short-Term Success
Additional wellness classes will be added in the KC Metro area in response for increased demand.  New programs will address target populations and interests such as young on-set, voice, choir, dance and art.  Partnerships will other neurological disease organizations will allow a variety of classes.  Feedback from participants and family members will determine changes in progression of the disease. 
Long-Term Success
Attendance will continue to increase in core classes as well as additional programs throughout communities throughout the service area and additional specialty classes (aimed at different stages of the disease). 
Program Success Monitored By
Attendance is monitored and follow-up calls are made to participants who have not attended for more than 2 weeks.  Instructor, participants and family members is sought to determine if progression has slowed or movement has improved. 
Examples of Program Success
Attendance and feedback are our best indication that the program is working.  Instructor feedback and family feedback are used regularly.  For instance, Boxing Class was added to include a wider demographic - from early and young-onset to progressed disease.  The instructor consistently monitors progress and talks with family members and participants and can confidently report that all persons taking boxing have noticed an improvement in balance, coordination and movement!
Description Resources to and support of 43 support groups throughout Kansas and Missouri.  Support group facilitator training and resources are also  provided.  We facilitate several groups directly while supporting others through training and resources. We also provide assistance and programs, such as Program in a Box PD 101 and  Aware in Care Hospitalization kits to groups as requested.  
Category Diseases, Disorders & Medical Disciplines, General/Other Parkinson Disease
Population Served People/Families of People with Health Conditions, People/Families with of People with Disabilities,
Short-Term Success Six new support groups will be added in Kansas and Missouri this year, with each facilitator being trained.  Attendance in existing programs will grow.  
Long-Term Success An increased number of People with Parkinson's disease and their care partners will attend the support groups and related programs on a regular basis.  This includes adding groups to areas that are currently un- or under-served and increasing awareness so that people know they exist.  All facilitators will attend training on an annual basis. 
Program Success Monitored By Progress will be monitored by:  attendance at support group facilitator training annually, number of facilitators that open and click on electronic newsletter, participant attendance on an on-going basis, number of groups offered.   
Examples of Program Success We continue to add new programs where none existed previously.  Support groups are expanding to include educational programs, wellness programs, and other interests.  
Description
Motivating Moves is an exercise DVD that the foundation markets to allow persons with Parkinson's disease a seated exercise program for home use.  Exercise is an important element is slowing the progression of the disease and in enhancing quality of life. 
Category Diseases, Disorders & Medical Disciplines, General/Other Parkinson Disease
Population Served Adults, People/Families of People with Health Conditions, People/Families with of People with Disabilities
Short-Term Success
Facilities will continue to train employees through the Parkinson Care Series leading to better care. 
 
Individuals will continue to exercise at home, as needed, to slow the progression of the disease. 
Long-Term Success
PCS DVDs - Professional caregivers working in senior and rehabilitation settings will be trained to deal with the special challenges that come with PD. Facilities will offer an interdisciplinary approach (speech therapy, occupational therapy, physical therapy, exercise, etc...) resulting in better care for persons with Parkinson's disease.
 
Individuals will exercise at least 2 times per week at home using Motivating Moves - slowing the progression of the disease and increasing movement functions. 
Program Success Monitored By
PCS DVDs - We offer CEUs to professionals who apply, which allows us to monitor their learning.  We also track facilities that use the program to assess use and progress. 
 
Motivating Moves - Monitored by sales, word of mouth and other feedback and referrals. 
Examples of Program Success
The Manhattan, KS Parkinson's disease program used the PCS series several years ago and continue to enhance their program - with speech therapy, brain gym, boxing, exercise, and educational resources.   Other programs are doing similar programming.  
Description
The Heartland Chapter sponsors and/or supports one or more educational symposia each year. Approximately 1,500 patients, caregivers and health care professionals from throughout Kansas and Missouri learn about the latest research, treatments, programs and issues related to Parkinson's disease through these opportunities annually.  
Category Diseases, Disorders & Medical Disciplines, General/Other Parkinson Disease
Population Served People/Families of People with Health Conditions, People/Families with of People with Disabilities, People/Families with of People with Disabilities
Short-Term Success

At the end of each Symposium, 90% of all participants will indicate that the Symposium was beneficial and will enhance quality of life.  At least 200 participants for Symposium outside KC Metro area, and at least 900 for Symposium in the KC Metro area.  At least 200 will be served through other community programs and 1000 educated on hospitalization issues through the Aware in Care program.  

Long-Term Success
Patients and caregivers who attend symposia and educational programs will improve quality of life through better treatments, better access to resources, information sharing and network, increased awareness of programs and support within communities. 
Program Success Monitored By

Written evaluations and number of participants in local programs before and after each program.  Number of calls or requests for information received after each program.  Number of requests for Aware in Care hospitalization kits.  

