National Multiple Sclerosis Society Mid America Chapter (Declined to Update)
7611 State Line Road
Suite 100
Kansas City MO 64114
Contact Information
Address 7611 State Line Road
Suite 100
Kansas City, MO 64114-
Telephone (913) 432-3927
Fax (816) 361-2369
Email info@nmsskc.org
Mission Statement

 The National MS Society's vision is a world free of MS.

The Society's mission statement is: We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

 

Leadership
CEO/Executive Director Ms. Kay Julian
Board Chair Mr. David Dickey
Board Chair Company Affiliation Cerner Corporation
History and Background
Year of Incorporation 1955
Financial Summary
 
 
Projected Revenue $4,397,703
Projected Expenses $4,366,606
Statements
Mission Statement

 The National MS Society's vision is a world free of MS.

The Society's mission statement is: We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

 

Background Statement The Mid America Chapter began in 1955 as the Kansas City Chapter with one staff member working out of his home. By 1982, the Chapter had grown large enough to move to its current address and established the Ozark and St. Joseph branches. By 1985, the name was changed to the Mid America Chapter and in 1990, the Chapter merged with the Eastern Kansas Chapter. In 2010, the remaining counties in Kansas were consolidated into the Mid America Chapter. In 2011, the former Nebraska Chapter was incorporated into the Mid America Chapter. The Chapter, including the Kansas City, Springfield, Wichita and Omaha branches, currently serves 253 counties in Kansas, Nebraska and western Missouri, offers programs and services to over 50,000 individuals who are affected by MS and annually raises over $4 million to find a cure and achieve our vision of a world free of MS.
Impact Statement

Due to territory expansions in 2010 and 2011, the size and scope of our Chapter had doubled as we began our 2012 fiscal year. A great deal of groundwork had been done to learn more about our new territory and how we could best deliver on our mission.  We analyzed the current state against our desired state in program delivery, advocacy, volunteer engagement, fundraising, infrastructure and other key areas and identified gaps to address in our plans. We went through a visioning process in 2012 that invited input from all staff, chapter and city board members to the question, "When the Mid America Chapter is at its best, what does it look like?"  We categorized the answers then held a board and senior staff retreat to address they key areas of program delivery, volunteer engagement, awareness, and revenue development.  Ideas were further developed and refined and incorporated into our FY2013 plan. We developed goals, metrics and a tracking mechanism to report on our progress in each of these areas.   

 

Goals for the current year are to:

  1. develop a three year revenue plan to maximize our market areas and overall revenue growth
  2. meet or exceed our 2013 revenue budget
  3. increase volunteer engagement by 5% and volunteer leaders by 7%
  4. capture the impact of our programs by using outcomes measures and then to communicate this impact more clearly
  5. increase awareness of the multiple sclerosis and MS

 

Needs Statement

 Our five most pressing needs are:

  1. Marketing/PR resources to bolster our marketing, PR, awareness and social media efforts
  2. Additional social work support to expand our care management program and assist us in providing direct assistance and leveraging community resources
  3. Additional advocacy staff and volunteer support to increase our presence and impact in Kansas, Missouri and Nebraska advocacy
  4. Additional volunteers to partner for committees, projects and initiatives
  5. Increased revenue to expand mission delivery

 

Service Categories
Specifically Named Diseases
Emergency Assistance (Food, Clothing, Cash)
Unknown
Areas of Service
MO - Jackson County
MO - Clay County
MO - Platte County
MO - Eastern Jackson Co
MO - Jackson County Urban Core
MO - Liberty
MO - Ray County
KS
NE
MO
CEO/Executive Director/Board Chair Statement

 As FY2012 started, we began as a chapter with a much larger service area and significantly larger constituent base - people with MS, caregivers, medical professionals, event participants, donors, volunteers and sponsors.  We began implementing the plans we had put into place that included a new staff and governance structure and we connected a variety of constituents to each other and to the MS Society.  Although the implementation went very smoothly, we did not see the fundraising growth for which we had planned.  Although a good base of relationship building and best practices was built, we realized that the revenue growth we anticipate will take longer. For FY2013, we have introduced some additional revenue streams and are in developing a three year pro-forma to address how we can grow revenue in our most promising markets. We were able to expand our presence through hosting Talk MS programs in many communities, providing support for self-help groups and building relationships with health care professionals throughout our territory.  Advocacy efforts in Missouri, Kansas and Nebraska received a new focus as we developed a coordinated approach to our state advocacy efforts and committed additional support.  This was the first year of our new governance structure and we were pleased to see that the division of chapter board fiduciary and governance duties from the city board duties of community connections and presence worked well and created a great deal of local volunteer engagement.  As part of a visioning process in 2012 that involved the staff, chapter and city boards, we identified some key areas in which to make an impact.  These areas - increasing revenue, increasing awareness, increasing volunteer engagement, capturing and communicating the impact of our work and becoming an organization of choice are guiding our work this year. We have developed metrics for each area and a dashboard to share progress with staff and leadership volunteers.

 

Programs
Description Care Management is a system by which the Chapter provides intensive and individualized care for people with MS. On-site social work professionals help clients with issues necessitated by their multiple sclerosis, such as help with housing, transportation, access to medical care, assistance with insurance and Social Security issues and family support. Under Care Management, direct assistance is provided to people with MS through financial assistance in a crisis related to their MS, or through medical equipment to help them maintain mobility and independence. Clients must complete an application and/or staff assessment to receive these services, and financial assistance is always provided to a third-party vendor. Medical equipment is dispensed either on a short- or long-term loan basis, through the Chapter’s partnerships and collaborations with community vendors.
Category Health Care Patient & Family Support
Population Served Disabled, General or Disability Unspecified, General Public/Unspecified, Physically Disabled nec
Short-Term Success Short term success for this program will be demonstrated by recipients reporting: successful Social Security applications; successful resolutions in the areas of housing, transportation, and medical care; appropriate care and support for families; overall mental health and successful coping mechanisms; and ongoing independent living.
Long-Term Success As a result of Care Management, people with MS will live as independently as possible, and with the dignity of self-sufficiency. People with MS do not wish their lives to be “about” their multiple sclerosis, so as care management helps them manage the hurdles and crises of their disease, they can go about the other matters that are important to them, such as employment, parenting, and community involvement.
Program Success Monitored By This program was established in 2006 as a direct result from the feedback we received from clients and under the direction of our Board of Directors. It is through constant client feedback that we can assess the program strengths and weaknesses. This program is not a one-size-fits all model. Our outcomes are measured on an individual basis. We are currently in the process of formulating a formal outcomes measurement evaluation.
Examples of Program Success Since inception the program has served more than 500 people living with MS, including securing accessible and affordable housing for several. Our social work professionals field approximately 200 calls per month, providing individualized service to each client, with several successes in the areas of Social Security, access to community resources and support, and overall mental health. Our Chapter is working alongside 50+ other MS Society Chapters throughout the United States under the direction of the National Office to develop a formal outcomes measurement plan that collects/reports both individualized and global outcomes data.
Description The MS Society co-sponsored two accessible housing apartment complexes (One in Topeka and one in Kansas City, Kansas) in collaboration with Accessible Space, Inc. to ensure affordable and accessible housing in our community. These complexes have 20 living units that are primarily funded through HUD Section 811. These apartments are designed for people with MS or with another qualifying disability, and they are also based on income eligibility. The MS Society provides care management services at both apartment complexes. Our goal is to develop additional long term care projects and partnerships to support people with more progressive MS who are unable to stay in their own homes.
Category Health Care, General/Other Patient & Family Housing
Population Served Other Health/Disability, ,
Short-Term Success Our clients are able to housing options that meet their needs in terms of accessibility and independence, which in turn, enhances their quality of life.
Long-Term Success Long-term success would be providing affordable, accessible housing options for all people in need with multiple sclerosis.
Program Success Monitored By We continue to have communication with the residents of the apartment complexes through our Care Management program. In addition, we have a long term care committee who meets regularly to address current needs and possibilities in this arena.
Examples of Program Success We successfully opened two accessible apartment complexes in the Fall of 2006.  We offer housing in 20 living units to people with MS or other qualifying disability. 
Description Self-help groups bring together people who share a common life experience, for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. Information about the self-help groups in our area can be found on our web site: www.msmidamerica.org or by calling 913-432-3927.
Category Health Care Patient & Family Support
Population Served General Public/Unspecified, Disabled, General or Disability Unspecified, Physically Disabled nec
Short-Term Success Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. The benefits of self-help groups to their members include: •Learning new information and strategies for confronting problems. •Finding reassurance and support from others with similar life experiences. •Developing personal insights and achieving personal growth. •The opportunity to be helpful to others. •Feeling less isolated. •Learning to express feelings better and to be more sensitive to the feelings of others. •Feeling empowered and more self-confident in coping with challenges. •Developing a connection to a community and personal identification with a social group.
Long-Term Success Individuals with Multiple Sclerosis have access to a self help group where they can receive emotional support, identify solutions to challenges and learn about resources in their community so they can improve their quality of life.
Program Success Monitored By In 1998 the National MS Society convened the NMSS Self Help Group Task Force. The charge to the task force was to develop guidelines and recommendations that would strengthen affiliations between self-help groups and NMSS chapters and maximize the efficacy of the groups. The outcome of their work was the development of National MS Society Self-Help Group Standards, Self-Help Group Leader training materials, and a tele-training program that was implemented in early 1999. These outcomes underscore the importance the Society places on the role of self-help groups and on the need to nurture positive relationships between groups and NMSS chapters. The Mid America Chapter employs a program manager who maintains the self-help group support network throughout the chapter territory that reflects the NMSS standards for self-help groups. The program manager also provides support, orientation and training for group leaders, distributes a quarterly newsletter.
Examples of Program Success The Mid America Chapter has 24 self help groups spread throughout the market area; 10 in the Kansas City Metro area. Leaders from all metro groups attend at least one training annually and receive monthly newsletters containing information on upcoming events, resources for members and tips for successful meetings. All groups hold monthly meetings and average a minimum of 8 people at meetings.
Description Our advocacy efforts are intended to increase awareness of MS and the MS Society among members of the legislative and executive branch in Kansas and Missouri. Our goal is to garner attention and support for bills and programs that promote access to services and increase quality of life for people with MS.  
Category Health Care, General/Other Health Care Issues
Population Served Other Health/Disability, ,
Short-Term Success