Examples of Program Success
In 2014-15 NPF Heartland sponsored a symposium called Caring for the Caregiver for the first time in KC which drew over 50 family and professional caregivers. The purpose was to provide caregivers with an up-to-date overview of Parkinson's Disease, care and treatment and to provide information and resources related to management of long-term grief, self-care and legal issues related to long-term chronic illness. The two educational symposia NPF Heartland supported with educational materials and booth related to Parkinson's Disease and resources provided by NPF Heartland in 2014-15 were the annual symposiums sponsored by KU Medical Center which drew 950 people attendees and the University of Missouri Columbia Hospital which drew 400 attendees.
 
In addition, we offered programs, such as the Parkinson's Disease 101 presentation which we delivered to 125 people in three different locations throughout our service area, and our Aware in Care hospitalization kits on the community level. We have distributed over 3,000 Aware in Care kits over the past three years in conjunction with our educational programs educating people on the issues related to hospitalizations for people with Parkinson's.
Description
Support groups, exercise and educational programs are offered throughout Kansas and Missouri using professional and volunteer support.  They are held at a variety of facilities including senior living centers, faith communities, and fitness centers.  Many are held in conjunction with support groups for persons with Parkinson's disease as well as caregivers. 
Category Health Care, General/Other Health Diagnostic, Intervention & Treatment Services
Population Served People/Families of People with Health Conditions, People/Families with of People with Disabilities,
Short-Term Success
Five new programs will be built in the coming year, including training for facilitators and mini-grants to assist with start-up costs. 
Long-Term Success
Persons with Parkinson's disease and their caregivers located outside the KC Metro area will participate in support and wellness programs to increase their awareness and understanding of the disease, and the steps needed to slow the progression of the disease and/or enhance quality of life.  Kansas City is the only area in Kansas, and one of the few in Missouri that currently has a neurologist specializes in Movement Disorders.  People in rural areas are under-served in many ways that increase programming will help. 
Program Success Monitored By
Number of new programs and attendance will be monitored to determine usage.  Evaluations will be conducted with participants to gauge effectiveness. 
Examples of Program Success
In 2014-15 we held three such presentation events reaching 125: one at the Kansas City Regional Home Health Care Association monthly program here in KC; one at Meadowlark Hills Retirement Community in Manhattan, KS and one at the downtown public library in Manhattan, KS. 
CEO Comments
Parkinson's disease is a degenerative neurological disease that impacts not only the person who has the disease, but his or her family, friends, and co-workers.  It changes the roles of family members, causes people to leave their jobs prematurely, and affects quality of life.  Our mission is to make life better for people with Parkinson's through expert care and research..
 
With the changes made by new new leadership over the past three  years and the unification with its national organization just this past March, the Heartland Chapter is restructuring itself to move to the next level of its development by building and cultivating strategic relationships, seeking out innovative community partnerships, sharing the results of National Parkinson Foundation's ground-breaking Parkinson's Outcomes Project and exploring new ways to raise visibility, friends and funds so that more people will know of our important work.  It is our hope to provide support to all who need it! 
Executive Director/CEO
Executive Director Ms. Jane Ann Gorsky
Term Start Oct 2013
Experience
Jane Ann Gorsky has over 30 years experience in the nonprofit sector at the local and regional levels in the areas of fundraising, marketing, volunteer management, board development and nonprofit leadership. Most recently she served as Executive Director of St. Joseph Institute for the Deaf -- KC Campus where she directed and oversaw for a $1M sponsored organization with 12 employees. Prior to that she provided annual fund and capital campaign consulting services to small and mid-size nonprofits for 10 years and held executive leadership positions in fundraising/marketing/donor relations at the University of St. Mary, Greater KC Community Foundation and Heart of America Boy Scout Council.
Former CEOs
NameTerm
Ms. Meg Duggan 2003 - June 2010
Angela Lawrence Nov 2010 - June
Staff
Paid Full-Time Staff 3
Paid Part-Time Staff 1
Volunteers 100
Paid Contractors 0
Retention Rate 100%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Yes
Management Succession Plan Under Development
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Government Licenses
Is your organization licensed by the government? No
CEO Comments

As part of the National Parkinson Foundation now, the Heartland Chapter has extensive services now available that it did not have before such as HR, all backroom services, marketing, and fundraising support.  This allows the chapter staff and board to concentrate on raising friends and funds to expand programming to all who need it in our service area.  The benefits of this leveraging have already been experienced and will continued to helps us move to the next level in our growth and sustainability as a chapter.