Our objectives are to increase volunteer engagement on our state advocacy committees, in action alert and in other advocacy initiatives, to identify key issues/bills and legislators on which to focus our efforts and to develop and communicate our targeted legislative agenda.

Long-Term Success Our long term success would be achievement in the areas of the National MS Society's Healthcare Reform principles: accessible, affordable, comprehensive quality health care services and coverage for all, access to high-quality long-term supports and services, standards for coverage of specific treatments, increased value of health care and elimination of disparities in care.
Program Success Monitored By
We measure our success by the awareness of MS and the MS Society and the support received from various legislators as well as ultimately the status of the issues/bills for which we have advocated.
 
 
Examples of Program Success An example from our Missouri advocacy efforts is our successful passage of the donation checkbox to benefit MS on Missouri state income tax returns.  We collaborated with several other agencies to have a donation checkbox placed on Missouri state returns. Not only does this option increase awareness but raises additional funds as well.
Description
This program provides scholarships for college bound students who have MS or have a parent with MS.  As part of their application process, they write an essay describing the impact on their lives.  Often, a scholarship and the opportunities it represents are life-changing to these applicants.  In partnership with ACT, we solicit and screen applicants and award scholarships annually. In the seven year history of this program, we have found that our scholarship recipients often come back to volunteer or intern with us, serve on the scholarship review committee and help us connect with their college/university and engage additional student volunteers.
 
Category Education, General/Other Student Financial Aid
Population Served Other Named Groups, ,
CEO Comments We continue to provide a broad array of programs and services to people affected by MS along the disease continuum from those newly diagnosed to those with more progressive MS.  We also provide programs and services not only to those with MS but their family members and care partners.  We continue to be recognized by our National office for providing high quality programs and services.  We are also increasingly focusing on advocating to Missouri, Kansas and Nebraska legislators on issues of importance to people with MS.  One of the biggest challenges is delivering this broad spectrum of programs and services throughout our very large geographic service area. 
Executive Director/CEO
Executive Director Ms. Kay Julian
Term Start May 1991
Experience
Kay Julian was selected to be the President in 1993. She joined the MS Society in 1991 as Director of Development. Kay's previous career experience includes Director of Marketing, Mid America Rehabilitation Hospital; Director of Marketing, Charter Hospital of Overland Park and Senior Client Representative, Research Health Services (now Health Midwest).
 
Kay has a Master of Business Administration with a Marketing concentration from Rockhurst College where she graduated Summa Cum Laude and a Bachelor of Science, Marketing from Avila College where she also graduated Summa Cum Laude.
 
Kay's professional affiliations include: Greater Kansas City Council on Philanthropy member, 1993-present, Central Exchange member, 1993-present; Central Exchange Board member 2009 to present, graduate of the Central Exchange's Women on the Leading Edge leadership development program, 2000; Fellow and previous mentee in the Helzberg Entrepreneurial Mentoring Program 2004-present; graduate of Kansas City Tomorrow, a leadership program of the Civic Council, Class XIX; Member, Board of Counselors of Avila University beginning in 2012. Selected as a Woman of Influence by KC Business and featured in the book by Barnett Helzberg, "Entrepreneurs + Mentors= Success"
Former CEOs
NameTerm
Mary Pat Beals Jan 1992 - Jan 1993
Joyce Nelson Jan 1985 - Jan 1992
Senior Staff
Title VP - Director of Development
Experience/Biography Kris was with the Chapter for two years, first as the Communications Coordinator and then as the Major Gifts Development Manager, before being promoted to Director of Development. She graduated from the University of North Dakota, and has a background in marketing and public relations. She leads the Mid America Chapter's development team in raising support through mass market events, like the MS Walk and the MS Bike Ride, as well as through cultivating individual sponsorships and corporate support.
Title VP - Programs, Services and Advocacy
Experience/Biography
Title VP- Finance and Administration
Experience/Biography
Title Sr. Director of Donor Development
Experience/Biography
Title Sr. Director of Volunteer Engagement
Experience/Biography
Staff
Full-Time Staff 32
Volunteers 2500
Contractors 0
Retention Rate 74%
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
Non-Management Formal Evaluation Yes
Non-Management Formal Evaluation Frequency Annually
Plans & Policies
Organization Has a Fundraising Plan Yes
Organization Has a Strategic Plan Under Development
Management Succession Plan No
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Collaborations
We are part of the Kansas City Neurological Disorder Agencies Coalition, which includes the ALS Association, the Alzheimer’s Association, the American Stroke Foundation, the Brain Injury Association, the Epilepsy Foundation, the Essential Tremor Foundation, the Parkinson’s Association, and United Cerebral Palsy. We are also members of Community Health Charities, a collection of not-for-profits primarily working together on a workplace giving campaign. We also have a formal clinical affiliation with the Multiple Sclerosis Clinic at the University of Kansas Medical Center under the direction of Dr. Sharon Lynch.
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1955
Awards
Award/RecognitionOrganizationYear
Cavallo Circle of Honor Chapter National Multiple Sclerosis Society2007
Excellence in Knowledge Programs and Long Term CareNational Multiple Sclerosis Society2006
Gold Award - Mighty Special Kids activity book15th International Astrid Awards2005
Gold Excel Award: Best Illustrated Magazine CoverSociety of National Association Publications2004
James Ahearn Long Term Care AwardNational Multiple Sclerosis Society2005
CDBG Partnership AwardUnified Government Wyandotte County/Kansas City Kansas2008
Diamond Research Support AwardNational Multiple Sclerosis Society2009
Government Licenses
Is your organization licensed by the government? No
CEO Comments

The MS Society staff and volunteer partners are accomplishing high quality fund raising campaigns and program/service delivery. The ongoing challenge is continuing to recruit and retain high quality staff, build teamwork and provide professional development to continue to ensure that staff and volunteers have the tools they need to achieve our objectives..