Board Chair
Board Chair Mr Graham Smith
Company Affiliation Gould Evans
Term July 2016 to June 2017
Email graham.smith@gouldevans.com
Board Members
NameAffiliation
Ms. Suzanne Dimmel CCIMCassidy Turley
Mr. Brian Donawa Dept. of Pathology and Laboratory Med, KU
Mr. Arthur Kent Donley Edward Jones
Ms. Denise Franklin ReeceNichols
Mr. Rick Kastner Blue Cross Blue Shield of Kansas City
Mr. Mark Kolkhorst ADM Milling
Ms. Susan Melton St. Luke's Heart Institute
Mr. William (Bill) Moler Tallgrass Energy LP
Mr. Ross Simpson Colliers
Mr. Graham Smith Gould Evans Associates
Mr. Doug West Synergy HomeCare of Overland Park
Mr. David Wurth Comfort Keepers
Mr. Phillip Zaman CPACBIX MHM, LLC
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 12
Hispanic/Latino 1
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 10
Female 3
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 90%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 10
Standing Committees
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Board Development / Board Orientation
Community Outreach / Community Relations
CEO Comments
The chapter is a well-managed and fiscally responsible organization, shepherded by a strong and committed Board of Directors. Our Board members represent some of Kansas City's finest corporations and businesses. Our directors are deeply committed to our cause, as demonstrated by their financial participation and board meeting attendance, and provide the support and guidance needed for our organization.  
 
Challenges we face are similar to most nonprofits:  raising awareness about their mission and services; expanding program outreach, expanding our volunteer and donor base. A Mission Outreach Committee has just been formed and members recruited to address the first two issues while a Board/Volunteer Development Committee has been established to address growing our volunteer base.  Both a newly organized Fund Development Committee and Major Gifts Program have just been initiated to grown our funding base.
 
 
Financials
Fiscal Year Start July 01, 2016
Fiscal Year End June 30, 2017
Projected Revenue $443,500
Projected Expenses $420,091
Foundation Comments
  • FYE 8/31/2014, 2013, 2012:  Financial data reported using IRS Form 990.  
  • Foundation/corporate revenue line item may include contributions from individuals.
Detailed Financials
Expense Allocation
Fiscal Year201420132012
Program Expense$179,880$164,961$246,667
Administration Expense$49,334$50,578$73,130
Fundraising Expense$62,551$75,543$50,362
Payments to Affiliates--$0$0
Total Revenue/Total Expenses1.041.030.75
Program Expense/Total Expenses62%57%67%
Fundraising Expense/Contributed Revenue22%26%20%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$130,650$130,451$88,786
Current Assets$126,866$121,679$76,974
Long-Term Liabilities$0$0$0
Current Liabilities$26,194$36,902$4,282
Total Net Assets$104,456$93,549$84,504
Short-Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities4.843.3017.98
Long-Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountKCP&L $50,000KCP&L $50,000 --
Second Highest Funding Source & Dollar AmountUMB Bank $10,000Blue Cross Blue Shield $10,000 --
Third Highest Funding Source & Dollar AmountLockton Companies $10,000UMB Bank $10,000 --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years No
Organization Comments
This past year (FY 2015-16) was one of great success and changes:
  • Our annual Moving Day Walk (TM) Kansas raised over $218,000 gross profit  for a 117% increase over what was raised last year.  This was due to an increase in teams (from 65 to 121) and team solicitation.  An emphasis on recruiting more corporate teams to participate in the annual walk, achieving best practice ROI on our special events, and a more  efficient and comprehensive approach to fund-raising by a full-time fund development professional with volunteer recruitment and development experience has made a real impact on our fundraising efforts.  In addition we now have the assistance of a regional major gifts director who is assisting local staff initiate its first-ever major gift cultivation program.
  • As a result of our unification with our national organization, we have also solved our database conversion issues (from four to one platforms).  All of our data is now in Raiser's Edge or Illuminate,both Blackbaud products that more easily interface with each other. 
  • We also hired a full-time Program Manager this year who not only grew program participation  (doubling our community partnerships and growing our onsite programs by an average of 15%), but assisted in growing event income growth as well. 
  • And finally our PT Office-Social Media Manager more than doubled our postings on FB and twitter and was responsible for  updating and enhancing our website.  
Organization Name National Parkinson Foundation Heartland
Address 8900 State Line Road
Suite 320
Leawood, KS 662061936
Primary Phone (913) 341-8828
Contact Email jgorsky@parkinson.org
CEO/Executive Director Ms. Jane Ann Gorsky
Board Chair Mr Graham Smith
Board Chair Company Affiliation Gould Evans
Year of Incorporation 1981
Former Names
Parkinson Association of Greater Kansas City
Parkinson Foundation of the Heartland