Board Chair
Board Chair Mr. David Dickey
Company Affiliation Cerner Corporation
Term Oct 2012 to Oct 2014
Email david.w.dickeykc@yahoo.com
Board Members
NameAffiliation
Mr. Matt Bock Lamson, Dugan & Murray, LLC
Mr. David Dickey Sprint-Nextel Corporation
Mr. David Doran Law Offices of David Doran
Ms. Dana Foote KPMG
Mr. Bill Gautreaux Inergy
Mr. Robert Nagel Kansas City Life
Mr. Jeffrey Peier Klenda, Austerman LLC
Mr. John Snyder SNR Denton US
Mr. John Snyder Dentons US LLP
Ms. Kim Sucha KPMG
Mr. Dan Watkins Attorney
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 10
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 8
Female 2
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 0
Board Meeting Attendance % 90%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 4
Standing Committees
Administration
Audit
Nominating
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Executive
Audit
Legislative
CEO Comments

We have worked hard to ensure that each member of our Board is fully engaged and contributing to the achievement of our goals.  We have been very intentional in identifying prospective board members that will help us fit a strategic need.  The board agendas are focused around our five strategic objectives so that our time and resources are directed towards our goals. We are continuing to strategically identify great board members and ensure that they are focused and engaged. We are focusing on increasing diversity of all types (age, gender, race, geography, etc.).

 
 
Financials
Fiscal Year Start Oct 01, 2012
Fiscal Year End Sept 30, 2013
Projected Revenue $4,397,703
Projected Expenses $4,366,606
Endowment Value $0
Spending Policy N/A
Percentage 0%
IRS Letter of Exemption
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201320122011
Foundation and
Corporation Contributions
$939,751$66,091$336,081
Government Contributions$0$0$17,386
Federal$0$0$0
State$0$0$0
Local$0$0$0
Unspecified$0$0$17,386
Individual Contributions$0$438,930$0
$0$154,676$23,062
$4,190$5,910$3,035
Investment Income, Net of Losses$905$461$1,683
Membership Dues$0$0$0
Special Events$2,734,519$3,066,645$2,341,764
Revenue In-Kind$116,523$161,055$27,949
Other$45,000$465,054$49,238
Expense Allocation
Fiscal Year201320122011
Program Expense$3,175,790$3,232,784$2,014,066
Administration Expense$165,233$162,757$80,477
Fundraising Expense$537,670$848,210$552,380
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.991.031.06
Program Expense/Total Expenses82%76%76%
Fundraising Expense/Contributed Revenue15%23%20%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$3,008,799$2,663,821$2,196,679
Current Assets$2,868,485$2,517,718$2,088,706
Long-Term Liabilities$0$21,392$0
Current Liabilities$1,838,657$1,464,471$1,241,898
Total Net Assets$1,140,153$1,177,958$954,781
Short-Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities1.561.721.68
Long-Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets0%1%0%
Top Funding Sources
Fiscal Year201320122011
Top Funding Source & Dollar AmountAnonymous $200,000 -- --
Second Highest Funding Source & Dollar AmountAnonymous $125,000 -- --
Third Highest Funding Source & Dollar AmountAnonymous $120,511 -- --
Capital Campaign
Currently in a Capital Campaign? No
Goal $0.00
Capital Campaign Anticipated in Next 5 Years No
Organization Comments

Like many organizations, the Mid America Chapter felt the impact of the economic downturn and experienced significant declines in revenue in FY2008 and FY2009.  We reduced expenses significantly while staying invested in our core mission related and operational areas.  We sharpened ou focus on our areas of highest revenue potential.  The result was a positive net income in FY2010 and ]FY2011. Although we missed our agressive revenue budget in FY2012, we managed expenses and achieved a positive net income. We continue to monitor expenses and cash flow and feel positive about achieving our revenue and mission delivery goals.

Foundation Comments
  • FYE 9/30/2013, 2012, 2011, 2010, 2009:  Financial data reported using IRS Form 990 and audited financial statements.  Foundation/corporate revenue line item includes contributions from individuals. 
Organization Name National Multiple Sclerosis Society Mid America Chapter (Declined to Update)
Address 7611 State Line Road
Suite 100
Kansas City, MO 64114
Primary Phone (913) 432-3927
Contact Email info@nmsskc.org
CEO/Executive Director Ms. Kay Julian
Board Chair Mr. David Dickey
Board Chair Company Affiliation Cerner Corporation
Year of Incorporation 1955